Was rushed to the ER!!

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New Member

Date Joined May 2009
Total Posts : 4
   Posted 5/20/2009 8:18 PM (GMT -6)   
Hello all,  I wanted to know if anyone has ever had this problem with fibro.  Yesterday morning when I woke up i didnt feel well at all, in about a hour when i went to use the phone i noticed it was hurting to hold it up to my face. Then when i would rub my hand across my jaw line it was very painful with a burning sensation.  Then i began to notice that even my hair touching my neck or collar bones was setting me on fire. So i laid down thinking maybe it would go away, time i laid my head on the pillow the same feeling was in the back of my neck. Anyways, this burning sensation kept getting worse and started affecting every tendor point in my body. I couldnt even lay on my back from the pain. You know how it feels to get very badly sunburned and cant stand for your clothes to touch your body??   well thats what i was going through. It would hurt for my hair to even brush across my back. So i live across from my parents and I told my son to rush and get his grandparents, they came over and saw the shape i was in and rushed me to my dr's office. Well after waiting and waiting they didnt know what to do and told my parents to get me to the ER because i was screaming in pain by then. I was getting very nauseated and couldnt stand on my own because i was falling back about to pass out. So when i get to the ER my dr has already called and they take me on back.  As the dr in the ER talked to me he asked me what medications was i taking and i told him, he asked how long. When i got to the lyrica i said 1 week and he said that i was having a reaction to it. He said he has seen lyrica do some harmful stuff to people. I had been on a steroid pack for 1 week also and had just finished it the day before but he wasnt concerned with the steroids. He rushed and got some meds to revert the lyrica. He told me he use to treat fibro patients and he thinks that i have more going on than fibro, possibly luus.  My vision was blurry also and it has still not cleared up..Anyone else had this happen or think it could have not been the lyrica??  Im really concerned..and ohhh im soooo sore today!!

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Date Joined Apr 2008
Total Posts : 1522
   Posted 5/20/2009 10:21 PM (GMT -6)   
I have heard of others having this reaction to Lyrica. When Lyrica works, it's great, but when it doesn't, it can cause terrible side effects.

If you haven't been checked for lupus, you should be. Fibro is one of those things that you get diagnosed with after they've ruled out everything else. It is common to have fibro with other illnesses such as lupus, arthritis, Crohn's, etc.

I am sorry this happened to you. If it was the Lyrica, you should feel better soon.

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Date Joined Jan 2005
Total Posts : 9090
   Posted 5/20/2009 11:53 PM (GMT -6)   
I'm one who had a very bad reaction to Lyrica...not like yours but so sick and I literally could not hold my head up. Had to sit down and prop it up with pillows. I quit it immediately. I would guess once that is all our of your system you will revert back to whatever is 'normal' for you.

Please take good care of yourself and try to rest.
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   Posted 5/21/2009 6:52 AM (GMT -6)   
Lilly, I've never taken Lyrica but I have taken Prednisone steroid).  As a matter of fact, I was on one of those one week dosepacks and the day I took my last pill was the day my fibromyalgia started.  BUT I have had to take Prednisone since and never had that reaction.
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New Member

Date Joined May 2009
Total Posts : 4
   Posted 5/21/2009 7:07 AM (GMT -6)   
Thank you for your replys. idea   WOW already forgot what i was going to say or anything i just read. Hmmm.  How do I go about being tested for Lupus?  2 dr's have already mentioned to me they think i have it. So why havent they tested me??  Im feeling a little better just still very weak. But something odd is going on. When I get out in the sunlight my skin starts burning like i still have a bad sunburn. In the ER they gave me benadryl, phenigin and some pain shot that started with a D? sounded like a flower name or something. dindelin, dendelion??? i have no idea

getting by
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Date Joined Sep 2007
Total Posts : 40404
   Posted 5/21/2009 7:08 AM (GMT -6)   
Hi Lilly,

I am so sorry for the reaction that you had to lyrica. But I am glad to know that they figured it out. Are you feeling any better now? Let us know. We are all thinking of you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 5/21/2009 7:10 AM (GMT -6)   
Yuck! So sorry. This is one of those drugs that they mix up in a test tube and run a trial on healthy vs. unhealthy "normals", and if there is a 5% difference in the results for the ├╝nhealthy (target group), they say "yup; it works". Then they go looking for a disease to hang it on. How does it work, exactly, well nobody knows "how it works, it just works". I'd prefer to know exactly "how it works". I researched Gabapentin /Pentagabin. Sound familiar?Neurotin/Lyrica. Neurontin was a drug in search of a disease. After 10  years, it became subject to generics, so change a few syllables around and voila. Fibromyalgia, a catch basin for all that's undetected, well, hey there's a disease, nobody knows what that's all about either. Pardon my skepticism. Give me thirty year old meds only, please, doc.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 5/21/2009 8:40 AM (GMT -6)   
Hi Lilly, I don't believe I have welcomed you so welcome. That had to be a horrible experience!!! I have a really bad medphobia and never could bring myself to try lyrica. I flushed the whole bottle that was out dated not long ago. I'm like Tyno and prefer to stick with meds that have been out there for years.
My rheumy is sooo understanding about my medphobia and tells me to try just a little bit of a med at a time til I see how I'm going to react to it. So you might want to do that from now on when given a new med.
Lupus was one of the first things my doc tested me for. I didn't know that til I asked him if I had been tested for lupus and he told me I had been. So ask your doc about it.
luv and hugs
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Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 5/21/2009 9:02 AM (GMT -6)   

Hi Lily..Oh, that sounds like a horrible night and I'm so sorry.  My entire body 'burns' quite often.  I have nevr tried Lyrica.  As a matter of fact my Rheumy said he wouldn't want to prescribe it as the side effects can be worse than the fibro, and I am very medication sensitive.

When they tested  me for Lupus many years ago, they ran an ANA blood test.  I don't know if that is still what they do now.  You might ask all these doctors who keep thinking you might have this disesase if they have ever done an ANA on you then go from there.  My cousin has it and she takes steroids.  In my humble opinion if I read your post right, you were on steroids when this attack happened...so why the pain if they thought it was Lupus?

I'm on fire from head to toe today...I feel for you!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 5/21/2009 4:56 PM (GMT -6)   
Lyrica works on nerve pain. Neurontin is a similar drug that has not been approved for fibro. But it works on nerve pain, too. Logically, though I have no scientific facts to back this up, it seems that if it works on nerve pain, then that might be why some people experience the burning. It seems like it would be nerve related. I think this because nerve pain can feel like a burning sensation.

When I was tested for lupus, they checked the ana antibodies and the sedimentation rate - but I've heard there is a different and better test that can be done.
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