New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/8/2009 9:40 AM (GMT -7)   
i have had fibro for 3 years but a bad bout in the past 6 months (stress related).  I have such strange leg pains.  Even crossing my legs hurt.  Is that due to the fibro?  touching my shins sometimes is sore.  any way to relieve those pains?  Anyone tried the creams like Voltarin ? 

crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 6/8/2009 9:52 AM (GMT -7)   
Oh yes, that's fibro. I rarely can cross my legs without pain. Sometimes it hurts just to have my laptop on my lap. If the cat walks across my legs, it's torture! The outside of my legs always feel like they are badly bruised. It's horrible. The lightest touch is so painful. It helps some to keep my legs really warm. Soaking in a hot bath is good. I haven't tried any sort of creams, but I do like those Thermacare heat wraps. I do NOT like the Icy Hot heat patches. They do not stay hot like the Thermacare, there is way too much adhesive on them (painful to remove), and they aren't as pliable. Gentle massage can also help.
Donna


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 6/8/2009 1:56 PM (GMT -7)   
Hi Sappy....First, I want to welcome you!

I too have leg pain, somedays worse than others. I, like Donna, about throw the cat(just kidding) when she walks across my lap and I always have the sense of bruising to the touch all around both legs. I can have sharp pain throughout my legs sometimes, but mostly they just hurt/ache when I am walking/standing around too long. I've had numbness on the front of my shin for about 2 months so far, feels weird shaving. My hips bother me too, so I guess I should say I have pain in my hips/legs.

I ride my stationary bike at home and my heating pad is my 'bestest' friend. I do take pain meds when I need them. I try not to take anything, especially on a daily basis. Maybe some light stretching would help, like flexing your feet. I do that, cuz my calves think they need to stay tight. Hope you feel better soon.

Hugs,
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 6/8/2009 9:56 PM (GMT -7)   
Sorry Sappy, I didn't see that you are a new forum member. Welcome! I think the "fog" hadn't lifted yet when I wrote earlier today. You will get a lot of great info here, and lots of support and understanding.

As for the leg pain thing, right now I have a sharp pain in the front of my left thigh. It feels like a leg cramp waiting to happen. UGH! It feels a little better if I massage it but only for a few seconds and the pain comes back.

Again, welcome to the forum. I apologize for being short this morning. I should make a rule not to post until after noon!

{hugs}
Donna


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/8/2009 10:36 PM (GMT -7)   
smilewinkgrin Hi Sappy and welcome to our FaMily! I think you'll really like the folks on this forum!
shockedYes, I've got leg pain, too. Guess it follows lots of us fibromites around. Sometimes they ache, or burn, or feel like they're getting stuck with pins, but they always feel bruised. Sometimes the skin feels tight and sunburned. Weird! And aggravating! mad
I usually try to elevate my legs when they are really bad, like you would do if they were swollen. Heat helps sometimes. I haven't tried any topical creams yet, but I've been thinking about trying it lately just to see if it would give a bit of relief. I do have some pain meds, but I don't get as many tablets as I could really use, like one and a half a day if I average them out, but I am grateful that my doctor even gives me any. tongue
Please post whenever you can -- we care about you........
(((hugs)))
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/9/2009 6:21 AM (GMT -7)   
thanks everyone, it is tough going through this alone. Noone understands how in a matter of hours you can feel ok and then horrible for the rest of the day. People say snap out of it, ignore the pain, don't think about it but i can't do that when it consumes you with pain everywhere. For two years it was just from my neck down to my thighs but since October it got worse and when the doctor put me on Cymbalta to wean me off ativan I had a very very bad reaction to just one dose of Cymbalta. What a mess I have been since April 30. Now it has spread to my head, major neck pain and even into my feet. I am medication free since last week and though the pain can be intense I prefer that to the side effects of the drugs I was on.

Shash13, what pain medication do you take? I too have herniated discs in my back but does anyone have problems with constipation? It seems to create more problems.

Fibromyalgia is a scary disease because it mimics so many other things. I don't have a good fibro doctor and the family doctor really doesn't know much about it. My pyschologist thinks its my anxiety causing the pain but I tell him -- it is the pain (and thought of having the pain) that is causing my anxiety. My endocrinologist says my thryoid tumors can't be causing all these symptoms so I just try to deal with them as best I can.
Thanks for letting me express myself. I haven't been able to work since October so i am glad to have found this web site. I hope with everyone's help I can manage this disease better and get a life back.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 6/9/2009 6:30 AM (GMT -7)   
Hi Sappy and welcome. My rheumy gave me some samples of the Voltarin to try. I had hubby put some on my shoulders but I have become so sensitive to odors I couldn't stand it. Both my docs say it is suppose to be good.
 
