Thyroid and FMS

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rubyslippers
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 6/8/2009 8:54 AM (GMT -7)   
Hello. This is the first time I've posted. First I want to say, after reading many posts, I am so impressed how helpful and supportive you all are of each other. I have problems with brevity, but I will try my best to be concise. I had to go on SSDI in 2002 but my health has only worsened.  I am barely able to function, live by myself, and have no support. My question at this time is: I see an endocrinologist due to Diabetes ( dx. 2003) and Hypothyroidism (dx-1967). When I used to do research on FMS/CFS, I noticed some doctors, mostly those leanly toward complimentary/alternative medicine, report that people with FMS that have thyroid issues, should not be treated soley based on TSH levels.  I've tried to discuss this with 2 endocrin.'s, stating the I believe my H-P-A axis is out of balance. Basically, they dismiss the information. My dr. continues to lower my Synthroid based on my TSH levels. Half my thyroid was removed in 1970 due to Hashimoto's disease. Does anyone else have similar thyroid issues and FMS/CFS? Does anyone know if the traditional info./tx  followed by endocrin. is accurate compared to the theory of complimentary/alternative med. doctors? My health is rapidly declining and I am losing functionality almost daily. I appreciate any advice or information you might have. Thank you so much!!!  rubyslippers    

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/8/2009 11:43 AM (GMT -7)   
Hi, Rubyslippers, and welcome!  I don't have this problem.  I was told I had hypothyroidism but the next time they checked me, I was back to normal so my doctor checks my thyroid a couple of times a year.  But, many with fibromyalgia do suffer from hypothyroidism.  I'm sure other that have this problem will pop in and give you a hand.
 
Be sure to check out the Fibro 101 thread..the second thread on the forum.  There are links to good info about fibromyalgia. 
 
I'm so glad you found us and joined in.  This is a wonderful group of people that love helping each other and we really do care about one another, too.  I wish I could have been more help to you today but don't hesitate to ask questions and read back posts.  We are here to help you.  I hope to hear more from  you soon.
 
Sherrine
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


rubyslippers
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 6/8/2009 12:41 PM (GMT -7)   
I'll check the thread you suggested. Thanks very much Sherrine!!!

pinksilly
New Member


Date Joined Feb 2009
Total Posts : 10
   Posted 6/9/2009 6:10 AM (GMT -7)   
welcome Rubyslippers,
I do have hypothyroidism and ever since I started having signs of Fibro every month my Dr. has been changing my synthroid she lowers it than ups it the next month it's driving me crazy when she lowers it I tell her I don't feel right so she does blood work than ups it right.I have been saying for years that I don't care what the test say I know how I feel she is finally starting to listen to me. Good luck hope you get the help you need 

Sharon

Hugs To All

 

Fibro 02/09,Graves Disease,IBS,COPD,High Blood Pressure,High Cholesterol,Asthma,Gerds,Allergies,Congenital Brain Defect,Diabetes,Depression

Quit Smoking 2/12/09

 

 


marissaleemom
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/9/2009 6:40 AM (GMT -7)   

I too have issues with my thyroid and had 1/2 of mine removed in 1988 and have been on synthroid for replacement ever since. I had nodules, that is why they removed it. Now I again have lots more nodules and am in the process of having a parathyroid scan done and most likely will have surgery to remove the remainder of my thyroid. Have you ever been checked to see what your parathyroid level is? Mine is a bit high (and was high about a year ago). I recently discovered that I have many, many symptoms of fibromyalgia. I got a SSD form in the mail (they want to see if I am still disabled.. I have been since 1997 due to other reasons), and I realized that I may have fibromyalgia. My Dr said he would agree that I  possilbly have it , as far as SSD is concerned. He said he wanted to find out more about my parathyroid and and thyroid issues. The symptoms of parathyroid disease are very, very similar to fibromyalgia. 

marissaleemom


rubyslippers
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 6/9/2009 2:18 PM (GMT -7)   
Thanks very much marissaleemom and Sharon!! No doctor has mentioned the parathyroid. I have an appt. with an endocrin. at KU Medical Center at the end of the month. I'm hoping he might have some answers. I wasn't able to make my appt. in Feb. as I was too fatigued to drive the distance. I'll research the parathyroid issue. Thanks again to both of you!!! rubyslippers
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