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Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/1/2009 11:36 PM (GMT -7)   
blush Can't believe I'm actually posting this, but I'm desperate. Does anyone have problems with symptom 58, pain and irritation of female genitals? nono Apologize in advance if this is inappropriate question and has to be deleted. Or, if it is okay forum item but offensive to anyone. eyes I am consistently uncomfortable, and the stinging is horrendous when I have to urinate. A lot like yeast infection, but seldom is improved and never stays better. Doctor has tried all standard yeast treatments and a few other things, but none work. Even resorted to cortisone shot once and later a round of the pill pack thingy. My last test results showed absolutely nothing. I am always fastidious about cleanliness and drying well at this point, without exception. Sometimes there will be a few hours with some relief. BTW I've tried Rx creams, OTC creams, powders, corn starch, and a couple of other things that I can't remember right now -- fog or overtired, either, both......
Any suggestions would be so appreciated. I'm from the era that does not talk easily about "such things". shocked I just know that if there are any answers to this, some of you will have it. You are my hold on hope, sanity, and humor. Thanks for being there even if there really are no answers!!! (You'd think that at 66 years, I could figure it out! tongue)
Sorry if some of you guys got on this post, but I tried to warn you! devil
(((hugs)))
Luv ya
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 6/2/2009 12:05 AM (GMT -7)   
Consider going back to the doc to have a urine sample strip checked for the amount of white blood cells present, you may have interstitial urinary tract infection; or a more simple uti, and may need antibiotics and/or home remedies. Also what type of undergarments are you wearing? You may need to change to linen with cotton crotch and with more room, instead of being really tight. Just some thoughts. I hope this irritation ends for you asap!
"A butterfly is most vulnerable immediately after its' metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien
OTC meds [PRN]- Aleve, Benadryl, Claritin, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 6/2/2009 4:40 AM (GMT -7)   
Sera Smiles is right, check with your dr.

Is is irritation from dryness due to menopause? If that's it, calendula cream helps. If it's yeast, consider cutting sugar from the diet, drinking and douching with kefir. Sounds gross, I know, but it works. Kefir helps to restore the natural balance in the vaginal tissues.

Hope you find the answer soon.

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 6/2/2009 5:04 AM (GMT -7)   
Do a google search of "vulvodynia" and see if you think this is what you have.

Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 6/2/2009 5:44 AM (GMT -7)   
Yes I have that issue, and like bella scarlet it is part of menapause. I also have to deal with another issue that causes that problem. I take AZO which stops the stinging and has really helped when I go thru these episodes. Its over the counter. But you should double check to make sure you don't have a urinary track infection. And of course drink cranberry juice.
Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 6/2/2009 9:10 AM (GMT -7)   
if it has anything to do with your urinary tract, you can take cranberry tablets, to avoid the sugar in the juice. I get my supplements through www.iherb.com; they are a wonderful resource and many people review their products and post on the web site. very informative.
good luck
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 6/2/2009 9:14 AM (GMT -7)   
I have pain and muscle problems 'down there' as well, and I've been tested for every STD, yeast infections, UTI's everything, the only thing my dr was able to come up with is that it's affected by the fibro as well. I have found some relief through by wearing only 100% white cotton panties if I have to wear them, changing bath soap to Aveeno for babies, drinking lots of water and cranberry juice and using Beaudreax's Buttpaste. My dr also told me to never ever douche, as it pushes any bacteria further into the reproductive tract and may cause infections.

I hope it helps, I know how miserable this can be.
FM, costocontritis, wide spread arthritis, fibriod tumors, PTSD, 2 heart attacks at 22


Flexeril 30mg, Celexa 50mg, Despiramine 50mg, Ibuprofen 800mg Acetometaphen 500mg, Calming Sleep herbal suppliment, ActivOn topical pain relief, Melatonin


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 6/2/2009 10:24 AM (GMT -7)   
OK. underwear irritates me and so does washing the area with soap. Hope this helps. Aveeno soap causes major irritation.

