What Steps do I take to find out if my problems are fibro

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Marciea
New Member


Date Joined May 2009
Total Posts : 5
   Posted 5/17/2009 9:30 PM (GMT -7)   
Here is the jist of my problems.
 
Starting about 9 years ago I began having extreme pain in my feet when being on them only 2 hours, more hours equals more pain.  Then came the hand pain, shoulder  and hip pain.  Within that time I was diagnosed with Hypothyroid.  Now I can add drepression, anxiety, and insomnia of which I take Cymbalta and Ambien from a counselor I just recently started seeing because the pain cause so much depression and anxiety. 
 
What am I suppose to do to get the proper medical care?  I tell my doc about my pain but he just blows it off.  He tried to claim the simvastin I take for cholesterol may be causing it and had me stop taking it for two weeks.  Nope.  pain sill there, no change, now what?  I told him my previous doc diagnosed me with RA and that I would like him to recheck my Rh factor but he just blew it off and said "I don't think that's it". 
 
Do my symptoms sound like Fibro?  If so, what sort of doc do I look for?  I really can;'t take this pain anymore.  I fight it but it tends to control my life in many ways.  Not to mention, the pain stops me from getting the exercise I need to lose weight because of the thyroid.  Its a vicious cycle and I can't take it.  Any suggestions or advice would be appreciated.

Post Edited (Marciea) : 5/17/2009 10:36:43 PM (GMT-6)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/18/2009 5:17 AM (GMT -7)   

Hi, Marciea, and welcome!  I'm so glad you found us and joined in.  Well, first of all, I'd get a new doctor.  You need a doctor that will help you...no matter what you have.  I use a board certified Internist for my doctor and many use a rheumatologist.  There is a post all about doctors that we did yesterday.  This might help you.

Check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia, including symptoms.  You can look that up and see if that fits you.  We don't have all of them but we sure do have a mixture of them.  If it seems to apply to you, print it out, mark all the symptoms you have and take it to the doctor.  There is also a link with good stretching exercises that really do help. 

If you have fibro, you need to keep moving.  If you sit or lay too much you will be stiff as a board.  Light exercises does help and it helps with the pain, too.  My choice of light exercise is walking.  I couldn't go far at first but now I walk my dog one mile each morning before I start my day.  I do feel better and it does help with losing weight.

I hope this helps a little.  Let us know what you do and if you do have fibromyalgia.  A good doctor will run you through a myriad of tests to rule out other illness before giving the fibro diagnosis.  (Check out the link on Fibro 101 called What Else Could It Be.)  Do let us know what you are doing.  We really do care about you. 

Meanwhile read back posts and ask questions and we will try to help as much as possible.  Hope to hear more from you soon.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/18/2009 6:27 AM (GMT -7)   
Hi Marciea and welcome. Sherrine has given you such great advice there is not much to add to that. My 32 yr old DIL was dxd with RA a few years ago but recently she found out she has fibro. My RA factor is high too but I don't have RA. My GP dxd me with fibro after much testing and a full blown flare so it doesn't matter what kind of doc you go to as long as they believe in fibro and know what to look for.
 
Before you make an app with a doc ask up front if they treat fibromyalgia. When I was looking for a new rheumy I asked to speak to the nurse and asked if Dr. Miller treated fibro and myofascia pain syndrome. The receptionist that makes app may not know these things.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/18/2009 7:04 AM (GMT -7)   
Many doctors conduct a brief interview before taking on new patients. I would consider myself as ├»nterviewing the doctor. List your problems and ask how he would help you deal with them. I have been to too many quacks who kept brushing off my symptoms as, hysterical, all in my head, imaginary, like I was making it up for attention. And so on. Now they all know I'm crazy, they just help when I say, yeah but, what would it hurt to treat this pain as though it were real. Exactly, humour me here doc, exactly what would be wrong with taking me at my word? Does Fibro exist/ Well, there's lot's of things we can't see or prove, but they are real. Like bacteria. I can't see it, but I know when it's there. If I stop paying attention to it, I get sick. So, many things are there, w/o being seen. Too many docs are brainwashed by the Pharmaceutical companies. Same old drug, brand new name, brand new packaging, brand new purpose. Neurontin at age 10 became Lyrica, now selling for 6 x's as much and now directed at Fibro, a new target. Neurontin was originally prescribed for BiPolar, Nerve Pain, MS. Didn't do much for many so it was a drug in search of a disease. Now it's targetting Fibro. so what to do. Cymbalta is Effexor. 6X's as much, very same drug. Brand new target, Fibro. I need a doc who can see beyond this hocus pocus, and listen when I describe what is hurting me.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 5/18/2009 5:11 PM (GMT -7)   
I went around with my family doctor for a year with no diagnosive and just wait you'll start feeling better. I saw an add in the paper about a pain management doctor. I got lucky the doctor is well informed on fibro...Try writing your symptoms down on paper and handing that paper to the doctor..it might help the doctor to see it in black and white.. I wish you the best..

Take care
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