Curious about FM "beginnings"

What was the catalyst for your FM diagnosis?
5
Car [or other] Accident - 35.7%
2
Major Surgery - 14.3%
2
Traumatic Event - 14.3%
1
Serious Illness - 7.1%
1
Major Life Change - 7.1%
3
Other [or none of the above] - 21.4%

 
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Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 5/30/2009 6:14 PM (GMT -7)   
Hey everyone, happy weekend and I hope everyone is pain free. We are having fabulous weather here in the twin cities-I've taken my own advice and doing some work on the deck watching the day turn into night.
 
My poll is about what "incident" either marked the catalyst of your FM diagnosis, or was the defining 'aha' moment for a medical professional who was responding to your request for help. Thanks for your responses and I welcome any other information you would like to share. I am interested in hearing from anyone- and if your diagnosis was a result from a combination of things, I'd like to hear that, too.
 
In addition, I would love to hear from you if you have been sucessfully dealing with FM over a long period of time, and are all of a sudden experiencing new or renewed pain and other issues, and are trying to find a new course. I have read about forum members who feel that out of the blue their symptoms hit full blast and are uncertain of why.
 
Thank you for your responses!
 
Peace!

 


"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien 
OTC meds [PRN]- Benadryl, Claritin, Melatonin, Valerian, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 

Post Edited (Sera Smiles) : 5/30/2009 8:42:02 PM (GMT-6)


Sharyn56
New Member


Date Joined Jul 2007
Total Posts : 7
   Posted 5/30/2009 8:03 PM (GMT -7)   
Hi. I am new to the fibro forum. I have lyme disease related fibro.I was dx'ed with lyme in 1990. i devoled fibro in 1998 and haven't had a painfree day since! At first I thought I was dying. I couldn't believe one person could have so many crazy symptoms.I haven't had the energy to write here,but I was just given a rx for concerta amd I actually have a little energy. Hopefully,I will beable to keep up with this.

Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 5/30/2009 8:38 PM (GMT -7)   
Hey, Sharyn! I am so happy you are here, welcome to this most awesome forum! [sorry I was watching Bill and Ted earlier] but its true, it is a great informational forum and a place to find real friends who care. Hope to see you here often; never hesitate to reach out and ask questions. We're all in this together.

PS: I would love to hear more about concerta and what it does for you.
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien 
OTC meds [PRN]- Benadryl, Claritin, Melatonin, Valerian, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/30/2009 10:11 PM (GMT -7)   
tongue Hi Sera Smiles! Think my FMS was really brought on by combination of things, but all wound up making for major life change. Moved from Missouri to New Mexico to teach on the Navajo Reservation. My house in Missouri didn't sell as was expected -- contract fell through and so did couple that followed. Couldn't afford to rent in NMex and make payments in Mo, so had to return to Mo at mid-year. (Drove home in awful ice storm of winter 1991 -- nearly got killed, etc., etc. -- was mess by the time we got back three and a half days later......) Could only get part-time teaching that time of year so got trained as cashier in grocery store. Standing on feet for so many hours at a time started really hurting me. Bottom line: couldn't get fulltime work in either and wound up losing house anyway with two barely teenage girls still at home. Dad was still alive at that time and begged me to come "home" to Ok -- I did, Aug1992, but not happy about it since we had to live with him for several weeks till we got own place. Felt like I was imposing, although he never saw it that way. (However!!! We rented a house across the street from him!!! We had just over five most fantastic years with him before he passed away in his sleep Christmas of 1997 -- I found him and I totally lost it for a while as I absolutely adored that sweet, decent human being.) I think the frosting on the fibro came about a year after we moved to Ok. Teaching in a small town is hard to get, and part-time again was all that was available. I couldn't pay bills and buy food for my girls on what I was making, so I started doing yardwork, mowing lawns and weedeating and flower beds, all of it which is very lucrative here -- but -- I was already 50 years old and just starting hard, heavy work like that. Anyway, my health just went kaput totally within a few months. I was referred to a rheumy for Dx, got on SSI, tada, tada, tada......
rolleyesSorry got to rambling -- got engrossed in memories and fog! tongue Think stress and physical changes and Dad's death and all that contributed to fibro. mad Anyway, thanks for question -- good to let it out, I guess.
(((hugs))) luv ya Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 5/30/2009 11:51 PM (GMT -7)   
Hi Sera Smiles, I am not new to this forum - I was in the crohns area, but I was just dx's w/ Fibro AND found out that biposies show I DONT have Crohns, so I switched to here! :) anyways, Sera, all I know was after a car accident I was in last summer, everything changed, everything went downhill for me. I've had UC in 2000, Chronic pain, anxiety, then the J-pouch surgeries (completely removed my colon). But this past summer, I was hit by a car on my front left, airbags blew open..thought I was gona die..you know, the whole shabang; then I had a flare-up of my puchitis/UC , was hospitalized, and ever since that hospitalazation..I dono what to say..I was just..different. Thats when the pain started. I kept blaming it on Steroids I was put on..which part of it (if not all) was from it. But long after I stopped them, well, I'm still here in extreme amounts of pain. I mean, what can you make of THAT?!?!
But I mean, I have an auto-immune dissorder that I guess, just flares up at times and when it does - out comes a new dissorder! FUN! I'm still working on understanding that so if anybody has anything to say about THAT, please help!
Dx]

