Fibromyalgia and pain meds

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lisa (AKA pain)
Regular Member


Date Joined Mar 2008
Total Posts : 24
   Posted 5/13/2009 4:11 PM (GMT -7)   
 H i All,
 
It's been ages since I've been on the forum.  But I need help and support.  My "pain mangement" doctor has suddenly dropped me.  She was the one who told me that some patients just don't get any relief from other meds. (including me).  I've seen a new Pain doc twice - today being the 2nd time.  I belong to a "Medical Group" so my choices are limited.  I was told by another worker that this particular doctor does not even believe in Fibromyalgia.  She has tried to drop me from 8 (5mg) Percocet daily to zero in a matter of 3 weeks.  I just can't do it!  My pain level is almost at a constant 9.  She is keeping me on Opana which is a long-term pain med (doesn't really work for me).  Believe me, I've tried ALL the other resources I can:  Baclofan, celebrex, vicodan, morphine, oxycontin, Fenenol patch, etc.. NOTHING else works for me.  I'm sooooooooooooooooooooo frustrated and mad that I've been put in this situation.  My primary care doctor will have nothing to do with my pain meds until they are prescribed by one of the pain docs.
 
I have asked for a new Pain Doctor - but there's no guarantee that he will prescribe my percocet.  Get this:  They'e been having me to take #5mg Percocet when there is a #10 Percocet - however, that medication is not in their "proticol."  So here I am, putting my liver at risk to save them a dime!!!   Gimme a break - I had to fight to a year for them to finally prescribe Nexium and generic prilocec is about as good as a sugar pill.
 
I don't know if I just need to vent - what I really want is support.  I see a mental health therapist twice a month and made an emergency call to them last week.  PLEASE somebody help me!  Thank you  cry

Lisa
_____________________________________________ 
Yesterday is history
Tomorrow is a mystery
Today is a gift - that's why they call it the present


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 5/13/2009 6:08 PM (GMT -7)   
I don't really have much good advice as I've not had to be treated by a "group" but I wanted to at least say that we hear you and that we will listen as support as best as we can.

You might want to take your medical records to the new doc to show what you've already tried and what's not been effective so far. I know that a lot of people keep copies of their medical records on their own. I'm not sure if this is something that you've been doing as well.

*Looks around room* I'm sure that someone else will have some ideas that may help too.

But keep hanging on. We're all here to hear each other and to brainstorm things through.

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 5/13/2009 7:32 PM (GMT -7)   
Grrrr. This is the new thing, no pain meds for folks with fibromyalgia.

I have no answers just wanted to let you know I understand.

Donnaeil

IronCladDaisy
Regular Member


Date Joined Jan 2008
Total Posts : 45
   Posted 5/13/2009 8:02 PM (GMT -7)   

No advice here either, but you have my sympathy. I hope you can get some help from someone soon.

 


Daisy
 
Fibromyalgia, Joint Hypermobility, Megaloblastic Anemia, Migranes, Depression
 
Vitamin D, Vitamin B-12, Topirimate, Wellbutrin


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 5/13/2009 10:07 PM (GMT -7)   
"Opana which is a long-term pain med (doesn't really work for me). Believe me, I've tried ALL the other resources I can: Baclofan, celebrex, vicodan, morphine, oxycontin, Fenenol patch, etc.. NOTHING else works for me. "

So I'm not clear here... You have listed the strongest pain medications available known to humankind and stated that they don't work for you... Not morphine, not oxycodone, not oxymorphone... What exactly do you want the pain doctor to do for you? Oxymorphone is a very strong med and should be helping with the pain. And percocet is only oxycodone (which you state does not work for you) plus acetaminophen. What is it that you want to take?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/14/2009 2:05 AM (GMT -7)   
donnaeil said...
Grrrr. This is the new thing, no pain meds for folks with fibromyalgia.

I have no answers just wanted to let you know I understand.

Donnaeil
I had to paramedics here the other day. One of them was looking at my meds I had on the table. He says what is the Oxycodone for? I said my lower back and hip pain. I was having other problems at the time. I almost told him to fly off.

Lisa (AKA pain)
Regular Member


Date Joined Mar 2008
Total Posts : 24
   Posted 5/14/2009 5:18 PM (GMT -7)   
Actually, Percocet IS the only thing that works with me. I haven't heard that they are no longer prescribing pain meds for Fibro patients. That's outgrageous, as we are all in pain! I think part of the problem is the news - celebreties over-dosing on their meds. This makes it so much more difficult for those of us who are in chronic pain.

I suppose I may have known what was coming as I refilled my Percocet days before seeing the new/now ex doc. (I felt a little sneaky, but I know what is best for me). I do have another appointment with a new Pain doc. It sounds like he's most likely the one who will help me. I'm keeping my fingers crossed.

Thank you so much to all of you for listening to me and giving me your support. It means so much to me.
((((((((((((((((((((((((((((((((((((((((((((((hugs to all)))))))))))))))))))))))))))))))))))))))))))))

Lisa
Lisa
_____________________________________________ 
Yesterday is history
Tomorrow is a mystery
Today is a gift - that's why they call it the present


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/14/2009 9:30 PM (GMT -7)   
Hi, Lisa -- Many of us know the frustration of trying to get something/anything to help our pain. I'm like you in that the only medication that even touches my daily 8 to 9 pain is percocet. I'm extremely lucky to have it (even though I only have enough prescribed for 1.5 tabs per day), because I'm allergic to codeine and hydrocodone. Even my doctor doesn't really know why I can take the oxycodone. The only reason she gives it to me is that she has been diagnosed with mild to moderate FMS herself - mine is considered severe. Don't really think it matters a lot what degree that it gets, when it hurts it hurts! I'm also luckier than many in that I am very sensitive to meds and can usually get by with half a percocet at a time. Anyway, enough of my babbling! Have you read any of the previous posts here? I know that they have other hints to help. Bed buddies give moist heat and I am never far away from mine, though my chihuahuas steal it as soon as I walk away from it. LOL Warm baths and showers are also good, or swimming in a heated pool if you have access to one. Stretching exercises, done gently, may be uncomfortable while doing them, but help in the long run. There's more, too, so keep reading and posting ----- and hang in there. We can do it together......and we do care about you....
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac 
      stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
      Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
Newbie to forum and novice with computer - patience, please!
 
 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/15/2009 4:09 AM (GMT -7)   
No pain meds for Fibro? Is this new? I have been banging my head against this wall as long as I have had Fibro, after it was diagnosed, I mean. The equation is simple. Follow the money. How much does Lyrica cost? Percocet has been around since the beginning of time. It is cheap as dirt. Groups, HMO's etc. are told what to prescribe by legislators who are not doctors but politicians influenced by lobbyists whom are paid to influence legislation on behalf of hugh conglomerates. Do you have any idea what percentage of the GNP is made up of pharmaceutical company profits, 20, 25, 30 %. Find a doctor who either has pain or understands pain. My doc doesn't believe in Fibro either but he understands pain (Rheumatoid Arthritis, you can see it in his hands), and as long as I stay within his protocol, 8 tylenol 30 mgs. per day, he is very kind this way. I could have MS, Cancer, anything else going on, no matter, he isn't particularly interested, but when I present my empty bottle, and the dates make sense, he prescribes my medicine. It's always going to be a trade-off. I wouldn't change it for the world. I am an in the here and now person, not an immediate gratification person, but I live in the here and now. And if in the here and now, I am in horrible pain, well does anything else matter. That is not a life. Interview doctors, ask them directly if they understand Fibro and what their approach to treatment is. Take documentation. I have a complete set of my medical records up to the time of my being struck by a truck in 2002, plus what immediately followed. I take it to all my doctors on the first appt. One look at the sheer volumn of paper, and pointing out the injuries which spun me from a functional fibromite to a barely functioning fibromite, is enough for some docs. If you don't have this kind of amunition, keep a journal. Write out all the dx's and treatments with commentary about how it went. And, most of all, good luck, persistence, and strength to keep going, to you.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 5:43 AM (GMT -7)
There are a total of 2,732,900 posts in 301,070 threads.
View Active Threads


Who's Online
This forum has 151224 registered members. Please welcome our newest member, teacher2many.
231 Guest(s), 8 Registered Member(s) are currently online.  Details
don826, teacher2many, PeterK, dacarte3, Sherrine, fibrocushie, JaxCalvin, Traveler


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer