Week 1 of being on Savella

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lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 6/3/2009 11:21 AM (GMT -7)   
Alright, I dont have ground breaking news...yet!...But I am still more optimistic 1 week into Savella than I was on Cymbalta or Lyrica (both did nothing for me).

One word of caution though...When they start you on Savella, they give you a packet with little pills to pop out and take. It's supposed to be a gradual increase. It doesnt feel gradual! I had to go back to my rhuemy and tell her I was dizzy, nauseated and had diarrhea---so we are now cutting the pills in half. Wish I started that way!!!
This is a whopper of a drug! Not for the faint at heart!!! The side affects are intense. Be prepared for 24 hours of head spinning, eye- crossing dizziness, stomach cramps, some vomiting and loose stools. I have lost 6 pounds (from lack of appetite etc) in one week! I have plenty to loose so I wasnt too worried about it but I am hoping that these side affects will end soon! shocked
My rheumy says to give it a full month before I say whether I see improvements or not but she had alot of hope for it helping with my cognitive issues, which I am most excited about!

Anyone else taking this new drug??
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 6/3/2009 11:44 AM (GMT -7)   

OMG, Philly...I hope this drug works for you but to me it sounds like something they should give prisoner's of war instead of using waterboarding!  I don't think I'll be trying it but good luck to you and I hope the side effects go away soon.  And once they do...I hope it helps your pain and Fog.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 6/3/2009 12:18 PM (GMT -7)   
LOL I know! I must be a little desperate to be still taking this drug! Im pretty fearful of when I have to increase the dose. Will I be able to stand up from all the dizziness??
But there is a vain little side of me that is glad that I am losing weight even if it is so painful! I got problems....I know! hahahaha
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/3/2009 5:06 PM (GMT -7)   
Hi philly!

Gosh, that must be difficult for you...trying to get used to that medications. I also had problems with Cymbalta and Lyrica. The side effects were similar to what you are having on Savella so I'm sure doc won't bother with me trying it. One thing I did, and I am NOT advocating you do the same, is once I felt the side effects were extremely strong I stopped taking it immediately. I could not even hold my head up and barely knew who I was. I was not about to go a month like that with constant nausea. But if you can hold out for the month I hope they give you some relief.

Sometimes I wonder if doctors realize what we go through day to day while trying something new. We do what they say regardless of how we feel because we're told that it will go away. But in the meantime our life is on hold! and we have no idea if we will get used to it. I do feel lucky that I have a doctor who is very reachable and open to ideas. It sounds like you have a nice doc too. OK, I'm done carrying on...lol

Hope this helps you and that the side effects abate soon!!
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 6/3/2009 9:03 PM (GMT -7)   
I was in the clinical trial and had to drop out because it increased my blood pressure and heart rate. It helped a bit with fatigue and pain but it didn't help at all with the cognitive stuff. My friend has been on it for a long time and he still has cognitive problems, he says the Savella helps a little because he sleeps better but it doesn't help his cognitive issues nearly as much as he expected.

Everyone is different so maybe you'll get lucky.

miamiman2
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/4/2009 1:16 PM (GMT -7)   
I am on week 2 and I did not have the eye popping side affects.  I had flushing and sweating that I still have but it is manageable.  I have gone from 4 pain pills a day and a ton of coffee to less than 1 pill a day and 1 coffee.  Pain is down about 50% and alertness, for much of the day, way up!  I still have bad spells but much less. 

lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 6/4/2009 1:50 PM (GMT -7)   
See? This what I dont understand...I also feel more alert during the day, but in a icky drank too much caffeine speed up way with my stomach in a knot. BUT I have these moments where I am completely overcome with dizziness/ fatigue and I actually nod off in mid sentence sitting up! No other drug has changed so it must be the Savella. It happens about 20 times a day now.
The other symptoms are getting more tolerable I think and since I am already on BP meds, it hasnt elevated that too much yet!
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 6/29/2010 8:05 PM (GMT -7)   
smurf   smurf Hi all . You probably know me from all the other posts went in for hepatitis, ended up on a liver transplant. Cronic constipation. Insomnia. And the most recentently fibromialgia. I had hoped to get some answers here since everyone has been so helpful in the past . Well Dr. put me on Savella the try out type on friday I will take the last one and I have an appointment with Dr.  All I can say to him is it's not the one for me first it did nothing the half way through the pain went away I was thrilled but then again with fibro. you do get some good days so around the 5th day I got up and rolled back into bed. I was in so much pain I felt that I had been hit by a train. So I continued to take it but I am in still in pain,headache,lack of sleep. I am sure that he will next try to put me on Lyrica but I take 2500mg gabapentan is a good mix because  it's for neropathic pain. And gabapentan was also responsible for having me raise my above my head.  whats next"

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 6/30/2010 4:41 AM (GMT -7)   
Lost in Philly,

You are such a trooper for sticking this out. And I hope that you get good results. Just losing the weight is enough for me to give it a try.lol... I am seriously thinking of trying it, it is just that I already take an snri and I don't know if I can take both.

Keep letting us know how it is going. I am really interested to see if you can get through the side effects and get some of the benefits. Thanks for posting this.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

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