thinking I might be joining you

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jjuice2
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/5/2009 8:44 AM (GMT -7)   
Hello everyone,
Well, in the last couple of weeks I have learned a ton about fibromyalgia and i haven't even been diagnosed!  I am a 38 yr. old mother of 2 with many various health problems.  I just about fell over when I stumbled across the symptoms of fibro because it was describing me!  I'm also wondering why all these neurologists I've been seeing for years have never even explored this possibility, but I that's why I'm always doing research on my own. 
 
I have IBS, interstitial cystitis, chronic daily headaches, painful periods, chronic fatigue, anxiety, depression and aches and pains pretty much all over the doggone place but especially in my head, neck, face, shoulders and most recently, knees and legs.
 
I have an appt. with my regular neurologist who is also a pain specialist on 5/7 and I always go in there with a list of questions so this is something I definitely will address.  Up until now, he's pretty much been treating me for the headaches and neck pain.  That may also be why this diagonosis may be one he would miss - don't know if we've discussed all my other ailments that other docs are treating.
 
Anyway, crazy as this may sound, I would be kind of relieved to get a "real" diagnosis, does that make sense?  Although I know from what I've read some don't treat this as such, I believe it to be and would love to try some of the different things I've read about that may help...even if it's just a little bit. 
 
I think it's wonderful how supportive you all are of each other.  I will keep you posted and let you know what happens at my appt.  I have enjoyed reading your posts...they are inspiring!
 
Thanks,
Julie
 
 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/5/2009 9:50 AM (GMT -7)   

Hi, Julie, and welcome!  Boy, you do seem to have a lot of what we have.  And, no, it isn't crazy to want to have a diagnosis.  We've been there and done that.   Many of us have been told it's all in our heads.  Yeah, right...in our heads, back, neck, shoulders, arms, legs, hands, and feet!  shakehead

Check out the Fibro 101 thread...the second thread on the forum.  There are links to information about fibro and one is a link to symptoms.  You could print that out and highlight the ones you have and take them to your doctor's appointment.  We usually have quite a few but no two fibromites have exactly the same symptoms.  But pain, fatigue, and fibrofog are usually the hallmarks of fibromyalgia.

I'm so glad that you found us and joined in.  We do have a wonderful group of people that love to help one another and, as a bonus, we really do care about each other, too.  So read Fibro 101, back posts, and ask questions.  We are here to help you.  Let us know what you find out!

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


.....
Regular Member


Date Joined Mar 2009
Total Posts : 117
   Posted 5/5/2009 10:04 AM (GMT -7)   
I totally understand what you mean about feeling relieved to get the dx. It was so WONDERFUL to learn that I am not just lazy, or a hypochondriac, its not "just the way it is when you get older". The pain is real, the fatigue is real--it's not all in my head!

The fibro dx explained so many things that I had been experiencing and beating myself up over... [OH please. NOBODY is laid up for 4 days just because they mopped a floor. You're just lazy and out of shape. Why are you such a space cadet lately? Geez you should try paying attention once in a while.] Now I know it's fibro and I can cut myself a break!

It really is both frustrating and scary when your body is doing things you don't understand. And the stress of that just makes it all even worse. I hope you get an explanation soon.

Oh, and welcome to the forum! You'll love it here.
SONG (Donna)
Fibromyalgia, Gastroparesis, IBS, Vertigo
Endometriosis, Hypothyroidism, Psoriasis, Asthma, Cholecystectomy
(Diabetic spouse)
 


jjuice2
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/6/2009 6:34 AM (GMT -7)   
Gosh that is all so true! Especially about the laziness! I only work p/t, from 9-1, M-F, and by the time I get home in the afternoons lately it's like I can't function unless I take a nap - I'm totally pooped. My husband loves me very much, but he doesn't understand why I'm napping in the afternoon instead of getting things done. I don't understand it either! The worst part is, like someone else mentioned in another post, I don't really feel any better when I get up. Groggy, head hurts, body aches, etc.

I'm also in charge of paying the bills in our household. Last month I forgot to pay the mortgage. Yup, just forgot. My husband was asking me, how can you simply forget? My only answer was, I don't know, I just did! The stress of dealing with these things happening to you is enough, but then trying to explain them to others when you don't even understand makes you want to pull your hair out.

You guys are great. Thanks!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/6/2009 7:56 AM (GMT -7)   
Hi Julie and welcome. Some docs don't believe fibro is real so if you get negative results from this doc your going to find another that does believe in fibro. I have to keep my bill paying card right in front of me anymore so I don't forget to pay something. Actually, I haven't even made up May's yet so better do that this morning.
 
It's a crazy life we fibromites live but it is best to know what you are fighting so I hope you get a dx of something.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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