Post Edited (Sherrine) : 5/12/2009 2:47:06 PM (GMT-6)
Brother...that is abhorent. The first doctor I went to told me I had myofascial pain syndrome and marked that as my dx on the paper work, even though I went there will all the info on Fibro and when she poked at all the trigger points, I about levitated off the table. She said she didn't believe in Fibro...it was a 'Yuppie Disease and right up there with Gulf War Syndrome.'
Like Sherrine said, find a fibro literate doctor that will help you. I think you can call the Arthritis Foundation and they will give you the names of some in your area.
Feel better and keep us posted!
Daisy, here is a link from a fibro support community with a list of doctor's for each state, who are considered good choices for fibro. If you're not in the states, perhaps you can find something similar through a different support group. I can personally vouch for one of the docs on the list in Ohio.
Lucy, I bookmarked your link! Thanks!
Philly, if you google "topamax neuropathic pain" or "topiramate neuropathic pain" you'll get quite a few articles, and it appears that quite a few of them have made their way into peer reviewed journals, such as this one: http://www.ncbi.nlm.nih.gov/pubmed/12514458
A lot of them focus on the pain that goes along with diabetic neuropathy, but I know some of us, myself included, have similiar types of nerve pain, so it seemed like it might be worth a shot.
Especially since nearly everything else on earth makes me drowsy, and I've got enough fatigue without adding to it with medication, lol.
Post Edited By Moderator (Sherrine) : 5/17/2009 8:37:22 PM (GMT-6)