New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

imbaffld
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/24/2009 8:33 AM (GMT -7)   
Hello to All,
I am a new member, diagnosed with FM many years ago.  At this point in my life one of my biggest
battles seems to be fatigue.  I don't seem to have any fight left and yes I am suffering
from depression.  I have recently had Left hip replacement.  I also have osteoarthritis, plantar
fasciitis etc.  I am really limited as far as what I can do.  I could use some ideas about
dealing with the fatigue.  I am only 57 and didn't picture "my golden years" as being so
miserable.  I know that feeling sorry for myself does not help but again I am really tired
of all this.  Any suggestions would be greatly appreciated, Thks.
 
FM, osteoarthris, IBS, plantar fasciitis

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/24/2009 8:47 AM (GMT -7)   

Hi, imbaffld, and welcome!  I'm glad that you found us and joined in.  I had plantar faciitis really bad and could barely stand to put my feet on the ground.  It felt like someone was driving a stake through my heels.  I heard about Birkenstock shoes, tried them, and that took care of the plantar faciitis.  It took a few months but the shoes stretch that tendon and the pain eventually went away.  I advised a friend of mine to try them because she had the same problem and they worked for her too.  It sure beat having cortisone shots in the heels...that doesn't work half the time! 

But, I did want to say that when I first started wearing them, I hated them.  They made me carry myself correctly so my knees and back hurt.  But I started wearing them only a few hours a day at first and by the end of one month I was used to wearing them.  I can walk through airports now with these shoes and they are very comfortable for me.

For pain and fatigue, you might want to try malic acid/magnesium supplements.  They don't help everyone but they have helped quite a few, including me.  Many with fibro are deficient in these nutrients.

Many with fibro seem to be deficient in vitamin D, also.  That deficiency can cause pain and fatigue, too.  I'm presently taking 3,500 IU of D3 a day to get me in the normal range.  You might want to ask your doctor about these things.

Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to information about fibromyalgia, including a link all about malic acid/magnesium supplements and how they work in the body.

Meanwhile, read back posts and ask questions.  We are here to help you.  I'm glad you are here and I hope to hear more from you soon.

Sherrine



Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/24/2009 12:52 PM (GMT -7)   
Dear Imbaffld: I am 53, so close. I too get really frustrated with not being able to do much. I have to make myself lie down every 2 hours or so, regardless of what I'm doing. It has just become necessary. Then after twennty or thirty minutes I'm up for another two hours. How can one enjoy life if they have to be tied to a bed, a lot? Well, it's real challenging. get as much 'productive things you can do in bed. I can do a lot from my computer, now if only I had the magic card that would allow me to go woreless. I just have to keep it, impending fatique, in mind, whatever I plan. Another adjustment needed. If you're depressed, get help. I lived in that darkness for a couple of years, no percentage in being a martyr.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/24/2009 8:37 PM (GMT -7)   
Imbaffld,

I'm 42, and know exactly how you feel. My baseline is "tired" but many days, I'm "exhausted." It does't matter what time I go to bed, or how many hours I "sleep" I'm always tired. I wake up tired. I can't give you any advice for the plantar faciitis because I don't really have that, but I just wanted you to know that you're not alone in the fatigue department.

It does help to get into a regular sleep routine - find your sleep cycle and stick to it. Go to bed at the same time, and wake up at the same time, every day no matter what day it is. Whenever I can get into a regular sleep cycle and stick with it for more than two months, it helps both my moods and my energy... It's not easy, but it's worth it. I'm not saying you won't be tired, but you may be able to handle it better. It helped me.

Sherrine said...
I had plantar faciitis really bad and could barely stand to put my feet on the ground. It felt like someone was driving a stake through my heels. I heard about Birkenstock shoes, tried them, and that took care of the plantar faciitis. It took a few months but the shoes stretch that tendon and the pain eventually went away. I advised a friend of mine to try them because she had the same problem and they worked for her too. It sure beat having cortisone shots in the heels...that doesn't work half the time!