Donnaeil

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 6/2/2009 12:02 PM (GMT -7)   
If you are really sensitive to soaps, it is possible that you are having a problem with whatever you are using to wash your underwear and other clothing. Unfortunately, soap and especially fabric softener residue stay in the machine for a long time.

An easy way to test this is to buy some new white cotton underwear. Hand wash them with a dye/fragrance free soap. Hang them outside in the sun to dry. This way, your first layer of clothing does not have any soap residue.

Run your washer empty a few times adding a couple cups of white vinegar when the washer is full. This is supposed to remove most of the soap residue. Wash towels and other clothing items using the same dye/fragrance free soap and line dry if possible. I haven't found any way to remove fabric softener residue from a dryer.

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 6/2/2009 1:46 PM (GMT -7)   
Have you tried the combination RX ointment Nystatin/Triamcinolone?  It has both an antifungal and a steroid.  I have a frequent problem with getting small patches of irritation which are then invaded by microscopic yeast.  It doesn't show up as a vaginal yeast infection, and it isn't really helped by oral or vaginal yeast meds., but this ointment always takes care of it.  My symptoms sound pretty similar to yours.
 
I've also had to use boric acid capsules (your doctor  can get them made up at a compounding pharmacy) to get rid of persistent yeast infections that weren't helped by any traditional treatments.  It's an old remedy that is being used again by doctors when other pharmaceuticals don't work.
 
I hope you find some relief soon.
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 6/2/2009 2:45 PM (GMT -7)   

Hey Shash...you know me...I'm not embarrassed by much...I was the one who started a thread on enema bags a while back!  But it so totally cosmic that you brought this subject up today...I woke up in the middle of the night digging away...'down there'.  Oh Crap...I thought.  I haven't had  a yeast infection in twenty years.  But I don't think it's that.  I think when I was out pulling weeds my jeans hiked up and I irritated myself or something.  Don't know.  I'll wait a day or two to see if I need the Gyno-lotromin.  I will tell you that ten years ago I went to FOUR doctors complaining of what you are describing.  None of them found anything and said it was vulvodinia or something like that...it drove me crazy because it hurt, stung AND itched.  I swore they were all missing something.  Doubt that I helped, but know what you are going through.  I am going underwear-less today!  How's that for embarrassing???  Oh...and I have to use hyper-allergenic soap too...talk about sting!

huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/2/2009 4:11 PM (GMT -7)   
My gynae says we should *never* wash with soap "down there". She says to just use water and a flannel; promises that this is enough to get us clean and hygienic. As for the irritation, she suggests putting vinegar in your bath water and washing daily. All those tips have helped me.
Co-Moderator Crohn's Forum.

New meds thread


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/3/2009 8:35 AM (GMT -7)   
yeah Thanks so much for all the great information! I could hardly wait to get back on the forum, but we had terrible storms last night -- not much wind or hail, but the lightning kept flickering our electricity off and on. No way to use the computer. nono
shocked I knew there would be response, but you were fantastic. I'll try to give you a short, relatively speaking, post to let you know where I am with this. After nearly four months of only minor, intermittent improvement, I am hopeful that I can get better. I do believe this is vulvodynia. I've been checked for yeast, UTI, and a couple of other things -- negative. I do wear white cotton undies with cotton crotch. Not tight, but think I'll get larger size to try anyway, 'cause when I went sans undies at night, things seemed a bit less painful the next day. Can't wear anything tight -- even shed my bra when I'm at home -- maybe even an old lady like me should go undie-less at home sometimes as well. I'll try. I can't get up and down in the tub anymore, so I only shower. Vinegar makes sense to me, though, so may try a really mild solution in shower. I do drink cranberry juice - the light has less sugar and calories, but tastes great. Went through menopause years ago. Hadn't thought about bath soap or laundry soap as I've used same ones for years -- will try something milder for a while. Haven't heard about some of the things that were suggested, but will work through them -- don't want to make too many changes or I won't know what actually worked!!! And, I'm really optimistic that something will help!!!
tongueThanks again, guys, you are the best! I feel so much better -- really!!! And, hopeful....
(((hugs)))
Luv ya
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 6/3/2009 12:49 PM (GMT -7)   

Holy Moly...Vagasil has alcohol in it!  I'll talk to you all later when the hubby peels me off the ceiling!

