Restless arm and leg syndrome with numbness???

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txcntryboi23
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/30/2009 8:39 PM (GMT -7)   
So I'm new and this is going to be kind of long, there is your warning lol.

I'm 27 and RLS has been in my family, I remember as a teenager spending the night at my grandmothers. We would be watching the late night news, her in her recliner, me on the floor. I remember her kicking her legs as tho she was swimming for hours while watching t.v, being curious I would ask why she was doing it. She would reply "restless leg syndrome", I never understood untill now. Now that I am much older I am faced with the same agony that she was in, My legs ache, the same time my legs ache, my arms ache, Always when I am trying to go to sleep. The only way i can describe the intensity of this agony is this, Have you ever been so frustrated with something it brings tears to your eyes, or lost a huge football game and you felt so defeted you were on the borderline of breaking down? That is exactly how my symptoms are, Many nights just before i loose my sanity and cry, I force myself to get up and walk in circles around my house. Even as my grandmother was in her last days of loosing her battle with cancer last year, I went to her room, to pay respects and talk to her, as I sat down beside her bed, I noticed her feet moving back and forth like she was dancing, I asked her "granny are you dancing?" she replied....."restless leg syndrome". Is this ever going to go away? Im so irritable and tired all the time, but can never sleep, Ive been without health insurance for 9yrs, suffering that long, but next month my new insurance kicks in..Is there something specific I need to ask my doctor for, that wont make me have compulsive problems i.e. gambling and such that are risks with miripex? Also for the last six or seven years, Ive noticed my limbs go to sleep, if i sit in a chair, my toes go to sleep, if my arm is on the center console while riding in a car, my hand goes to sleep, Are these two related somehow???

Sorry for talking so long lol Thanks for reading.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 4/30/2009 8:58 PM (GMT -7)   

Hi...I have RLS but I don't just get it at night.  My legs feel tight, tugging, like the skin is too tight, and crawling.  It happens if I sit too long...I kick my feet constantly.  Doc would not prescribe Mirapex as he said the side effects would be too 'uncomfortable' as I am on Lexapro also.  He gave me valium instead and I take that at night.  I think it just lets me sleep through the sensation to run a hundred miles.

My limbs 'fall asleep' also, like if I have my arms resting on the arm of a chair.  Don't know if it is related to RLS or not.  BTW...I don't have health insurance either so I'm not informed on some of the new drugs that might be helpful for this condition. 

I guess I can't help you much except to commiserate!  I was playing bridge last week and kicked my partner in the shins about ten times!  Whoops!

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


txcntryboi23
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/30/2009 9:12 PM (GMT -7)   
Thanks For your Reply Donna, I sympathize with you, My dog sleeps with me, I cant count how many times he has gotten kicked in the head, When the Symptoms hit I feel like a windmill because my arms are going everywhere as are my legs lol, Hope there is a pill I can take to help me sleep, Can I ask you something? Does Over the Counter drugs, like unisom, Tylenol PM, or any other drug containing Dyphenhydramine (good luck spelling that one whew!!) seem to bring a sudden onset or intensify the effects of your RLS?

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 5/1/2009 6:24 AM (GMT -7)   

Hi...Honestly, I have never tried any of those things.  One of the side effects of Lexapro, however, is 'intensified RLS symptoms' so I am trying to wean off it.  I have a friend who plays in a band and has RLS.  One night he handed me a bottle of something called 'Restful Legs' that you can buy OTC.  It is homopathic and he swears by it and said he could never stand on stage without it.  I got home and there was only one pill in the bottle and the directions say to take three.  So...never tried it.  DUH...I guess I could go buy a bottle and try it but want to ask my doctor first.

Do you have fibro too?  Do you take any medication for it, if you do?  Also...do you just get the jerking or do you have the skin sensations that come with it?  Many people with fibro have RLS.

I guess all I can tell you is the only thing that has helped me is 5 mgs of Valium at night.  It is a $4.00 prescription which is good because like you, I don't have insurance.

Kicked my poor doggie square in the chops last night when I first got to bed...Ain't it grand???

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


txcntryboi23
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 5/1/2009 8:56 AM (GMT -7)   
Hmmmmmm, restful legs, the name sure sounds nice!! IM not sure if i have fibro or not, have'nt been to a doctor in 9yrs or so, I had another night of interrupted, poor sleep, I fell asleep fine, (this time) but i never get rested. ill have to go look for that over the counter "restful legs" it sounds like a slice of haven

VeryTiredMom
New Member


Date Joined Apr 2009
Total Posts : 7
   Posted 5/1/2009 9:53 AM (GMT -7)   
Hi! Yesterday at a doctor's appointment, I was told that I have RLS that is causing a sleep disorder which in turn could be causing Fibro. He prescribed Requip which is a Parkinsons medicine. I almost fell over when I saw how expensive it was but later found it on Drugstore.com for a lot less. I would be so happy if settling this RLS thing would help my Fibro symptoms. Good luck!
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