Has any one ever seen an endocronologist for these symptoms?

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husker49
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/18/2009 11:44 AM (GMT -7)   
My wife has been diagnosed with fibromyalgia and asked for a referal to an endocronologist just for a second opinion and maybe get her hormones back to normal.  The doctor said she will not give a referal.  She has all the symptoms deppresion, weight gain, can't sleep, no energy.  Has anyone seen a endocronologist for these symptoms.  Please we are desperate for some help, She is devestaed over the energy loss and pain in her right arm.   

Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 5/18/2009 12:13 PM (GMT -7)   
Yes, I have. Your thyroid affects everything in your body. Usually they run blood test to see where the thyroid level is at. If it is in what they call normal ranges they won't refer you. But I just went thru this with my daughter and for a year I kept telling them it was her thyroid. Finally they sent me and scanned her thyroid. They saw it was all scared up which is Hashimoto thyroid, Hypothyroidism. And now she is on Synthroid. You have a right to see an endo person. You are in charge of your health care. Its hard when they won't listen, I have left many doctors appts in tears because they wouldn't listen to my gut instinct. Good luck.
Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/18/2009 12:18 PM (GMT -7)   
My Internist does those tests for me.  I just had bloodwork today to check my thyroid and other things.   
 
See if her doctor will check her vitamin D level.  Many with fibro are deficient in vitamin D and that can cause some pain and fatigue, too.  I live in Florida and I'm still deficient in D.  I'm presently taking 3,500 IU of D3 a day to try to get me in the normal range.
 
People with fibro can be deficient in malic acid and magnesium.  I take supplements for this, also.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There is a lot of good information in there about fibro so arm yourself with knowledge.  I hope some of this helps you.
 
Sherrine
 
 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


husker49
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/18/2009 1:49 PM (GMT -7)   
Well i am going to try to talk to the doctor one more time and see about a referal. There is not a endo that will see you without a referral. Talk about frustrating!!!!!!!!! History of Diabetes on both sides of the family and still cant get any type of referal.

You have both quoted scripture and that is a comfort being a christian. Thank you so much!!!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/18/2009 1:56 PM (GMT -7)   
I'm surprised that your wife can't be referred to an endocrinologist because of her diabetes.  Maybe try to see the endo that way!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/18/2009 2:06 PM (GMT -7)   
I also had/have Hashimoto's Thyroiditis. When my Tsh levels came in way high, unbelievably high according to my then GP, I was sent first for an ultrasound of the thyroid and it was a "lumpy, bumpy thyroid". My immune system had attacked it. I then had a referral to an endocrinologist who basically reiterated what G.P. had said. So, I was put on synthroid, have been on the initial dose for 23 years. I often wonder why no further investigation into how, why, all of that. Gee, if my body don't accept my thyroid, wonder what other parts of me doesn't it like. But nobody ever went there. I gotta see Dr. House for that I guess. Then the Fibro started. Totally blew thyroid problems off the wagon train. I sincerely believe there is a relationship. In my gut I feel like my immune system doesn't like various organs and the CNS. Therefore there is war being raged, continually, and pain and fatique result. As well as sleeplessness, hot flashes, cold chills, and muscle tearing that never heals completely. I am carrying wounds in my muscles, and when I move the wrong way, or √∂verdo it I pay the price in a series of "down days", "flares". As I age it is debilitating me. Many are tired of my turning down functions, visits and extracirricular activities of all sorts. I can only do the absolute minimum needed for survival, and that's it. I look 39 but feel 109. I am somewhere in the middle, closer to 39. I think with the fluctuating thyroid levels you are entitled to an ultrasound and a consult. See if you can find an internist who will plug in all the fading and failing hormones, not just the synthroid. Also, if I could get injections of Human Growth Hormone, in small quantities, I believe I would rally. I won't even go the stem cell debate route, but the practice of storing cord blood is an excellent idea, for future generations. There is a lot of research needed in these ares. Unfortunately, Fibro attacks 9 times as many women as men. Nothing personal, but all the researchers in this area tend to be males. Interestingly, my Aunt is married to a biomedical engineer, she has Fibro. He can't understand what Fibro is, or why it has taken his wife away, but he is a believer. Prior to her getting it, so close to home for him, not, but now he has no choice but to believe. he speaks of it very 'matter of fact", "gee, Shar thought it would help to start a walking program, so she did. It should have helped but it just made it worse"", puzzled. Our family is rift with auto-immune disorder, it's in the genes. Along with BiPolar illness, unfortunately. Sometimes it's hard to separate out what is which. It feels like an up and down disease, Fibro, good days followed by a series of really bad pain and irritability days. of course you will be irritated if you hurt all over like the flu for days on end. It kills your spirit. Perhaps your wife would like to join our forum, although we are thrilled to hear from you. The Fibro forum is the best! We have tears, laughter, joy, despair, and you're welcome to participate in all of it. You can crack up, or you can fall apart. We are gere for ya'll.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/18/2009 2:09 PM (GMT -7)   
P.S. We've cumulatively fired Thousands of doctors hereabouts. Read Fibro 101, at the top of the Forum. It's got some gems for dealing with docs, employers, families, and even you, loving DH.

husker49
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/19/2009 9:18 AM (GMT -7)   
Thank you for the information and invitation for my wife to join your blog, she will be on here from now on. I have been trying to find a solution to her illness, maybe a way to cope.



thank you so much LE

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/20/2009 8:23 AM (GMT -7)   
Well sir, you have certainly done your wife a hugh favor by finding us. We look forward with great anticipation to hearing from her.and This is the absolute best, most loving, helpful, and hilarious forum, I've ever participated in. It has saved me from despair so many, many times. Innumerable times. It is not so hard to keep on, keeping on when others are marching along beside you. Thank-you scool
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