Newbie in Midwest

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New Member

Date Joined May 2009
Total Posts : 13
   Posted 5/14/2009 1:15 PM (GMT -6)   
Hello All,
I'm not new to messages boards, but I am new to this one.  I have been suffering for most of my life with what I now believe was Fibro all along. 
I have 3 children, all grown and I am married (2nd marriage) to a wonderful man who has 4 of his own.  We had custody of them - youngest is still at home with another year of school to go.
I have my oldest 2 adult children living at home for various reasons, but they are going to be rooming together in a house here in town soon.  One of them has 2 little ones - my little darling angel grandkids!  We are very close!  LOL  However, this does cause me stress!
I have NO idea how I make it each day.  I think what I like to do (sewing) really takes control of all the bad things and helps me to continue on. 
In 2003 I got sick beyond my own control.  That summer I was really having trouble with my legs.  I couldn't walk up or down the stairs or across the yard without having to sit.  And it wasn't pain, it was something I can't describe.  My Mom begged me to go to the Dr.  I told her that it was nothing.  LOL  But by the end of the summer (early August) I was getting no better and dicovered that I had a low grade fever.  My friend had West Nile and she convinced me to go see her Dr.  I did...he said I had WNV and they also discovered that I was severly anemic.  I was just a few weeks from sure blood transfusion!  This was the problem with my legs - the amemia...!  It caused my RLS, it was the reason I was eating ICE as food!  I laugh when I think of how everyone in the family would get a burger, fries and all I wanted was a huge cup of ice.  :)
Well the anemia was due to my female stuff and once I was over the WNV I had a full hysterectomy.  Now that is where the hot flashes kicked in...  OMG!  I no longer have cold feet!  My ICE habit is cured, my RLS is gone and I can walk up and down the stairs again...
But, the same old muscle pain (head to toe), headaches, dizzy spells, memory, concentration, inability to stay on task and so much more still hounds me...
My OB-GYN told me I had Fibro back when I had the Hysterectomy.  But I didn't believe him.  So here it is, almost 6 years later and have just had such a bad week so I called my Dr (GP) and told him that I was having so much trouble that I had to do something.  He told me he thinks it's Fibro and said I needed to be trying meds.  
We discussed a few different ones and decided on Cymbalta.  I'm on my 3rd day of that, and he gave me 8 samples of Lunesta to help me sleep. 
OH that is the biggest of my problems.  I don't sleep good at all.  I have trouble falling to sleep, staying asleep and I am sure I don't get into a deep sleep at all.  The fatigue during the day is my worst problem...
I don't think there is a special Fibro Dr. in my area...not really sure how to go about finding one that is close to me. 
So that in a nutshell is me.   I'm basically a happy go lucky girl.  I still bowl despite the pain, go walking, garden as I can and I try very hard not to let all the pain get in my way.
Today I have a headache and moderate pain, but I'm up and at-em in my sewing room.  I'm here because I don't know anyone close to me with Fibro and want to know how others handle the pain and all the fog... 
So, cheers from the Midwest! :)

Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 5/14/2009 2:41 PM (GMT -6)   
Welcome openSKy!

I was told by a couple of my docs (rhuemy, infec. disease) that I have been dealing with fibro for at least 12 yrs by my description of problems I've had.

When I got to the point of "what the heck is wrong with me", it took me about 3yrs to get the diagnosis. My primary phys. gave me my "offical" dx.

It sounds as though you have had some other painful/awful medical probs along the way. Uff Da! Having so many childern, kinda reminds me of me. :-) I have 2 and my dh has 3. All grown, except one.

Their is a lot of good info on the second thread "fibro 101" of this forum. Check it out. I still cruise through it once and while to re-read some points of interest.

Have a great day!

Dx Fibro 1/2008, gastritis
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed

Veteran Member

Date Joined Feb 2009
Total Posts : 818
   Posted 5/14/2009 3:18 PM (GMT -6)   
Welcome openSky. 
You came to the right place.  Lots of wonderful, caring people here.  You certainly have had lots of health stuff going on.  Your sleep problems described me exactly until I was dx in Feb this year.  I never slept through the night and almost every night got up to soak in a tub of very warm water to relieve some of the pain and stiffness.  Now I sleep well most nights thanks to the low dose anti depressant and voltaren that my doc prescribed.  I know I have had this fibro for many, many years but waited until the pain was unbearable before I started talking to doctors about it.  I am still (thankfully) able to do lots of physical things, biking, yoga, walking and even the gym-just a little slower than I use to.  Being able to finally sleep has really helped me. Keeping active and doing lots of easy stretching and yoga makes me feel better, even if I have to kind of force myself to get started.
My internist was the doctor who finally gave me a dx and is treating me.  He listened to me which a previous doc didn't.  When I read the list of symptoms that fibro people have I wonder how my previous docs missed it.  I have had lots of the symptoms since the 70"s!  I was tested several times over the years for RA but everything came back o.k. The doc said it's 'just' osteoarthritis. mad  I was originally from the Midwest and recently moved to Ca.  I found this great doctor by chance.  I needed to find a doctor for some other health issues I have.
You'll find everyone here very helpful with lots of good info.  How great you have so many love ones.  I have a wonderful hubby and 3 grown boys but no grandchildren yet.  I also sew but not as much as I use to.  I am starting on a small project-just some comfortable pull on pants.  Like some other people with fibro I can't stand any tight clothes.
I hope you keep visiting us.  I wish you a great and hopefully pain free day and eventually many good nights of sleep. wink

Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
On the eighth day God created Golden Retrievers.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 5/14/2009 3:24 PM (GMT -6)   
Hi Sky...and welcome to our family!!