Huggies

donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 1/4/2012 3:13 PM (GMT -7)   
Hi Shash

I have vulvodynia too but it sounds different from what you have. A doctor told me once that taking baths with salt (from the kitchen) helps and also drinking cranberry juice. You can also get tablets from the pharmacy with high quantities of cranberry, it`s supposed to help with the acid levels or something if I remember correctly.

Hope things improve.
Di

Free Spirit
Regular Member


Date Joined Nov 2010
Total Posts : 190
   Posted 1/5/2012 7:51 AM (GMT -7)   
I wash with castle soap and use Vagisil extra strength as needed. This Vagisil works great for me, since it has a local anesthetic. If you can believe it, I have rubbed this cream on other body parts and it takes the muscle pain out! It is so gentle that my skin is not irritated.

I also use Tide-Free on all of our clothes. After years of not using dryer fabric-softner sheets, there is hardly any residual. Some online sites have suggestions for getting the residual out of dryers, but I have not tried any of those methods.

Thanks to all for sharing your experiences. It's nice to know we are in this together.


Free Spirit

beachlover89
Regular Member


Date Joined Nov 2011
Total Posts : 265
   Posted 1/5/2012 1:59 PM (GMT -7)   
Eating yogurt helps....even putting it on the infected area..but not internally can ease burning/itching

cotton panties...If you wear pantyhose cut the crotch part out so you can breath down there..no tight pants....

These were all doctors recommendations

ABSOLUTELY NO DOUCHING! It is very bad for you as it pushes the bacteria further up into the vagina....many doctors have said this to me thincking that could be aggraviating it...I never have douche! :)

I have found eating more complex carbs can bring it on too.

Christie
Mitro-Value Prolapse 77
MVA in May 08
Cervical radiculopathy/Herniated Disc 08
Nerve Damage 08
Migraines 08
Degenerative Disc Disease 09
Cervical osteoarthritis 09
Depression from chronic pain from car accident 09
High Blood Pressure 9/11
GERD 10/11
Reynaud’s Syndrome 11/11
Fibromyalgia 11/11
Psoriasis 12/11
Severe Psoriatic Arthritis 12/11

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 1/15/2012 5:57 PM (GMT -7)   
Has any doctor done a culture? Bacterial vaginosis is common after menopause because the vaginal ph changes and is too alkaline.
I've had vulvodynia for years. Started after the gut problems as a painful burning like someone put a branding iron up my vagina and cervix.
It waxes and wanes. Finally getting a dx for BV and taking an antibiotic helped. Currently I avoid things that set it off, especially hot and spicy foods and vinegared foods. Even if you have no symptoms of infection (I didn't), you can still have the BV, which is an overgrowth of normal bacteria found in the vagina. Also, vulvodynia can be related to interstitial cystitis, and cranberry is not recommended with IC. Watch the citrus. It can exacerbate a flare.

NRVLaura
New Member


Date Joined Jan 2012
Total Posts : 17
   Posted 1/15/2012 7:29 PM (GMT -7)   
we use 1/2 to 1 cup vinegar in our laundry and do not include fabric softener. Also, use non-scented and non-softened toilet paper. Epsom salts + vinegar and black tea (use a couple tea bags) in a bath tub help. since starting this, no more UTI's, yeast infections, or other itching. And, sporadic excema (which was my problem) has gone away. Also, use Cetaphil soap, castile soap, or a glycerin soap made locally.

As for using the same detergent - the manufacturers can change ingredients and not necessarily label it. Found out the "hive" way on that one!

Laura
Thriving Around Chronic Illnesses! The purpose of life is not to simply breathe... The purpose is to thrive, enjoy, and rejoice!

