Prednisone question???? Please help

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Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 5/3/2009 3:42 AM (GMT -7)   
My Rhuemy just put me on Prednisone because I left a message that I was in a lot of pain. Well I took 1 prednisone tonight and my hips on down are hurting like heck. Why would I hurt more with the Prednisone? I think I'll just see what else happens over the weekend.
 
I took all my pill tonight (whole). I thought I would get a good nights sleep.??!! I took everything at 8pm and then went straight to bed. I can not believe I woke up at 12:30am...Usually when I take all of my pills I sleep for 12 hours. Now I'm back to my old habits again.... gurrrrrrrrrrrr I don't know what to do? Plus both of my ear have been ringing for hours on end and it hurts to even talk to someone on the phone because the phone (voice) is too loud. I did turn down the volume on the phone.
 
Help me.
 
Hara - Fibromyalgia, Sleep Apnea, Depression, Anxiety, Vitamin D - deficiency, Tendinitis in knees and writs and hands along with carpal tunnel in hands

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/3/2009 3:53 AM (GMT -7)   

Goodness I hurt this morning. I think I'm going to take a good painkiller and go to sleep and read ppls email postings later this morning.

Hara


SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 5/3/2009 4:51 AM (GMT -7)   
Hi Hara,

It sounds like maybe you're having some issues with the prednisone. I can't take the stuff myself as it makes me hurt worse and gets me all hyper and I can't sleep. I know it is dangerous to just stop taking it cold turkey, though, so you should definitely get in touch with your Dr. and see how you should taper off if that's what you decide to do.

I hope you start to feel better soon!!

{{{gentle hugs}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


vestabula
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Date Joined Nov 2008
Total Posts : 2855
   Posted 5/3/2009 5:15 AM (GMT -7)   

Hi Hara...My Rhuemy told me that Prednisone does absolutely nothing for fibro pain as the disease is not inflammatory.  It is usually prescribed for some auto immune disorder like RA...I remember my kids were on it for awhile when they rolled in poison ivy.  Think you should call your doc and tell him about your reaction.  Hope you get some sleep...I know all about hip pain keeping you awake half the night!

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 5/3/2009 6:52 AM (GMT -7)   
Hi Hara,
 
Donna is correct.  Prednisone doesn't help Fibro pain, it only makes it worse. The reason is exactly what Donna mentioned.  Fibro isn't an inflammatory disorder.  So when you add prednisone (cortisol), you have way too much natural and synthetic cortisol in the blood.  Excess cortisol actually makes pain worse. 
 
I have to take prednisone for my Lupus.  When I'm hurting it's hard sometimes to know if it's from my Lupus or my Fibro.  So I do the test.... I increase my prednisone a bit.  If I hurt more, then it's actually my Fibro flaring.  If I hurt less, then I know it was Lupus and increasing the predisone was the right thing to do.
 
Definitely talk to your doctor and tell him how you're feeling.  I can't understand why in the world they would put you on prednisone for your Fibro.  You don't have any inflammatory diseases do you?  Let us know how you're doing, okay?
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 5/3/2009 10:58 AM (GMT -7)   
Whenever I have taken Predisone, it makes me feel so much better, but it wasn't subscribed for my fibro it was just a temp thing for some tests I was having. Wow, maybe I have a inflammatory problem because I get these huge lumps on the inside of my elbows and knees, and they just said absolutely nothing when I showed them.
Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/3/2009 4:43 PM (GMT -7)   

I am going to call the Rhuemy's office on Monday and tell them I'm not going to take the Prednisone anymore because it's Not doing any good for me except giving me gas pains and keeping me awake all night. The nurse or (Person) that I talked to at her office said that I had an Inflamitory (something) I can't remember?........OH Inflamitory Pattern. I do have an appointment with her on the 22 of May.

At least the good news is I have my appartment ALL to myself. My son is with his Uncle for a little bit today. (Hugh sigh)

Hara

 


debimum
Veteran Member


Date Joined Feb 2006
Total Posts : 712
   Posted 5/4/2009 7:36 AM (GMT -7)   
I hurt from the waist down too when I start taking it. Sadly I have asthma and COPD and arthritis. I can sympathize with you.
back to square #1- off meds for now-dx with fibro.  Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections.  Asthma/COPD.
 
