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Regular Member

Date Joined Mar 2009
Total Posts : 30
   Posted 5/9/2009 12:51 PM (GMT -6)   
I hate my knees. My fibro started with my knees. The last month, my left knee has gotten so bad I can't bend it. Being in a sitting position (or even laying down with my leg bent) makes it THROB like crazy. Even after just a few minutes. I can't lift my legs without feeling the pain -- that's right, it started in my right knee too last week. Today they feel like lead and I can hardly move them at all, and they are trying to lock backwards when I stand. (trying to buckle, I guess.)
Now, I talked to this nurse at my health insurance company and she says that doesn't sound like fibro. I think fibro can cause just about any kind of pain it wants. But I have had my doctor tell me my kneecaps are misaligned and the nurse says that's what is causing it and I need an MRI. Obviously, I don't want to go waste money even if I do have insurance on an MRI!! I don't want to walk in there and have them look at me like I'm nutso again.
Anyone had a similar situation, or even if you hadn't, what would you do?

Forum Moderator

Date Joined Apr 2005
Total Posts : 17056
   Posted 5/9/2009 1:00 PM (GMT -6)   
Rache, I've had pain in my knees but it comes and goes.  I haven't had the problem you are having.
If your doctor has suggested that you get checked out, I would do that.  I trust my doctor and when he tells me something, I listen.  It's very easy to put any symptom under the heading "Fibromyalgia", but that isn't always the case.  Perhaps, if it is a kneecap problem, it can be remedied and you wouldn't have that kind of pain!  I think it's worth a shot checking it out.
Let us know what you decide.  We really do care.

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Mar 2009
Total Posts : 235
   Posted 5/9/2009 5:29 PM (GMT -6)   
Have you tried accpuncture? I find it helps the pain in my knees and in my hands. Or a muscle relaxer? I thought all the pain in my knee was casued by a crack in my cartliage so I had knee surgery. Knee feels great but I still do have pain in the knee and shin area.

I hope you feel better soon.

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 5/9/2009 7:01 PM (GMT -6)   
Rache, if your knees feel like they are trying to lock up I would definitely get it checked out by an orthopedic surgeon. They live for that kind of stuff :)  He might be able to diagnose the problem without an MRI. If an MRI is ordered just remember that it is a tool and not always the definitive answer. I know from personal experience that they do not always pick up every problem. I do think it would be in your best interest to NOT just chalk the knee pain up to fibro. Good luck and keep us posted.  Lisa

Life is the ultimate contact sport. Train accordingly and play hard.

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 5/9/2009 10:12 PM (GMT -6)   
I have a lot of knee problems--sweling, intense pain, feeling like they will give out when I'm going down stairs or downhill. But that is mostly caused by osteoarthritis. I think the pain is worse because of the fibro, but most of the problems are not fibro. Get it checked out. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Regular Member

Date Joined Apr 2009
Total Posts : 179
   Posted 5/10/2009 2:00 AM (GMT -6)   
Rache -- My situation is similar to Diane's - also caused by OA and bone spurs. Think my pain is also worse with the fibro, but that's definitely not the total picture. My doctor has told me that I will eventually have to have surgery, maybe just arthroscopic type, and I am close to giving her the go-ahead to send me to an orthopedist. May have the left one done this summer; see my doctor soon and we'll discuss it again then. Do hope you decide to get this checked out -- even an x-ray can tell them if you have arthritis or spurs and if you need an MRI. Please let us know what happens. We do care...
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac 
      stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
      Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
Newbie to forum and novice with computer - patience, please!

Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 5/10/2009 2:08 AM (GMT -6)   
I can relate to this my Doctor wanted me to go and think about surgury for my knee I had a fall and it was terrible but I said I would wait and see it took time but now they just hurt all the time and I hate walking down steps because I have had several falls due to them giving out. If aMRI had been suggested I would of jumped at it. But my Doctor was convonced I had done major damage. But as she said I knew my own body and getting to know it and the pain we suffer is a must do that way if we get pain that does not belong we know what it is. Recently the FM started in the stomach I had to have injections just to stand up the pain was unbelieveable. But I knew my body and where the apin was coming from. Get to know your body even write it all down so you can show your Doctor

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 5/10/2009 7:35 AM (GMT -6)   
Rache1020: Can I have your MRI. MRI's are like plutonium in Canada. If someone said "you can have an MRI", I would get my tent and pitch it outside the facility for a week just to make sure I was on time for the appointment.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

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