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patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/21/2009 8:53 PM (GMT -7)   
Hello all,

I've been recently diagnosed with fibromyalgia... actually I was diagnosed about a year ago. It took me about a year to get used to the idea. *sigh*

Fibromyalgia is the latest in a long list of ailments my stupid body has. The doctor I saw last year (when I briefly had insurance to pay for one) believes that I developed the fibro because of my car accident from two years ago - which fits because that's when my body stopped working quite right and started hurting more than usual.

Let's see... I also have a degenerative disc in my lower back since my early twenties.

I have arthritis in both my knees - since my early thirties. I also have arthritis in my hands - but that's a recent development.

I have tendinitis in my right wrist from the same car accident.

I suffer from migraines, since my teenage years.

I have asthma - since my late twenties.

I have acid reflux - fresh veggies are a no-no and my diet is quite restrictive to keep the heartburn at bay.

Oh, and I suffer from bipolar disorder - diagnosed at age nineteen.

My lovely body has decided to make life interesting by gifting me with all of this and then giving me a wonderful brain chemistry that makes it impossible for me to take pain medication. Opiates do not work on me at all, nor do muscle relaxers. NSAIDs cause me to walk around as though I *were* on drugs - I become disoriented and forgetful. Steroids are out because of the bipolar and the reflux.

So, I have a laundry list of nice pain-causing malfunctions, and cannot take anything for them... Luckily for me, most of the stuff that's wrong with me are one the lower end of the spectrum - however, taken together they add up to one big ball of pain. I have good days, and I have days where I wonder how I ever made it out of bed. A phenomenon I'm sure everyone here is familiar with.

Oh, I guess I should tell y'all something personal... ^_^ I'm 42, mother of four grown kids - three girls, one boy. They've all flown the nest (well, the youngest is still around here somewhere). I'm in college now, attempting to finish my BA in English. I move around a lot - I've lived in eight states in the last fifteen years, I've lost count of how many addresses I've had though.

There isn't much more to me right now. I lead both an exciting and mundane life. It all depends on the moment. At this moment, it's pretty mundane. Give me a while, it'll get exciting again. tongue

Sorry for the novel... I'm up past my bedtime an I tend to ramble when I'm tired.

Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/21/2009 9:52 PM (GMT -7)   
Welcome Patheral !!! You will get a lot of support from this wonderful forum. There are lots of great folks who genuinely care about one another. Glad to have you as part of our FaMily and hope you can post often!
(((hugs))) gentle ones, of course....
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/21/2009 11:08 PM (GMT -7)   
Hi Patheral and welcome!

Wow, you do have quite a laundry list of ailments but it's pretty common for fibro folks to have several things going on along with the fibro and often they are related to the immune system. I'm sorry you are unable to take medications. Sure lets out a lot of treatment options. Sounds like you are OK with your doc. Many folks don't have a good doc who is willing to try and treat fibro and some get a doc who is still in the dark ages of thinking fibro is "just in your head"...<sigh>

Anyway, I see you've joined our Koffee Klatch. We are a mighty silly group some days but it's great therapy for what ales us.

Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/22/2009 8:16 AM (GMT -7)   
Well, I only saw the one rheumatologist the one time, and he's the one who diagnosed me with fibro. I went to see him after the doctor in the student health center ruled out RA and some other stuff.

I don't have a doctor right now because I now longer have insurance... boo! *sigh* Story of my life.
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 5/22/2009 9:10 AM (GMT -7)   
Hi, Patheral, and welcome!  I'm so glad you found us and joined in!  It's really bad to have all that pain and can't take medication to help.  But, have you tried malic acid/magnesium supplements?  Many with fibro are deficient in these nutrients and that can cause some pain.  The supplements don't work for everyone but they have helped quite a few...including me.
 
Also, many with fibro are deficient in vitamin D.  I live in Florida and never thought I'd be deficient, but I am.  My doctor checked my blood and I'm presently on 3,500 IU of D3 a day to try to get up in the normal ranges.  Vitamin D deficiency can cause pain and fatigue, too.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibromyalgia...including a link all about malic acid/magnesium supplements and how they work in the body.   If you talk to a doctor, you could ask about this.  My doctor told me I would be wasting my money but they wouldn't hurt me.  I tried them, they worked, and he was wrong.  (I still love him, though.)
 
Moist heat feels great for fibro.  Many use a Bed Buddy that can be purchased at Walgreen's and other places or you can make your own.  Take a tube sock, fill if 2/3's full of raw long grained rice, and tie a knot at the end.  Pop it in the microwave and it will give off moist heat due to the moisture in the rice.
 