<B>Currently battleing: Auto-immune disorders: Colitis/IBD -Pouchitis; Extraintestinal Polyarthritis; Fibromyalgia; anxiety disorder; mild asthma (chronic bronch); Sinusitis & Allergic Rhinitis; & Chronic pain




<FONT color=blue>Neurontin 300mg 3x daily for Fibromyalgia;
Metronidazole 250mg 3x daily for Pouchitis;
Cymbalta 60mg;
Klonapin(as needed throughout the day),
Famotadine 40mg;
QVAR 2 puffs 2x daily for astma

MS Contin 40mg 2x daily
Oxycodone 10mg 2 every 3 hours as needed for breakthrough pain

<FONT color=orange>Jessi


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/31/2009 4:55 AM (GMT -7)   
My storey may be getting old, but since you asked, any opportunity to "Blather on", works for me  smilewinkgrin . I was separated from my children's father in 1990. He went out New Years Eve., with friends, including a girl friend from his elementary school years and didn't return for several days. I couldn't take anymore, he wasn't bringing home his paycheck (said; "company couldn't afford to make payroll," 3 consecutive weeks. I was the major breadwinner, so I just left his bags by the front door, when he finally showed up. I was very angry. Then no child support, putting tremendous pressure on me, as I had to find a job that would allow me to schedule myself around children's daycare, doctor's appts., school meetings, etc., etc., Then my family thought I was driinking a little too much so they absconded with my children, called in two reports to Family services, and forced me into Rehab. No prob. Rehab was a vacation, compared to my life, but it hurt me tremendously, as I worked for Family services, it hit me where we eat. Then an ongoing custody battle, the man didn't want custody, his mother took care of the children on his ëvery second weekend, he just didn't want to part with his money. This battle ended up costing me 25,000, and still no conclusion. He wouldn't file his income statement, and I couldn't get him served, he kept moving, basically from one woman's house to another's. This went on over 10 years, I was angry all the time. Very angry, frustrated, couldn't deal with all the anger, it ate me up inside. Then my youngest was severely beaten on the rocks behind the school (elementary), by three bigger boys. I hired a lawyer, paid $200, only to be told, "nothing you can do, they're under age 12". I felt ripped off b/c I'd given her the details over the phone, she could have said so then, instead she collected $200, I didn't have. Credit card time. Then after contemplating the issue, I decided, OK, let him take the kids for a year, trial. It was a disaster, they were left to sleep in his girlfriends basement, were subjected to his and GF's drunken brawls, and he would never follow up with the school, so I had to. Then a special project, my youngest and I had worked on together, all one weekend, that he was really proud of, got smashed by one of GF's kids.  My son was all out heartbroken. Then he wouldn't get up to go to school, his father believes in corporal punishment. That was the final straw. Then older brother was dx'd ADHD, younger ADD, but younger wasn't ADD at all, he was learning disabled. Then he was held hostage by older boys that hung out around the school. His Far West jacket disappeared. His special sneakers disappeared. Always, I gave him lunch money, always he walked a mile home and back, for lunch. Often, he would refuse after lunch, to go to school. "They told me if I didn't have $10.00 after lunch, they'd beat me , again. I went to the school. Nice bunch, totally useless. So, into private school he goes. I cannot afford it, but i had to come up with the money, threw us into poverty. Lots of Kraft Dinner. Then bill collectors started calling, even threatened my eldest son, 13, on the telephone. I got a cell phone. Bank started calling me at work. It just kept on and on. Finally, in 1994, my doc called, äre you standing up?"Yes. Ï don't know how you are doing that. Anemia, serious, 6 instead of 13, TSH over 25,000. Thyroid burned up. Then she discovered 11 tender points. Fibro. Only, then all they would prescribe was amyltriptilene. So, on I went. Trying to hold it all together, failing miserably, learned helplessness. Finally, in 2002 I was hit by a truck while crossing in crosswalk, after moving my car, as it was a three hour zone, so had to move it, couldn't afford the "paid parking"at work. God bless that truck. It just brought everything to an absolute standstill. Then, they only allow 140.00 a week for living while lawsuit runs on and on. So, foreclosure notices on house. Car being called in, non-payment on insurance, cancelled. Enough already. Yes, a traumatic event. I feel like my life is one great long tragic event. Youngest still with me, using my money, waiting for his Unemployment Insurance to be finalized. Somedays I don't want to get outta bed. I have too. Two dogs, and Dad with a brain tumour, I have to. Sayonara.   
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 5/31/2009 6:19 AM (GMT -7)   
Welcome Sharyn and Jessi. Your going to love this forum and the people on it.
 