I would love to try some Birkenstock shoes, as I've seen y'all recommending them all over this forum, but I checked out the prices and they are *expensive*!!! :o I'm a poor, starving student who's barely getting by and can't afford to drop more than $20 on a pair of shoes... I can't even *think* about plunking down $125! shocked

So, is there anywhere else to buy these bad boys without paying such high prices for them? Or, are there cheaper alternatives?
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/25/2009 2:54 AM (GMT -7)   
Dear Pateral; One thing I do is change my shoes, at least once a day. I have Earth Shoes, slight wedge, and also earth shoes, slight wedge, sandles. I saw a TV program recommending a clog type shoe, doc said first thing in  AM slip into a clog. Somehow doing this right off sets you up for the day. Try appealing to Birkenstock company. Plead you case. Fibro is getting popular, as a DX. Tell them you'll recomment them to all your Fibro Friends. Pretty good endorsement, I'd say. Who knows, the Birkenstock angel might be working that day. Otherwise, get them elevated whenever you can.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 5/25/2009 9:20 AM (GMT -7)   
I order mine directly from Germany.  It takes anywhere from 2 - 6 weeks to get them.....usually 3 is the average.  There is no shipping and handling, either.  Here is the site I use. 
 
 
I would suggest you go to a large department store that carries these.  We have a store around here called Happy Feet.  They carry them too.  Try them on so you know the size.  I wear a size 7 shoe but the size in Birkenstocks is 37! 
 
My first pair of Birks was in 1994 and they cost $96 then...the Arizona style.  (I find them the most comfortable.)  Then, in 2003 I traveled to Germany and they had Birkenstock stores and the shoes were $33!  So, I bought two pair and then came home to find a site that I could get them and not have to pay the shipping.  I didn't check but the last time I bought Arizona's in nubuk leather, they cost me $44.  The price has gone up because the value of the American dollar has gone down.   This site is very good and I've never had a problem with them.
 
Be sure to read everything on the site.  It explains the construction, the various materials, etc.  The suede is the softest but it gets dirty quickly.  The leather is too stiff for me.  I use the Nubuk leather.  It's softer than regular leather and you can wash it with soap and water...great for the white sandals.
 
Hope this helps.
 
Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


aux433
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 5/25/2009 1:27 PM (GMT -7)   

Hi Imbaffld,

Like many fibromites fatigue and pain are my main problems.

After reading an article on DRibose and its affect on fatigue, I ordered orange flavored chewable tablets.  After 2-3 days, I noticed an improvement in my fatigue. My energy level is not great, but it is better. I chew 3 1500 mg tablets per day. If necessary I take it twice a day. This is not a cure, if I miss a dose I know it.

After reading the article on this site about Malic Acid, I ordered 600mg capsules of Malic Acid and magnesium. I take 4 capsules per day. It helps the pain. It is not a pain pill and it is not a cure. But it does help me. Like DRibose, if I quit taking it, I'm miserable in a day or two.

I also take additional Vitamin D.

Hope this is helpful Imbaffld. We're here for you.


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 5/26/2009 12:09 AM (GMT -7)   
Siince I joined this site a couple months ago I started taking malic acid, and also pre-natal vitamins and vitamin D. I notice that the edge is definitely off the "top" of my pain, and I feel a little more consistent fatigue-wise, throughout the day.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/26/2009 6:51 AM (GMT -7)   
Hi Imbaffld and welcome. I will be 59 way too soon and the fatigue is sooooo frustrating to me. I have so many things I want to do and need to do if I only had the energy to do them. I had my vit D checked and it was pretty low so a couple weeks after being on D I did start to feel a lot more motivated (it helps with depression too) and a little more energy. I haven't taken it now for about 4 days cause of gastritis but I am going to try taking it today. It is the only thing that has given me more energy for years now and I'm sure it is far from being anywhere near normal yet. If I can't take it by mouth I will get shots cause I have to have it cause I have seen the difference it makes. Even with the D it is going to take awhile to build up more energy which I have been doing, I was pretty sedate for a long time. So please get the D checked. Many with fibro have low B12 too but mine was okay.
 
I also have a 9 mo old and a 10 wk old puppy that makes me get up and move whether I want to or not and I think that alone has built up a little more energy cause they have to go for walks and go out to play.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 3:26 PM (GMT -7)
There are a total of 2,731,791 posts in 300,964 threads.
View Active Threads


Who's Online
This forum has 151130 registered members. Please welcome our newest member, Inhisname.
323 Guest(s), 14 Registered Member(s) are currently online.  Details
cupcakespinkgal, Alcie, Purple Tulip, 81GyGuy, Skyy, getting by, exqualls, poohcheez, JayBee1, Worksop, Steve n Dallas, gilly2, Lisa-Dionne, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer