Hi Kelly, and welcome. I'm sorry you had to drop out of school, but with fibro, massage therapy may be a difficult career to continue. I'm a stay at home mom, but if you search through our forum, there are some past threads in which people discuss their careers/jobs and how they manage them with fibro. You may find some ideas there.
I've also done a Google search on jobs people w/fibro can do (I will probably go back to work when my daughter goes to college), and there is lots of info. out there.
I'm glad you've found us, and I wish you the best.
Hugs - Austen
Welcome to the forum. This is a wonderful place to meet friends and learn lots of great information.
You are a dancer? How exciting. Please take a look at these two websites. The first is a mixed ability dance company in the San Francisco area, but there are these companies all over the world, I am sure. http://www.axisdance.org/ I am not a dancer - I look a lot like a goose when I dance!!! But I have done workshops with them and have seen them perform. Mixed ability is people of all sizes and abilities and disabilities.
The second is caterpillar soup and is about a dancer who fell out of a tree and was paralyzed and how she coped and started dancing again. I saw her speak while I was involved in mixed ability dance. http://www.lyenastrelkoff.org/caterpillarsoup.html
I tell everyone I can about mixed ability dance because it operates under the premise that everyone can dance. They would argue with me when I say I cannot dance and say, even a goose has a place!
Here are some reviews for caterpillar soup. (I am not selling it - so I hope this is ok! plus the website is free)
"...The past can't be undone. And I don't know if Strelkoff will ever regain full use of her legs. But I do know that by her exquisite performance and by the nature of a spirit that soars... she has enlightened and ennobled us all." -- Al Martinez, LA TIMES"...In her regenerative hope and raw honesty, this wholly courageous artist is, in the truest sense, both humbling and inspiring. " -- David C. Nichols, LA TIMES
Good luck finding your answers. Gentle hugs,
Post Edited (Statgeek) : 5/17/2009 12:17:57 AM (GMT-6)
Howdy fellow Floridian!
sorry, I had to edit this post because I started going on about ME! This is the revised version, sharing tips FOR YOU!
here are some things that I've found that helped.
Exercise! it was the only thing that improved my health to the point where I could return to work. My rheumatologist told me to raise my heart rate to 115-120 (based on my age, height, weight etc) for 30 minutes per day, 5 days per week. That raises levels of endophines, your body's natural pain killers.
You might still have flare-ups, but they'll probably be caused by one of 3 things: stress, physical over-exertion, or weather (cold fronts). So try to find a low-stress job. You live in FL, so that minimizes the effects of cold fronts, and try not to over do it on days when you feel good. I know it is difficult, especially on days when you are in pain, but it is important to stay physically active. On my worst days, all the medicine in the world doesn't work until I start walking on a treadmill or around the block. It hurts bad when I first start, but within 15-20 mins I start feeling better.
Regarding a career: I work in IT (computers/networks) for State of Florida, Dept. of Education, Vocational Rehab. Please remember, when God closes a window he opens a door: I ended up with a job I LOVE, with understanding supportive people. Try looking for a career helping other people. Those career fields draw caring people. Your co-workers will be understanding.
For us, good health insurance, benefits, and work environment is important. If you can find some type of government job (city, state, county etc) you'll have good benefits, and depending upon the dept, work with understanding people. Also, sick and vact ion leave is important as well. You can manage your fibro, but you might have flare-ups and have to take off.
Post Edited (Isosceles) : 5/18/2009 8:23:08 AM (GMT-6)
Hi Kelly and Welcome-
I too had my life come to a screaching halt a year ago as the fibro hit like an atomic bomb. I have been a single parent and have raised a now 32 yr. old son and I have a 17 yr. old son at home. I was working fulltime for a very good company and had just qualified to buy a townhome. I have never owned a home and I am 52. It was heartbreaking! I had to leave my job due to the pain and fatigue and I thought my life was literally over.
This past year I have had to adapt to a new me and let the old me go. My life is not over, it has just begun a new and different phase and I can say I am happy. Yes, happy. Oh, believe me with fighting Soc. Sec. Disability, very little money and the list can go on and on, I have my days. But I do not have a terminal disease and I have many, many blessings in my life. I would not have met my family here if it was not for fibro and I have made some wonderful friends that you cannot put a price on.
It sounds like you have been determined in your life so far, and you will figure this out in time. With me it has taken a good Dr., my family and friends and my support group here to get me to the place I am at right now. I have had to put many things on hold until I find out if I will be getting Soc. Sec. Disability, but once that happens I can go on from there.
Nice to hear you have a supportive boyfriend too! Was nice to meet you!