Sera I guess mine was kind of a slow process and a accumulation of several stressful things that got me where I'm at now. The biggest being a custody battle that sucked the life out of me and caused horrible anxiety and panic attacks. All turned out okay with it but the damage to my nervous system had been done and I've not been the same since, that was 11 yrs ago. The fatigue started but doc and I both kept explaining it away I was on meds for the anxiety and peri-menopause was starting and I did live a busy life. I had some aches and pains but I also worked very hard and chalked it up to that. It wasn't til the fatigue got so bad that there was no explaining it away that I told my doc that something was wrong and that is when we started testing. Everything kept coming back normal but the RA and ANA. I was sent to rheumy where I was dxd with sjogrens. Sjogrens has a lot of the same symptoms as fibro so we had found the answer to my problems so it seemed. But after doing more research on sjogrens and continuing to get worse all the time I felt there had to be more going on with my body. Then I had my first full blown flare and just happened to have a doc app., when I told him my body felt like I had been beaten all over with a baseball bat my doc is the one that had the AHA moment and it all clicked for him. He did the tenderpoint test, I had no idea why he was pushing on different parts of my body but knew it hurt and I kept grabbing his hand away. He asked me what I knew about fibromyalgia, which was basically nothing, and told me to go home and research it. I was devastated when I started researching and knew that was it, I had it and there wasn't a cure for it. I went to rheumy for confirmation and it's been a down hill battle every since.
 
So stress was the beginning for me.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 5/31/2009 11:11 AM (GMT -7)   
I can pin point the date exactly. My fibro started August 5, 1997. That was the date of the birth of my first child. I went into labor and stayed there for about 24 hours. All of a sudden my heart rate slowed as did my sons. 17 minutes later I had an emergancy C-Section. That was trama enough to set this long, hard and ugly road infront of my feet.

Of course, I've only told a few people some of the details. I have never fully disclosed the extent of the trama that I went through with anyone but my husband. That was the day I almost died. I have had 2 more children and with each child my pain got worse as well as my dx's. I, of course, have never told anyone besides my husband that I almost died but he knew that before I did. I will NEVER reveal this to anyone else in my everyday life. It would get back to my kids and that's not something that they need to worry about.

Heather
Love many, trust few, always paddle your own canoe!
 
dx's:  Fibro, 8th cranial nerve inflamation, MS.
 
meds.:  none at this time
 
 


SheTiger68
Regular Member


Date Joined Nov 2008
Total Posts : 55
   Posted 5/31/2009 4:31 PM (GMT -7)   
I think my starting off point was due to back surgery. Except for pain going down my left leg from a herniated disc, I didn't have any other problems, other than my migraines, which I have had since I was 13. But after my back surgery in 2000, I started noticing little aches and pains, here and there, that I couldn't explain, and got worse in intensity and frequency. My migraines, which had been pretty consistent in their nature for my entire life, had suddenly changed. I developed the symptoms of IBS, and started a life of constant, sheer exhaustion, no matter how much I slept.
I had been seeing a neuro for my migraines, and last year my husband made me stop seeing him, because he felt the guy was an idiot, and was doing me more harm than good. I switched to another neuro that works on referral only, and at my first visit, he diagnosed me with fibro and IBS. He sent me to a rheumy, who confirmed it. And trust me, if I had a time machine, I would be happy to go back in time and try something different for my slipped disc. Perhaps none of this would be here if I hadn't had that surgery. Oh, well....(sighing in resignation, lol!)
Live, Love, Laugh. We only get to ride this ride once!
 
