Is Fibromyalgia Real?

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AustenFan
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   Posted 6/1/2009 1:53 PM (GMT -7)   
I was really disturbed by the article about fibro that was published in the Sacramento Bee.  I had no idea that there were so many "prominent" physicians in the rheumatology field who still actively believe and profess that fibro is a made-up condition adopted by people who can't cope with real life.  Some of the comments that these "doctors" made about people with fibro are unconscionable.  Even people who DO suffer with anxiety and/or depression are given more respect.  The medical community recognizes that these disorders are caused by chemical imbalances.  But we are accused of "living under a pall" and "choosing to be patients."
 
I have been fretting over this article since yesterday.  NONE of us would ever choose this.  I have a wonderful, full life.  I have a pretty good attitude, and I often miss out on things that I really, really want to do, OR I go ahead and do them and pay the price dearly.  I am NOT a person who is hiding from life.  I do not have fibro because I choose not to cope; I have a hard time coping sometimes because I have fibro.........
 
This article says it way better than I could:
 
O.K.  I feel better now.  Thanks for letting me vent. :-)
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


ivy6
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   Posted 6/1/2009 3:14 PM (GMT -7)   
I thought that fibro was a ridiculous illness myself, and really felt that they'd just thrown this diagnosis at me because they hadn't been able to find anything definitive in all my scans and blood tests.

I (nicely) said as much to my rheumie, and she simply smiled, pressed a couple of pressure points and watched me jump off the chair in pain, and said "*that's* how we know you have fibro. There's no doubt about it, when you respond to pressure tests like that".

It put my mind at rest, anyway.
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puppylover
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Date Joined Feb 2009
Total Posts : 825
   Posted 6/1/2009 3:41 PM (GMT -7)   
Thanks Austen.  When I read that ridiculous article last night I went a little crazy. smhair   I feel better after reading what you sent. turn
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
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donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 6/1/2009 3:59 PM (GMT -7)   
I prefer to rise above the medical community's members who are ignorant. As long as those folks are not caring for me, I do not care what they say.

I meet people today who tell me that racism does not exist and is all in my mind. Poor them.

Donnaeil

crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 6/1/2009 4:09 PM (GMT -7)   
Austenfan: Thanks for the "Is Fibro Real" link. Great article.

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 6/1/2009 4:52 PM (GMT -7)   
Thank you for posting this Austen! I feel better now too! :)
Fibro dx 2004, RLS, raynauds


Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 6/1/2009 5:00 PM (GMT -7)   
ivy6 said...
I thought that fibro was a ridiculous illness myself, and really felt that they'd just thrown this diagnosis at me because they hadn't been able to find anything definitive in all my scans and blood tests.

I (nicely) said as much to my rheumie, and she simply smiled, pressed a couple of pressure points and watched me jump off the chair in pain, and said "*that's* how we know you have fibro. There's no doubt about it, when you respond to pressure tests like that".

It put my mind at rest, anyway.

My Rheumy did that to me to and gave me a perscription for Gampentin. My father is a PA and also thinks that Fibro is a catch all that includes my Chiropractor. They are all "old school".......

vestabula
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Date Joined Nov 2008
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   Posted 6/1/2009 5:02 PM (GMT -7)   

great article, Austen.  The only thing she left out was putting these moron doctors arms and legs in a beehive then zapping them with a stun gun. 

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 6/1/2009 5:24 PM (GMT -7)   
Oooh, nice touch, vestabula!

K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 6/1/2009 5:39 PM (GMT -7)   
I can't find the article you're talking about. Your link is to an editorial about doctors who don't believe it exists. Did you mean to post something that actually quotes these "doctors?"

