"Mysterious ailment adds insult to injury"-SacBee

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crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 5/31/2009 5:30 PM (GMT -7)   
This article about fibro ran in today's Sacramento Bee...
 
 NOTE: Please be sure to read PAGE 2 of the article.  The very small and inconspicuous link "continued on next page", is below the writer's phone number and blog info.

Post Edited (crazyoldcatlady) : 6/1/2009 4:58:12 PM (GMT-6)


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 5/31/2009 6:18 PM (GMT -7)   

I like 'It feels like death, only worse."  Yup...that just about sums it up!

huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 5/31/2009 6:20 PM (GMT -7)   
Ugh!  Parts of this article just make me sick (umm sicker than I already am, that is). 
 
I've changed my mind;  I really DO wish that those doctors who believe (and try to convince others) that it is "all in our heads" would get fibro.  It reminds me of the blood-letting "doctors" used to perform on patients to let out the bad humours (bacterial or viral infections).  If you can't see it, it must not exist......
 
Thank God for all of the doctors and researchers (some mentioned in the article) who do take it seriously and are working diligently to help us.
 
Thanks for posting this catlady.  :-)
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


puppylover
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Date Joined Feb 2009
Total Posts : 821
   Posted 5/31/2009 8:14 PM (GMT -7)   
nono  All in my mind!!!!!!!!!!!!!!!!!
 
I "choose to be a patient because I have exhausted my wherewithal to cope" per Dr. Hadler.  Is he nuts?  I'm a 63 year woman who has lived life to its fullest.  I raised a  family while trying to be as physically active as possible, walking, biking, dancing, going to the gym.   I'm a very happy person!  I knew almost 25 or more years ago that  my aches and pains were probably not the norm but I kept very active. I did not look for a name for my problem nor did I seek medication.  I exercised and tried to keep a very positive attitude.  It was only recently that I sought a diagnosis.  This is when even with my positive attitude I knew I needed more help.  I find this Dr. Hadler's remarks very insulting!  Thank goodness for most of the medical profession who LISTEN.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/1/2009 6:27 AM (GMT -7)   
Kinda hits you where you live, eh? If it shows up on an MRI, is it real or a Delusion? Guess I can delete my signature, now that I'm all better.

MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 6/1/2009 8:26 AM (GMT -7)   
The nay-sayers should be glad that it's not a contageous condition.... else I might just have to travel and give them all a great big hug and a kiss...
FM, costocontritis, wide spread arthritis, fibriod tumors, PTSD, 2 heart attacks at 22


Flexeril 30mg, Celexa 50mg, Despiramine 50mg, Ibuprofen 800mg Acetometaphen 500mg, Calming Sleep herbal suppliment, ActivOn topical pain relief, Melatonin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 6/1/2009 9:16 AM (GMT -7)   

A pox on some of those doctors!!!!!  GRRRRR   mad    Yes, I do think they should come down with fibro.  They will finally walk in our shoes.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 6/1/2009 9:51 AM (GMT -7)   
Since, to the best of my knowledge, none of us are lying in hospital beds, we must still have the "wherewithal to cope", because we ARE ALL COPING. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 6/1/2009 3:53 PM (GMT -7)   
Having never really known anyone with fibro before my dx, I never took it seriously. It was just one of those made up diseases they tell people they have to appease the patient when they really can't find anything wrong. I was shocked when my rheumy touched specific points around my body, and they all HURT, and he proclaimed that I have fibromyalgia. He made me realize that many things I had been experiencing were caused by the fibro. I was stunned and relieved at the same time. The SacBee article irritated me, too. How can I have symptoms that I didn't even know were associated with fibro, and the fibro be all in my head?? What?? I WANT TO FEEL LIKE THIS?? I don't think so. The pain and stiffness started in my early 20s, and I "coped" for 20 years before I got a proper dx. So at what point during that 20 years did I "exhaust my wherewithall"? Grrr. Messrs Wolfe and Hadler have clearly lost their minds.

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 6/1/2009 4:43 PM (GMT -7)   

Articles like this drive me crazy! I would like to know how Dr. Wolfe has given me an illness simply by creating a name for my collection of symptoms. Even if I didn't have a name for it I would still have the same symptoms!

I need to remember not to go anywhere near the Dept of Rheumatology at UNC(I live in NC). So, I was living life under a pall when my symptoms started? I was at home with my two wonderful kids, ran 25 miles a week, lifted weights 2-3 times a week, worked part time - basically supermom and loved every minute of it! So what - I couldn't cope with my perfect life? Who would choose to run around to different doctors appointments all day rather than live their life?

Okay, I am taking deep breaths...

 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/1/2009 7:53 PM (GMT -7)   
Beats me. I can't sleep. I can't sit for more than 15 minutes, or I get so achy and stiff and I hurt, all over. My neck, left side, my shoulders, more on the right, but some on the left, my sides hurt, over the ribcage, I take back the neck, now it's both sides, now I'm having a hotflash, boy, all of a sudden the neck is screaming, now tingling on left side, like little needle pricks. My right sciatic nerve, shooting down my right leg, now the right calf, now pins and needles in 3rd and forth toes, left foot. Woops, a muscle spasm, over right clavicle, can't reach it with Voltaren. yup, nothing better to do than make this stuff up.Yipes, forgot to mention the yeast overgrowth. Very itchy. Now I'm itching all over and here comes another hot flash. More fun than a pool of hippos in my basement. Good thing none of this is real. Otherwise, I might be p-r-e-t-t-y uncomfortable. Gonna try the sleep thingy again.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/1/2009 8:03 PM (GMT -7)   
What about that tender achy painful feeling that makes you feel like you have the flu? You can't touch your own skin because it hurts too much. And waking up with swollen hands and feet and stiffness all over? Yeah Tyno, good thing this is not real!
Sue
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