Shannon


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 5/31/2009 4:32 PM (GMT -7)   
Heather, I appreciate your sharing this story with us. I admire you for putting your kid's feelings first, and we all support your decision to not disclose the details of your experiences. We may not know the substance of your emergencies, but we can empathize with your painful and uncertain journey. Remember that we all live our individual lives but have much in common, and are therefore sisters and brothers in this fight- separate, but never alone. Thank you for sharing your struggle and your courage with us.
Peace!
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien 
OTC meds [PRN]- Benadryl, Claritin, Melatonin, Valerian, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 5/31/2009 5:06 PM (GMT -7)   
I can pinpoint what I think my first major flare only because started with an accident. We were in the process of moving into a second story apartment. At the time I had no others to help me with the move. It was myself and the DBF. Overall the move had gone reasonably well. We were on one of the last loads, and in this load was our chest freezer. Now, thankfully, it's not a gigantic one that you could lay a corpse in, but it is a large cube. We were halfway up the 16 concrete stairs, I was on the bottom end of the load cause I was taller (we'll deal with the WAS part later). All of a sudden I felt my back go out and I buckled. The freezer and I went down 8 steps to the bottom. Since then I've never bounced back and the pain has grown and migrated more.

Even as a kid I kinda was fatigued all the time, but I attributed that to taking care of my grandmother as she was blind and my mother was the only breadwinner. And I perpetually had "growing pains" especially in my legs.

As for the WAS taller, I recently found out that I have lost 2 1/4 inches in the last year. So far there's no real explanation but it's still early in the searching for an answer. My suspicion is one of two things, either the minor scoliosis that I have has gotten worse, or there's some compression of some sort happening in some of the discs as I have developed a section in my back that hurts constantly. Sometimes just dull ache, but frequently it's sharp. The spine doc is in process of ordering a CT to look and see if there's been any real changes that are visible - so I'm waiting to get in for imaging. All I can say is that I feel like I need to turn in my amazon title as I am no longer 6 foot exactly anymore.

Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 6/1/2009 4:52 AM (GMT -7)   

Piercings,

In the last 13 years my husband has lost about 3 inches in heighth. He has disc issues. We feel that he has degenerative disc like his dad. And my mom just turned 60 in November and she has lost a quarter of an inch. Hers is from that lack of calcium in her bones....I can't spell it..lol.

Sera,

There was no real cause for the emergancy c-section other than I hit 5 cms and stop dialating. The doctors did everything they could to get me where I needed to be and nothing worked. It's not unusual for a woman to have a c-section in my family. My mom had 3, my sister had 2 and I had 3. My son was actually stuck in the birth canal and that's why his heart slowed. The doctors later told me that my pelvis is too small for childbirth. That would have been nice to know before they let me go into labor..... confused .

 

Heather


Love many, trust few, always paddle your own canoe!
 
dx's:  Fibro, 8th cranial nerve inflamation, MS.
 
meds.:  none at this time
 
 


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 6/1/2009 4:56 AM (GMT -7)   
Wow, Heather your story sounds a lot like mine! 3 c-sections here, too and I was ALSO told that my pelvis was too narrow for childbirth, especially when all of my children also had large heads. Unfortunately, they let me go on in labor for 52 hours with my daughter before they figured this out and did a c-section!

~~~~~

As for the beginnings of my fibro? Well, there's no "all of the above" option and that's what I would have picked. I also had a lot of fatigue and "growing pains" as a child, and my childhood was also very emotionally difficult. Then when I was 16/17, I was in two very serious car accidents 6 months apart. Then when I was 18, my father was in a sledding accident and broke his back and was left partially paralyzed from the waist down. He was single and alone, so I had to leave college to take care of him (major life event!) Then I had a very traumatic experience delivering my 1st child and ended up having a total of 3 children via c-section (major surgery, I'd say!) Throughout all of this, I continued to have fatigue, but it was manageable. I also had odd aches and pains now and then, but they were also manageable. Then I contracted Bell's Palsy in 1999 and things have slowly gone downhill ever since!
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Post Edited (SleepyBug) : 6/1/2009 6:02:42 AM (GMT-6)


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 6/1/2009 6:04 AM (GMT -7)   

Hi Sera- I think my stressful life and dealing with anxiety and depression on and off for years played a part in it.

The final straw was working long, strenuous hours and I had ended up with two nasty viruses that winter back to back. Just my theory-

Jill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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