Ok, now you have me wondering.........

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/3/2009 3:40 PM (GMT -7)   
I haven't been diagnosed with fibro, several other problems, yet not this one.  After reading several of your posts, I have to wonder though. 
 
Maybe 10 years ago, my hip pain started.  Sometimes laying in bed was excruciating.  I would be dreaming, doing something with my kids, like riding bike, and I would stop and tell them I couldn't go any further, I was in too much pain.  I would wake up in tears, the pain was real, and broke into my dreams. 
 
My first trip to Long Island, my sweetie had to help me up and down steps, the pain was bad.  That let up some about 5 yrs ago, now it's back, not as bad, but back.  I get that sciatica pain too, sometimes, I think I will fall when walking.  Sometimes it stops me right where I am standing. 
 
I have neck and shoulder pain, which they tell me causes my headaches.  Well, the headaches never go away, I can't even remember what it feels like to not have one. 
 
I too, have carpal tunnel, inoperable they say.  I have been diagnosed with sensory neuropathy.
 
Some background on me...I am gluten intolerant (double DQ1 genes, which also cause neuropathy), sleep apnea, insomnia, arthritis, CFS, sensory neuropathy, axonel neuropathy, and possible sjogrens or sicca syndrome...but is some of the problem fibro.  My mother has fibro, and I know there is a heriditary factor involved.
 
Any thoughts?
We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/3/2009 5:00 PM (GMT -7)   
Hi Deb and welcome.  Read the fibro 101 thread, second on first page, it contains a list of fibro symptoms plus "what else could it be" about other illnesses that have some of the same symptoms as fibro that has to be eliminated before most docs will give a fibro dx. With your mother having fibro it is possible that you have it.
 
I hear you on the headaches shocked I have had a headache for so long that on those rare moments when I don't have one I notice.
 
My GP dxd me with fibro but some go to rheumatologist, I go to both.
 
Keep us posted.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/3/2009 6:26 PM (GMT -7)   

Thanks Marlene.  I checked it out, and I have at least 37 of those symptoms! shocked Some are very irratating, some stressful.  The vertigo, I didn't know that was a symptom of fibro.  The brain fog is a symptom of many things, and yeah, I have that too.  As a gluten intolerant, the brain fog should only effect me if I have been glutened, and that is very, very rare, I am very careful about that.  My vertigo happens usually when I am standing too close to someone, or even a wall and look up, then I lose all equilibrium and tip over backwards.

It's all very frustrating.  Doctors just shake their heads, and throw something else on my pile.  The last one, who diagnosed my CFS, told me too exercise, get lots of rest, lose 20#, and come back in a year or 2.  I was not impressed with her, as you can tell.


We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 4:49 AM (GMT -7)
There are a total of 2,734,568 posts in 301,223 threads.
View Active Threads


Who's Online
This forum has 151341 registered members. Please welcome our newest member, Emmyl00z.
274 Guest(s), 5 Registered Member(s) are currently online.  Details
Win2qt4u, Xmaslover, maria2016, Steve n Dallas, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer