Made appointment to get wheelchair...

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lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 5/4/2009 9:00 AM (GMT -7)   
So I finally called my insurance company and my doctor and made the very emotional appointments and arraignments to get a wheelchair. At this point I dont need it 24/7 (besides, I cant push it myself! what a joke that would be!) With the nice weather coming up, I am hoping that it will be an investment in my family and my marriage and they wont have to hear me say, "Oh, I dont think I can do that." At least as much anyway! wink

The lady I talked to for my insurance company was so nice! I actually hung up the phone saying I loved her! hahaha How often does THAT happen with customer service?!? She was so patient with my fibrofog, even after she tried to read to me a web address at the speed of light and when my brain was more focused on her doing the stupid "D as in dog, N as in Nancy" bit instead of the actual web address (OMG I got soooo lost!) she didnt give up on me like I expected...she just giggled along with me and said, "How about I read to you the phone numbers of the wheelchair providers closest to you?" OMG, genius and kind. Love her! smilewinkgrin

Then I called my Doc for the appointment I needed for the script for the chair. And even though I am proud of myself being able to decipher all this medical mumbo-jumbo and do this advocacy for myself (stuff that a little voice in the back of my head is angry b/c it shouldnt be so ^%$#@ hard but it is for us!) I am sad and full of tears as I say my name, DOB, reason for appointment b/c I have that same pit in my stomach like when I start a new stronger pain med.....like I am crossing a line that I may never cross back over. cry

I am trying to focus on the positive. The freedom, less pain, more options. I can go up and down the Boardwalk this summer and not slow anyone down.

But still...there is that angry and sad voice...this isnt what I expected to be doing when I was 36. Oh well, wasnt it the great John Lennon that said, "Life is what happens when you are busy making other plans."
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Topamax, Morphine, Effexor, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 5/4/2009 9:15 AM (GMT -7)   
Killa~~Stop making good points! It is a rainy gross Monday and I am busy having a "pitty-party"! tehehehe
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Topamax, Morphine, Effexor, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 5/4/2009 9:22 AM (GMT -7)   
Hey Lost in Philly...

I feel the same frustration, not expecting to be so physically accomodating to myself. I am 42 and just 4 yrs ago I was lovin' the gym, taking kickboxing and jogging and such. My extent of exercise is my recumbent bike and if I am ever, ever up to it walking. I now have a cane, handicap placard for the truck and I use the motorized carts in the stores if need be. UFF DA! Never thought I would be this way, but I do try to keep a positive outlook. I know it is hard.

I am glad to hear that you phone conversation was a good experience. Good customer service is hard to come by now it seems. You are taking good care of yourself in this way and that's great. Your trips to the boardwalk will be much more enjoyalbe for you. Enjoy the sun will getting some needed vitamin D. :-)

Hugs,
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 5/4/2009 2:16 PM (GMT -7)   
{{{{{Lost}}}}}

Oh, sweetie-I imagine this all must be a difficult step for you to make. I am also 36 and married with kids, and I have considered doing something like this myself. It is just so hard to do all of the things that I want to do with my family-I've got kids in soccer and baseball and summer is coming and they will want to be go, go, go all the time and even the thought of trying to keep up makes me hurt from head to toe! But I don't want to miss out, either!! It's such a stinky, rotten position to be in, isn't it??

I agree with Dani that you are very, very brave here. This is a big step and I know it can feel like-why the !$%^ should I have to be doing this in my 30's?!? but I think that if this will help you be fully active with your family again, then it is the right choice to make. I am proud of you and I do hope this makes a big positive difference in your life!

Keep on keeping on, girl! And if you ever need to vent to another young(ish!) mom who gets exactly what you're going through, please feel free to e-mail me.

{{{{{more gentle hugs}}}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 5/4/2009 3:40 PM (GMT -7)   
I have a power wheel chair and I love it. A lot of people see mobility devices as signs of a person giving in and going downhill but that is wrong.

You can do a lot more when you have the right tools for getting around; be it your feet or a wheelchair.

I was able to care for my children, travel, go to grad school, swim, work and more. All because of my wonderful wheel chair.

I cannot push a manual one so I got an electric. My insurance paid 100% for it.

You rock!

Donnaaeil

lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 5/4/2009 3:58 PM (GMT -7)   
I hear you Donnaaeil, mobility aides are controversal in that they are taken as signs of weakness by some. I hope I didnt imply that in my original post!
I love what you said, "You can do alot more when you have the right tools." That is so where I am at right now. My life is very limited b/c of my pain and weakness in my legs especially.
My insurance will only pay 50% so I am not sure what I can get. I agree electric is the way to go since one of the reasons how I realized it was time to get a chair was my cane was hurting my hand too much! My arm is too weak to make the cane work.
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Topamax, Morphine, Effexor, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."

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