This is as bad as it gets... right?

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patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/29/2009 10:23 AM (GMT -7)   
So, I've had fibro for about three years now - They think my car accident in April 2006 is what triggered it. But I was diagnosed last year (April 2008). Before that, I figured my arthritis was getting worse, or I'd developed RA or even Lupus (the symptoms fit).

My fibro seems to attack my joints - bilaterally - as well as my muscles. I've always had the drained feeling for as long as I can remember I've answered, "tired" to "how are you?" It's just gotten exponentially worse these last three years.

I, of course, have my good days, and my bad days. But the worse of my bad days from the past three years - that's as bad as it gets, right? Fibromyalgia isn't degenerative from what I understand. So unless I develop something else (no thank you, please)... I shouldn't get any worse.

Right? Because if the worst of my bad days is as bad as it gets, I think I can bear this... but if it gets worse, well, I dunno how much longer I can keep on keeping on with a smile on my face.
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/29/2009 1:46 PM (GMT -7)   
The past two years has been the worse for me. After I got my vit D checked and got on supplements I noticed more motivation and a little more energy which means more excersise and less pain, I still have days when the weather is changing that are bad. The arthritis in my hands are the worse problem. So I like to think the worse is over and the higher I get the D the better I will feel.
 
One thing I have learned is to take one day at a time cause we don't know how it will be the next day.
 
Get your D checked if you haven't already.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 5/29/2009 1:55 PM (GMT -7)   
Hi there! You ask some good questions. I believe that FM is progressive, even if indirectly; I have seen serious changes in my physical and cognitive functioning that began a while prior to being Dx in early 2003. I do agree with you that combatting individual challenges [in other words beating them into submission!] is a good strategy, and then living life one day at a time, using every resource you have. I am glad you are able to deal with this with a smile, thats a great way to cope with life in general; but with FM, it makes a big difference. I have made lots of changes to my diet and such that seem to be helping, such as adding vitamin d, and omega 3s, things like this. Keep on keeping on with that smile and remember, we are all in this together!
PEACE!
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien 
OTC meds [PRN]- Benadryl, Claritin, Melatonin, Valerian, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 5/30/2009 3:45 AM (GMT -7)   
I also feel that my FM is somewhat progressive, however I am still "newly" Dx (2007). I am still hoping that once I find the right combination of energy in & energy out (in all it's forms!) that things will stabilize for me...but that is easier said than done. As we all know, just because I did x-y-z yesterday doesnt mean my body is up to it today or even 3 days from now...making this very hard to manage.
Maybe FM should be thought of more as a dance than a linear line? One step forward, a few back, one step forward....cha cha cha! lol
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 5/30/2009 6:14 AM (GMT -7)   
Hmm..I have definitely noticed an increase in my symptoms over the years. I don't know if this means that fibro is progressive, or if it just feels like it is. Sometimes I think that it's not so much that things have actually gotten worse, it's just that I've gotten more worn down from the chronic nature of it and so it seems like it's worse.
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/30/2009 2:14 PM (GMT -7)   
When y'all say "progressive" do you mean that you see an improvement, or that the fibromyalgia is getting worse?

I myself, have been at a pretty even keel these past three years. It depends, of course, on my stress levels an my other ailments, but for the most part I don't see myself getting worse as the years move on.

Of course, the arthritis seems to be spreading... *sigh*
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/30/2009 5:04 PM (GMT -7)   
Dear Patheral; My situation mimics yours closely. I was diagnosed with Fibro around 1994, thereabouts. I was raising two teenage boys singlehandedly, while working 2 or 2.5 jobs, taking any overtime I could get, including working 16 hour shifts, if needed. I relied on Amyltriptilene, 75 mgs. at around 8 Pm and was asleep by 10PM, up 5AM. Then things started to go downhill, as my son was beaten at school by bullies, the system would not help me, I had to place him in private school at great financial cost. Bills piled up, and Just as I was beginning to see financial recovery, I was hit, by a truck, while crossing in a crosswalk. Neck and back and ankle injuries, persist till this day. I never really was able to get back to work after that. Wouldn't even drive downtown, after that.  So, here I sit, on very low Social Assistance, hoping to get CPP Disability. (Like SS, in US.) I am beginning to wonder what next. I feel like I should check into an institution, I am weak, always tired, frustrated cause I can't even get the little things done, and today, I had two serious accidents. I slipped in the Bath and nearly struck my head on Toilet as I came crashing through the shower curtain, landing awkwardly sideways on BR floor, it took forever to get up. I have been waking up in tremendous pain this past four or so days, so much so, I have to take antihistamines, pain meds, and all regular meds and stay in bed untill they kick in. They are not really controlling the pain. Frustrating. The meds are not strong enough for this phase I'm in, might as well be popping M&M's. Also, just now, while logging on, I knocked a lamp over and as I grabbed for it, I got a serious burn on my hand. Yesterday, my little dog almost wrenched my left arm out of it's socket by twisting around and bolting after a stray cat.  Three weeks back, I was in emergency for chest pain, and was given a med that almost killed me. They wouldn't tell me what it was, said it was "muscle relaxer, no, it was an amphetamine, and w my hypertension, I had a bad reaction. I am trying really hard, to get extra money to survive on by selling my belongings, but nobody wants to pay anything for them, and as I'm selling from need, it hurts to part with stuff I love, just to buy groceries, medicine, car insurance. My youngest son, cleaned out my savings, and I don't think he realises what I've given up to help him launch his career. I was more productive, more efficient, more able to cope at age 4, than I am now. Then, to answer your question, is Fibro progressive?, I don't think it is, but accidents and aging make it seem progressive. If I had hit my head, I would still be lying in the BR, nobody would find me until my son comes back from his week away. He sees me as dependent, and needs to get away from me, for a youth break, but I don't know. I haven't heard from or seen any friends or family in eons, it's like they think it's contagious, or I'm just boring, which I am. I agree, If things continue this way, I'm going to check into a hospital, or a nursing home.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 5/30/2009 5:28 PM (GMT -7)   
Hi again! Let me tell you what "progressive" means to me- health challenges worsen, for example my joint issues. Some docs define "progressive" as an illness that will worsen; many people believe FM to be non-progressive. in my opinion, after years of suffering and researching and searching for compassionate docs, FM is not understood [or if it is, the real underlying causes and effects of FM are kept secret from us, for many reasons- no conspiracy theorist here]. It is not understood enough to find a real treatment. Maybe once it becomes the "hollywood darling" of horrible health syndromes, tangible and concrete help can be found. OK enough babble- my health conditions worsen; with treatment the conditions can stablize but never disappear. Without treatment, I slide downhill FAST. Together, conditions untreated meld together and create larger, more dangerous issues. SO- I would say that to define FM as a non-progressive health condition because it does not "worsen" is irresponsible to the extreme. Something detremental that responds to treatment, but does NOT go away for a person's lifetime, and does fluxuate from bad to worse -regularly- but never "cures" is progressive. Thanks for letting me wrap my head around this once and for all.


"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien 
OTC meds [PRN]- Benadryl, Claritin, Melatonin, Valerian, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 

Post Edited (Sera Smiles) : 5/30/2009 6:32:53 PM (GMT-6)


Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 5/30/2009 5:56 PM (GMT -7)   
Pat what part of your body was injured in the car accident?

patheral
Regular Member


Date Joined May 2009
Total Posts : 67
   Posted 5/30/2009 8:17 PM (GMT -7)   
Stari said...
Pat what part of your body was injured in the car accident?

Please, call me path, Pat is my brother's name. :-) (I hope you mean me...)

I was broadsided by a minivan while trying to turn left. Totaled the car. It wretched my back and smashed my right knee against the column, and the discharge of the airbag tore the tendon in my right wrist. That's *all* I thought was wrong with me... Until I couldn't think straight and all of my joints started hurting (not at the same time... it was like - my wrists would hurt, then my knees, then my ankles, then my elbows - you get the picture), and my fatigue worsened, etc...

I was fired from my job as an admin assistant because I just kept making stupid mistakes. I tried applying for disability but they said I could work as a cashier, so I tried that - I lasted about four months. I tried working as a substitute teacher, and that worked well enough since I could take days off when I just couldn't drag myself out of bed... I might still be doing that if not for the psycho ex... Now I'm a student, and I'm barely holding my own in that.

Oops, that's more than you asked... I do ramble the later it gets.
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/31/2009 4:15 AM (GMT -7)   
There is a website mentioned in an earlier post, WebMD, the exact study mentioned describes, if you read the whole article and related articles, a difference in the pain receptors of Fibromites.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

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