 


CT9A
New Member


Date Joined Apr 2009
Total Posts : 13
   Posted 5/4/2009 10:51 PM (GMT -7)   
My rheumy has been playing with high doses of prednisone for me over the last few months. I was warned to take them in the morning as they can have a caffeine type reaction and make it hard to sleep. I also noticed that, while it was taking care of my swollen lymphnodes, it was making my back, hips and knees hurt a lot more than normal.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/5/2009 2:14 AM (GMT -7)   
CT9A, You do also know that Prednisone can cause Osteoporosis (brittle bones) along with a whole array of different things. I would tell your rheumy to start bringing you down if your lymph nodes are OK now.?
 
I'm going to chew my rheumy out on the 12th of this month (May).
 
Hara

CT9A
New Member


Date Joined Apr 2009
Total Posts : 13
   Posted 5/5/2009 10:54 AM (GMT -7)   
I know there are a lot of side effects with prolonged usage, but my lymphnodes swell back up with a vengence as soon as I'm off the treatment. My rheumy's thought is that if it helps, it helps and we'll deal with the side effects as they come up. Probably not the best plan, but at least it's a plan, which is more than the rest of my docs have.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/5/2009 12:16 PM (GMT -7)   
CT9A said...
I know there are a lot of side effects with prolonged usage, but my lymphnodes swell back up with a vengence as soon as I'm off the treatment. My rheumy's thought is that if it helps, it helps and we'll deal with the side effects as they come up. Probably not the best plan, but at least it's a plan, which is more than the rest of my docs have.
Well, it is a plan, but for the life of me I myself don't want any of those other side effects, plus I have diabetes and depression as well as a few other things. My thought is that maybe the Prednisone was playing with my diabetes medication and they wanted to mix it up.
 
HARA

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/5/2009 1:14 PM (GMT -7)   
I have had to take Prednisone several times in my life for Crohn's disease, iritis of the eyes, and for autoimmune inner ear disease.  For my hearing problem I was put on 80 mg. a day for one month.  It basically shut down my immune system, I was catching everything that came down the pike, and I looked like the Pillsbury Doughboy.  It is nasty medication but necessary occasionally.  I only was prescribed it for short term use.
 
I am posting a link all about Prednisone from the Physician's Desk Reference.  Hara, under "Possible Food and Drug Interactions" it mentions this: 

Prednisone may decrease your carbohydrate tolerance or activate a latent case of diabetes. If you are already taking insulin or oral medication for diabetes, make sure your doctor knows this; you may need an increased dosage while you are being treated with prednisone.

Here is the link.

http://www.pdrhealth.com/drugs/rx/rx-mono.aspx?contentFileName=Pre1121.html&contentName=Prednisone&contentId=454

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/5/2009 2:17 PM (GMT -7)   
Hara, prednisone absolutely raises blood sugar.  So anyone on it needs to be extra cautious if they have diabetes.  Prednisone also makes you more sensitive to the sun.  There are a lot of unwanted side effects but if you need it for inflammation, it's a life saver. Literally!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


luvspringflowers
New Member


Date Joined May 2009
Total Posts : 14
   Posted 5/5/2009 4:40 PM (GMT -7)   

Hi Hara,

I'm sorry that you are feeling bad with the prednisone. I know many people who can not take it due to the various side effects. Long term use and/or high doses can intensify any side effects. It would be a good idea to talk with your doctor about it. They also need to let you know specifically what it was diagnosed for and the duration of treatment.

I've taken a low dose predinisone now for over 3 years. I have been trying to taper for quite a while but have not been able to come completely off yet. I have RA along with the fibro so some days I can not tell what to attribute the pain to. I have had a signficant weight increase in those years along with the "moon face"...uuggghh. I've had to take medications to treat the side effects; it is really crazy. I'll be seeing a new rheumatologist in June and we'll see what happens.

I hope you get to feeling better soon. Again let your doctor know what is going on with the side effects; it is very important.

Spring Flowers


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/6/2009 3:42 AM (GMT -7)   

I went to my Chiropractor today. My trunk or core of my body is now not holding me up very well. He did all sorts of things to see if there was any sort of nerve damage or maybe a slipped disk. He's a very good diagnostition I trust him plus he knows my father so I'm in good hands. He gave me a back brace to wear when I'm really tired and can't hold myself up.

HARA

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