You and I have a lot in common....#1 sewing! I'm an avid quilter and love It keeps my focus on something else besides the pain. I too watch and feed the hummingbirds and took gardening so far that I started a nursery. I had to let it go finally when the fibro got the best of me. In fact doc doesn't allow me to teach any more either. But there is always sewing and collecting fabric. And OH, those grandkids. Gotta love 'em. It took me 2 tries also to get this marriage thing right but the second time I married a bachelor of 43 (at the time...we were both about the same age then). He is my very best friend and number one supporter. I would be hopeless without him in my life.

I was one of the lucky ones who had my pcp diagnose me fairly quickly since he'd been watching me slowing have many of the symptoms of fibro. He sent me to a rheumatologist for conformation but it was more a formality than anything. The pcp treats my fibro which is another gift. He believes in quality of life. Having a wonderful doc whom you can work with comfortably is the best medicine for fibro there is...IMHO...

I watch one grandson - 2 y/o - several days a week so I agree...I have no idea how I do it but I just keep pushing on. But the pain is always there. I'm glad your doc is trying the Cymbalta. Many folks have tried it and those who don't have side effect problems often get a lot of relief. The only problem many people have with Cymbalta is that is only works for 2-3 years. But hey! I'll take pain relief any way it comes. I couldn't handle the side effects...couldn't even hold my heat up..literally!

OK, I've babbled enough. Again, welcome to the family and come join us for our daily Koffee Klatch post. It's a small time in our day we can chat about anything BUT

Keep in touch,
Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 5/15/2009 10:06 AM (GMT -6)   
Hi, Sky, and welcome!  I'm so glad you found us and joined in.  We have wonderful members that really love to help one another and we really do care about each other, too!
You are correct about focusing on what you enjoy doing.  It does seem to cause the pain to fade some in the background.  If you think about your pain and discomfort all the time, it becomes all-consuming and will rule your life.  You do have to keep going with fibro so it doesn't steal your life away.
I see a board certified Internist for fibro.  I'm not sure if there are fibromyalgia least not yet!  Many look to a rheumatologist for their fibro pain but my Internist does a good job for me so I just let him take care of all of my problems.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There is good info about fibromyalgia in there, including some good stretching exercises that can help you.
Meanwhile, read back posts and ask questions.  We are here to help you.  I'm glad you are here and I hope to hear more from you soon.

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 5/15/2009 9:14:27 AM (GMT-6)

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 5/16/2009 7:03 AM (GMT -6)   

Hi openSky and Welcome!

Could relate to eating ice! I became anemic while pregnant with my now 17 yr. old son. I would chew on glass after glass of ice. I was as white as a ghost and could not move. I went to the Dr. and she did blood work. Hemoglobin was SO low and got started on an iron supplement immediately. The day he was born, my hemoglobin completely returned to normal and I did not want to look at another ice cube as long as I lived!

Lots going on for you! I have two GD's and they are nothing but balls of energy- and can completely wear me out but worth every minute-

Hope the Cymbalta and Lunesta start to bring you some relief. We have a great group here and it was nice to meet you!


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

New Member

Date Joined May 2009
Total Posts : 13
   Posted 5/16/2009 7:38 AM (GMT -6)   
Thank you so much for all the warm welcomes! I feel loved! :D

I had a bad day yesterday but the evening was great and I took my meds at 10:00 and went to bed. My daughter accidently called my cell phone and I didn't hear it! That is amazing. I woke up much less stiff today than any other day so I'm sure the Cymbalta and likely the better sleep is working.. YIPEE!

I am bowling a triathalon today so I hope to bring in the dough for the high school bowling team. LOL

Hugs to all
WNV 2003 - TVH 2003 - Fibromyalgia
Premarin - Cymbalta - Lunesta
Women's One A Day w/Calcium, Iron & Zinc
~ To the world you're one person,
But to one person you could mean the world ~

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 5/16/2009 9:54 AM (GMT -6)   
Hi Sky and welcome. Thought I did that yesterday but guess not, gotta love the fibrofog. Sounds like you have your hands full with children. At the moment I have no children living with me. I say at the moment cause from past experiences I know that can change real quick. So I have a 8 mo old and 8 week old puppies. I guess some of us just can't stand having an empty nest. They keep me busy and distract me from the pain. I find distraction very good medicine. I'm going to hurt everyday whether it is sitting here or doing something I enjoy, so might as well enjoy.
The rain and storms we have been having here in central Illinois is playing havoc with my body so I hope it ends soon. Don't know if your getting any of those or not.
I'm glad you found this wonderful group of people.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Member

Date Joined May 2009
Total Posts : 13
   Posted 5/16/2009 10:05 AM (GMT -6)   

No storms here... I'm in Central Nebraska and I know what you mean about the storms. I don't feel the same when storms are near. That is mostly spring and summer though, in winter it's not that way.

Distraction is the best medicine. I guess that is what got me this far. LOL And I love puppies! And kittens... so much fun! We have cats ourselves, but the kids all have dogs. 2 of which are here presently... Good dogs, but lots of extra cleaning.

WNV 2003 - TVH 2003 - Fibromyalgia
Premarin - Cymbalta - Lunesta
Women's One A Day w/Calcium, Iron & Zinc
~ To the world you're one person,
But to one person you could mean the world ~

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