I am new to this forum, but not to healingwell. A few years back, when my colitis became severe and out of control I reached out to the UC forum and they helped me greatly. I tried Remicade and it seemed to help my flare and help heal my bowels. I slowly recovered some, but the depression and fatigue slowly crept up on me. I have always had some joint pain, but I thought it was the colitis and would take vicodin. I started some Masters courses about 8 months ago and was doing ok, but slowly strange symptoms started appearing. By the next quarter I went down to half time and was barely functioning. My son would wake me up (he is 3) and I could barely move or get out of bed, and would get angry with him because the fatigue was becoming disabling. I became worse rapidly and went to a psychiatrist (my therapist recommended I get on some sort of mood stabilizer) . I was forgetting everything and feeling so out of it and strange, I thought I had ADD bc of concentration issues. Started on Adderall and cymbalta. They seemed to help, but the adderall wearing off was terrible because I would just feel more tired later. Around this same time, I started having more and more rashes all over my face and upper body. I had been to a dermatologist about them in the last 6 months, where I was getting them about once a month. Then in the last few weeks, they were getting so severe and almost every day. The fatigue kept getting worse, and my GI sent me to a rheumatologist who diagnosed me with fibro and analyking s. sp? Had never heard of the second, and the first didn't surprise me, but I am overwhelmed..beyond belief.
I got off remicade because in the middle of all this madness, we had thought I might have drug induced lupus, so I got off the remicade. I don't have that but GI and other doc (and me) decided to get off to be on safe side.
I am scared and confused. My last colitis flare, after my sons birth landed me in the hospital, helpless. Took me almost 2 years to begin recovering. I don't know what to do about that, and now I have this new stuff...I have new meds, tramadol, lyrica, and tons of supplements..fish oil, probiotics, B complex plus C, ...cant remember what else off the top of my head. Oh, cymbalta and adderall...The tramadol is ...strange so far. I cant really tell if it is working. The cymbalta makes me tired, which I was counteracting with the adderall, but the rheumie said thats basically a no no...This rheum doc was great but really freaked me out, without meaning to. Maybe I needed to be...but basically said if I don't significantly change my lifestyle, and basically learn to relax...I am going to continue to go downhill fast.
Any suggestions on the med situation?
Thank you in advance
-overwhelmed in NJ
-oh and my "signature" needs to be updated----but too tired now
25 yrs, new mom to 16 mos baby boy
off the pred
welbutrin and weekly therapy:)
UC since 99