Meanwhile, read back post and ask questions. We are here to help you.  I'm glad you are here and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/22/2009 2:07 PM (GMT -7)   
Hi Sherrie,

Thanks for the tips. I like to use moist heat, and wish I could afford a nice massage chair... ahhhhh! I like to sneak into Brookstone whenever I'm near a mall (the nearest mall is three hours away, so it's not often.

I did read the fibro 101 thread before I signed up... there is a lot of good advice there. :) I tried malic acid/magnesium a while back for about two months with little results, but I appreciate the tip.

As for vitamin D, I haven't checked that - but I'll see if I can get an appointment with a doctor at the clinic and see if they checked for it the last time they ran all of those blood tests. Since I don't have insurance, I have to pay for every blood test myself.

I try to walk in the sun as much as possible, but I have rosecea so the sun is not my friend - it affects my eyes so it's difficult to put sunscreen there ^_^ though sunglasses help a bit. Oh, I forgot to mention the rosecea didn't I? Sigh, I don't always remember everything until it comes up in conversation... I'm hoping that I get enough vitamin D that way - and through the milk I drink.

Oh yeah, I forgot to mention my high cholesterol - somewhere around 265 - it's been there since I was about 16. I eat between 1600 and 2000 calories a day so it's not diet (I kept a food diary for about a year). The doctor wanted to put me on cholesterol medication but the she said the side effects would probably be joint pain... blah. Because I need more pain. rolleyes

Okay, I'm rambling again. Since I'm between classes right now, I have a lot of time on my hands. Thanks for listening.
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/22/2009 11:09 PM (GMT -7)   
To both Patheral and Sherrine, especially -- Patheral, it might be worth the cost to have your Vitamin D checked .... Thanks to Sherrine I just had mine done at a recent checkup--fortunately my doctor is willing to listen to my concerns and was glad to add this to my bloodwork, even though, unknown to me I wound up giving four tubes of blood -- and I have really bad veins due to twenty-something surgeries over the years! Anyway, I digress -- foggy night -- Everything came out okay *except my Vitamin D* which was extremely low. Bless you, Sherrine, for continuing to mention this to newbies....I would have probably not remembered to ask about this had it not been for you!
Many (((hugs))) to both of you and all other readers as well -- luv ya...
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/23/2009 10:42 AM (GMT -7)   
Hi Patheral and welcome to the family. Sounds like you got a lemon of a body too. Too bad there isn't a lemon law that covers bodies. smilewinkgrin
 
Yes, thanks to Sherrine's constant nagging a lot of us had our vit D checked and found it was low, mine included. It's not the amount of vit D we get it's that we don't absorb it and your body doesn't absorb calcium without D, which explains why some of us have osteoporosis.
 
I have osteoarthritis in my hands too and it can be worse than the fibro pain or the two together makes it worse. I use lidoderm patches on my hands when I'm cleaning or using my hands a lot. Like you there are many meds I can't take. You need a rx for the patches and they numb an area close to the surface like your hands or ribs enough to tolerate more. You can only use so many at a time, for me that is one so I cut them in two for my hands, and it's 12 hrs on and 12 hrs off.
 
Read, ask questions and even vent when you need to and we will be here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 5/23/2009 5:19 PM (GMT -7)   
patheral,

Welcome to the family! I already like you cause you are a fellow rambler. BTW-you tend to ramble when you are tired? I ramble when I'm wide awake, tired-basically your 24/7 rambler. LOL-I think I'm proving my rambling talents right now! wink Anyway, you can always find lots of good info here. But, for me, it isn't just the info. It's the friendships I make along the way. I'm sure that you'll find your fair share of cyber buddies right here! LOL-hey, if you want, I can be your first-uh, first buddy, that is. smilewinkgrin

Take care and again, welcome to the family. We are here if you need us! yeah

Fibro, Anxiety, Chronic Pain

Lyrica 100mg BID, Klonopin 1mg BID, Zoloft 100mg BID, Methadone 75mg (methadone maintenance-NOT for pain), Ibuprofen 800mg QID prn, Prilosec OTC


I'll take the Chivas instead-Kelly Clarkson


patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/24/2009 11:25 AM (GMT -7)   
Thanks for the welcome(s) everyone! I appreciate the warm thoughts and everything. Marlee, I'll look into the lidoderm patches - can a gp prescribe them? Kelly71, I do tend to ramble even when I'm not tired as well, but moreso when I'm tired... Right now, I'm exhausted because I overextended myself yesterday so I have to stop every other word and wonder what it was I was trying to say...

I really hate that. :-/

Anyway, thanks for the welcomes. I'll be back when I can think.
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe

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