Diagnosed with Fibromyalgia, EBV, Chronic Fatigue Syndrome, Osteoarthritis, Seasonal Affective Disorder, OCD, Major Depression, Chronic Migraines, Multiple Allergies & Asthma, Chronic Pain (nerve damage from a car accident), and Whiplash

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 1/16/2012 3:16 PM (GMT -7)   
I also use vinegar in place of fabric softener. It cuts any soap residue and softens the clothes.

Mystie
New Member


Date Joined Jan 2012
Total Posts : 9
   Posted 1/16/2012 4:14 PM (GMT -7)   
Dont worry, it doesn't offend me. I am 44, and have had the same problem for the past year. Doctor thought it was Bacterial Vaginitis/Yeast. However, even after taking fluconazole monthly, as well as metronidazole, nothing helped the stinging/itching/burning. After some research, I read an article about green tea causing irritation in the area of the vulva. As a type II diabetic, I drank diet green tea all day long. I cut the green tea out, and then the symptoms went away. I started drinking diet green tea again, and they came back. For me, it was the green tea. I guess it changed my Ph balance in some way. It could be something you are drinking, something too acidic? Also, you might have a UTI. As soon as I turned 40-ish, my skin changed. I am very sensitive to cleaners, soaps, etc. I can't use any form of bath soap because they are so creamy and leave terrible residue behind. I find that I can use an organic, coconut-based chemical free soap, or Dr. Bronner's liquid soap - diluted. Also, to be honest, I stopped using soap in my genital area every day. I do shower every day, but only use a small amount of the above soaps every-other day. In between I use a wash cloth and rinse with warm water and organic apple cider vinegar, that has the mother in it - as a genital rinse. For a long time, the skin in the vulva area was blistered and peeled. It was incredibly painful for me. I could not even urinate without agony. Thankfully, I realized it was the green tea, and once my body was rid of the green tea, it began to heal, and now I have no pain or blistering. I think when we wash too much, and use harsh soaps that strip our body's natural oils, we can develop problems. I find that, for me, the more simple and chemical free, the better. And also, skipping the soap every other day in my genital area helps. I have no bad or fishy smell (i asked my husband to please tell me if he noticed a smell while I was adjusting to the new bathing routine), and I am very clean. Also, no douching. Finally, I have almost cut back 100% on all form of carbs (i.e., all grains, sugary fruits, breads, pastas, rice, etc.). My meals consist of proteins, good fats, and lots of veggies (non-starch), and some limited fruits (mostly cherries, berries, low sugar fruits). As a diabetic, I can tell you that my dietician freaked out on me when she saw I was eating bacon, beef, and cutting out all the above. However, I am now 58 pounds lighter, sugars are under control, and I don't have the yeast/vaginitis issue. I also drink mostly water. For me that was the hardest. I am a shameless soda addict. Even diet sodas. I love the carbonation. But, I needed to see what I could do to help myself. I am on enough medications as it is, and want to see if I can cut back on them if possible. The one and only lingering problem I have, and can barely control, is oral thrush. Its always there, and if I even taste something sweet, or starchy, it comes back with a big wham within an hour. Balancing a good diet is the key. Even eating too much protein can cause sugar spikes in diabetics. The proteins have to be balanced with fat so that the body can absorb them properly. I also only wear cotton panties. I eat plain, sugar free Kefir, and greek yogurt with very small drizzle of honey (my one sweet allowance). Check your laundry detergent. I stopped using fabric softener on my underclothes, wash cloths, and towels, and use vinegar in the rinse. I hope you can find relief.
"Age is an issue of mind over matter. If you don't mind, it doesn't matter." - Mark Twain
-----
DX: Type II diabetes; Reversed SAD; PMDD; H-Pylori Ulcer; Migraines; Fibromyalgia; Spinal Injury L4/5 & S1; Neck injury C2-T1
RX: Metformin 850 mgs X 3/day; Alprazolam 1 mg X 2/day; Lantus 14 units @ bed; Omperazloe 20 mgs/ day; Trazodone 450 mgs/day; Lorazepam 1 mg 2X/day; Pain meds as needed - wow.