I also used to think it was just "wannabe victims" whining. Until Ms. K9 the LEAST like a "victim" and def. not a whiner comes down with it and falls flat on her a**. Now I feel pretty good these days. But I take $200/month of meds and wake up every morning with hands so swollen I can't open doorknobs. Made-up? ha ha ha! These are the same kind of "doctors" who said homosexuality was a mental illness, or thalidomide doesn't cross the "placental barrier." In other words: idiots.
FIBROMYALGIA - that's it!
Dx @ age 50
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AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 6/1/2009 6:50 PM (GMT -7)   
K9, there was a thread yesterday started by crazyoldcatlady (love that name smilewinkgrin ) with a link to an article that was published in the Sacramento Bee.  You can find the link in the thread titled,  "Mysterious Ailment Adds Insult to Injury." 
 
The editorial I posted the website of is a response to the same type of nonsense that was discussed in the Sacramento article.  (Have I made that clear as mud now, lol? confused devil )
 
Basically, there are still some doctors who believe that we are making all of this up for attention and because we can't cope.  Also, we are so susceptible to the power of suggestion that all a doctor has to do is mention the word "fibromyalgia" and we develop the symptoms.  
 
The article DID go on to mention that there is still much research being done, and there ARE great doctors who are trying to help us.  It's just that vocal few (I did some more research, and a couple of these guys are pretty prominent in rheumatology) who are discounting fibro that have really upset me.  I didn't even realize the existence of fibro  was still up for debate.  *sigh*
 
Hugs - Austen
 
(post edited because I can't seem to put together a coherent thought today eyes )
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 

Post Edited (AustenFan) : 6/1/2009 8:04:44 PM (GMT-6)


Statgeek
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Date Joined Jul 2008
Total Posts : 1495
   Posted 6/1/2009 8:01 PM (GMT -7)   

Thank you for posting this.  The article in the Bee disturbed me too.  I don't tell very many people that I have fibro.  If someone asks, I just say I have a muscle disorder.  Not sure this is exactly correct, but it will do.  I am still newly diagnosed and wavering between knowing to pace myself and going into denial and pushing myself to do the things I used to do.  Sometimes I expect to wake up and it will be all over. 

When they say fibro is just a bid for attention, that is upsetting.  One reason is that I fought tooth and nail for 5 years to overcome anorexia.  When I was finally done with treatment, I was extremely relieved.  I was glad to be over it.  I was glad to be "normal."  I was so happy that I didn't have to go see the doctor all the time anymore.  Then a year later, I get diagnosed with fibro.  Now I am back at the doctor all of the time, etc.  This is not what I want.  Somebody might see my life and think, "she just cannot get enough attention."  I feel relieved that finally a doctor will listen, but is that the same as seeking attention?  No.

I also wish the naysayers would get fibro.  Let them try to do grocery shopping or clean house or work like we do with the pain.  I cannot grocery shop without having to come home and rest.  Errands - I can do two or three and by then I am parking in the disabled parking and hobbling on my cane.  Whee, what fun.  I just love the funny looks and the exhaustion. 

Sue


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 6/1/2009 11:07 PM (GMT -7)   
Thanks, Austen. I finally saw that thread and responded. Your underlining of the Sacramento Bee is what threw me off!
FIBROMYALGIA - that's it!
Dx @ age 50
Lyrica 75 mg 3X/day
Amitriptylene 10 mg
Tramadol 150mg time-released 1X/day


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 6/2/2009 4:52 AM (GMT -7)   
Sorry, K9.  It's the former teacher in me.  One must always underline the title of a newspaper, lol!  It didn't even occur to me that it looks like a web link.  I'm still trying to get used to communicating in cyberspace.  smilewinkgrin
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 6/2/2009 7:43 AM (GMT -7)   
I didn't really know anything about fibro til my doc dxd me after months of testing and doing the tenderpoint test so how could I have a made up illness that I didn't know anything about. devil
 
Yeah Donnaeil, put your son in a fancy car and send him to a prominent white neighborhood late at night and see how long it takes the police to find a reason to stop him cause he is dark skinned. Then let them tell you it is all in your head.
 
I find this all so sad that we suffer so much and can't live the lives that we would love to be living, yeah I do what I pretty much want to do but at a snails pace compared to the way I was before fibro, and there are people that have the nerve to say this isn't real. shakehead
 
luv and hugs
Marlee
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