Lymekiller...NO ONE with fibro is 'lucky'. If you have done any research on this disease, you will see that most of us had it at your age and just didn't know it. Fibro is a relatively new to the medical profession and even though it is a real disease, we are passed over as being hypochondricas and chronic complainers. I am 63 years old and can remember in grade school not being able to take gym because my legs hurt so bad. At six years old I was taken to the doctor with chest pain. My back has been numb and tingly since I was twenty years old.
If you are so convinced you have Lyme...take a course of anti biotics and see if your symptoms go away. None of us on this forum are 'Lucky". If anyone is, you are if you have Lyme because you can be treated and have a chance to be cured. The rest of us with fibro will suffer and just try to live normal happy lives with the cards we've been dealt.
Post Edited (vestabula) : 5/7/2009 9:17:59 AM (GMT-6)
Good point, Danielle...yes I guess we are lucky we don't have MS or something else more serious. There are things to be thankful for!
Jokat...I prefer to play 52 card pick up. Not by choice but that's what usually happens when I shuffle. We have three sets of card with only 51 cards in them...I must lose one somewhere when I am allowed to touch them!
Oh..this topic is so interesting. Danielle...when I went to the Rheumy two years ago with all these symptoms that had gotten so much worse over the years I tried to convince him that I had MS and they missed something in all the testing. He told me that if I didn't have it when they tested me at 40 and then again at 55 I DID NOT HAVE IT and wouldn't even do another ANA. He told me MS manifests at an early age and that's why it is called a 'young persons disease'. What he DID say however, as he treats many with MS, that fibro pain, in many instances, is worse than MS pain. So he was very understanding and didn't blow me off like many docs had done in the past.
Rose, my darling...so sorry to take over your post but glad you did it! I don't care if you are 47 or 102...I know you hurt and am proud of you that you can work and get through it with a positive attitude. Kudo's!
Fibro is a very painful condition and I definitely am not lucky that I have it. I'm not lucky that I have any of the illnesses I have. I just do my best to work around it to do things I really want to do. Can't do them all, but I give it a good try.
I stopped trying to get people to understand this illness. It's impossible! I used to try and I was just beating my head against a brick wall. So, I just do my own thing. If people don't like it, too bad.
Donna, I think I know where that extra card is...how about up your sleeve?
Oh, and Marlee, I have something that will help you!
The fog is the worst. It is easier to explain muscle disorder. My hubby was forever saying, "I just told you that!" before I explained the fog. Now we have a running joke - whenever I have trouble thinking, I just shrug and say "fog" and everyone laughs.
I tend to keep quiet most of the time about the pain. But those who are around me a lot can tell when I am hurting. When we walked at the grand canyon, I was way way behind the others, just trudging at the best of my ability. I couldn't go faster if I tried and hubby stayed with me. That night I took 3 muscle relaxers, a benadryl and a half a tramadol and hallucinated that the smoke detector was floating around on the wall. I thought someone was spying on me until I figured it was the smoke detector, which should have been stationary. When people experience things like that with me, I hope they can tell that this is real.
Donna, you said you have been exercising for three years and have not gotten better. Do you think that you would have gotten worse if you had not exercised? I am trying to walk every night. Last night I started hurting really bad before we got back home and then when we got closer I stopped hurting again. It was really weird. I was hoping to do Disneyland in November without a wheelchair and am not sure if that is a realistic goal when I cannot walk half a mile without pain.