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 1/16/2012 4:27 PM (GMT -7)   
Mystie,

Not to get off subject from the original poster, but did your doctor actually DO a culture? Send it out to a specialty lab? The medication of choice for BV is Clindamycin. BV is not susceptible to most antibiotics.

Just to mention also that English women do not use any soap around or on the genital area -- ever. Water is all that's ever needed, but I admit it's hard to change one's thinking about that.

Mystie
New Member


Date Joined Jan 2012
Total Posts : 9
   Posted 1/16/2012 10:58 PM (GMT -7)   
Hi Marrit - Yes, she took cultures and sent to a lab. It came back negative, but she still had me take the fluconazole for yeast (Negative) and metronidazole for BV (also negative). After taking these for many months, nearly a year, I researched other possible causes for the pain and itching. The one thing I did notice was that upon stopping diet green tea, the symptoms cleared up and went away in less than a week. As for using soap, I never really thought about that. I guess that's just how I was raised? I am now free of pain/irritation/blisters/itching. I agree that soap is not needed to cleanse the genital area. I like using the warm water/vinegar. turn
"Age is an issue of mind over matter. If you don't mind, it doesn't matter." - Mark Twain
-----
DX: Type II diabetes; Reversed SAD; PMDD; H-Pylori Ulcer; Migraines; Fibromyalgia; Spinal Injury L4/5 & S1; Neck injury C2-T1
RX: Metformin 850 mgs X 3/day; Alprazolam 1 mg X 2/day; Lantus 14 units @ bed; Omperazloe 20 mgs/ day; Trazodone 450 mgs/day; Lorazepam 1 mg 2X/day; Pain meds as needed - wow.

freddygirl
Regular Member


Date Joined Jan 2011
Total Posts : 42
   Posted 1/17/2012 10:54 AM (GMT -7)   
I have one thing to add to all the really good suggestions. Anywhere the body becomes moist is a candidate for burning , itching and inflamed skin. Places like under the belly, under breasts, and yes 'down there'. In addition to other treatments, I have found that after bathing and before applying any creams etc. it is very helpful to just lay down on the bed for about 15 minutes and expose the affected area to the air. Make sure that it is completely dry to the touch before putting on panties or cream. This could be done a couple of times a day even when not bathing. I have found a few days of this really sped up the external healing process.

freddygirl

JRBear
Regular Member


Date Joined Oct 2011
Total Posts : 120
   Posted 1/17/2012 2:15 PM (GMT -7)   
Hmmm interesting topic, I'm dealing with a rash that i can't seem to figure out what triggers it or where it came from.  It's kind of in the general private area.  I don't think its yeast infection related.  It will flare up terribly and burn and be so bothersome for a day or two then that part goes away.  The inflamation will hang on for a few days.  I had a colonoscopy because my family doctor thought maybe there was something going on enternally that was causing the rash.  The GI doctor didn't find anything.  He suggested i go to my dermatologist with it.  I have an appointment for about a month from now and i'm on the cancellation list if anyone cancels.  The thing is, it comes and goes and I wanted the dermatologist to see it while it was flared up.  My luck my appointment will come around and the rash won't be there.  It never fully goes away, but it can be so irritating.  Needless to say it has really put a damper on my sex life with hubby:( he's being very patient but I'm frustrated to death.  I have other skin issues so their's no telling what it is.  I've tried everything from gold bond lotion, to curel lotion, to hydrocortizone cream which does nothing.  I use an olive oil based soap very mild.  I've gone to using tide sensetive detergante and dryer sheets.  I can't figure it out.  I hate it.  I've had problems in the past with yeast infections and the occasional UTI but this doesn't seem to have any other symptoms that make me think its yeast related.  Like i said it flares up looking almost burned very red and irritated uncomfortable to sit for a long time when its flared up like that.  I usually use the gold bond lotion on it fragrance free of course for dry sensitive skin.  I'm sick of dealing with it.  I'm sick of having skin issues.  I have eczema on my legs and roscasea(sp)?? so, i hope someone cancels their appointment I need to see my dermatologist.  I just wish it wasn't in such a personal area.  Oh well if she can help me I'll take a few moments of embarassment.
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