I'm sorry your having such problems with your legs. Hope it gets better soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


marissaleemom
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/9/2009 7:53 AM (GMT -7)   
Sappy, I am new here too. I don't have the leg pains, but my arms and hands  are aching and burning so darn bad. My Dr told me to take Tylenol Arithritis Strength. I tried it over the weekend with 2 -500 mg Robaxin, with no relief. I have three bulging discs in my neck and am on Cymbalta which he ordered increased to 60 mg daily. It really doesn't help either. I was on Ativan for many years and it really worked for me. The Dr's don't like to give it... it was very hard to get off of.... but I think with long term pain it would be nice to have again. My stress worsens my pain.  The Cymbalta helps keep me from having panic attacks, but does not help my stress enough.  I pray you find some relief from your leg pain. I sounds like finding the right medication combination is a time consuming event!
 Marissaleemom

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/9/2009 9:39 AM (GMT -7)   
Marissaleemon--i think you are a very strong, brave person. How long have you been on the Cymbalta? I liked the Ativan too but it is very addictive and when it wore off I felt really depressed and hopeless. I was only taking .5 3 times a day but after a 2 months I found I needed more. That is when I said I would rather deal with the pain than with the drug but even weaning off the small amount I had withdrawal. I do find it helps me sleep a bit longer but i am so fuzzy headed in the morning.

As for the Cymbalta I asked the doctor to start me on 30 and I had every side effect within 5 hours. It really messed up my stomach and esphopus. I get really bad stomach and espohopial spasms most days now and it is worse when I am stressed or when the fibro pains are intense.

I think there is a strong association with the fibro pains, back pain or herniations and stress. What do other people think triggers the fibro??? I noticed Most people who have responded on this forum all seem to have the three things in common. it would be interesting to know more.

I was thinking of going for pysiotherapy or decompression for my neck and back problems but it is so expensive and my insurance doesn't cover it. Has anyone else tried it?

I am doing a mindful based stress reduction course through my doctor and tonight is the last class. It has helped me with a few things to deal with the pain and with anxiety like breathing mindfully and meditation.

I never thought in a million years I would have to go through this. I just lost my mother to breast cancer in April so I know the stress factor was high and that is probably why the fibro has gotten worse. I just wish it would go away.

Sorry for the long response. i will try and keep them shorter next time. :)

smiling2day
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 6/9/2009 3:16 PM (GMT -7)   
Hi Sappy.
I am a new member also and have found this to be a great place for support and it helps me not feel so alone! I can relate to your post so I wanted to reply with what I have done. Maybe something I have tried you could talk to your doctor about??? Regardless, know you are not alone. I am SO SORRY to hear about your mom. I have been going thru lots of stress this past year and it really has affected my fibro. Way to go for the classes!!!! I believe trying anything positive can't hurt right?

I have had really bad leg pain for about the last 6 months. I also believe stress has lots to do with it. I work at a desk all day and the pain gets so bad from sitting in a chair that I want to cry. I tried ActivOn since it helps with my neck & back (I have herniated discs also). I apply the ActivOn to the back of my legs and it helps. I put it on before I go to bed too.

I had read posts here about ActivOn so I tried it. So far the best OTC topical for me. As for meds, I tried Cymbalta too with bad side effects. Pretty much everything that is suppose to help fibro has given me bad side effects. I use to take Ativan too and it worked great but my new doc will not prescribe it. I cannot take NSAIDS anymore (bad stomach also) but can tolerate Darvocet and Soma only when really needed.

As for something regarding decompression, I do not have insurance so my new doctor sent me to a "one-time free" physical therapy session where the physical therapist made a neck traction device for me out of a towel and a stretchy/rubbery cord. I secure it in a closed door and lay there for 15-20 minutes. It relives the pressure where my discs are herniated. Cheap fix so if you can try something to help stretch the vertebrae out it might help you too. I know they sell traction "beds" on the internet but the physical therapist said the towel-thing she made me works just as well and luckily it is easy to use since I seem to have problems follow directions or even remembering directions from the day before :)

Good luck!

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/9/2009 8:02 PM (GMT -7)   
smiling 2 day,

Thanks for the great response. I will definately try the activon and look into the Soma and Darvocet since I can't take anything (even tylenol) with my bad stomach. I can't believe you have such similar symtoms. You don't by any chance have IBS too?? Do you have trouble swallowing. I do which they say is due to my neck problems.


I am interested in the traction thing. Was it easy to make? I still can't picture how it works.

As for remembering with the pain we experience no wonder you can't remember things. I think they call it Fibrofog.

Thanks,

smiling2day
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 6/9/2009 9:15 PM (GMT -7)   
Hi Sappy,
I think there is a way we can "chat" thru this site but I am new and not sure how to do it. I will look into it tomorrow unless someone else reads this and posts directions :)

Yes I have IBS too and 3 weeks ago I gave up wheat (all gluten) and refined sugar in hopes of getting my allergies calmed down. I read on several medical sites that those 2 food items can cause allergies so I figured it was cheap and couldn't hurt. What was amazing is that my IBS stopped and for the first time in forever, I was regular, no running to the bathroom after eating and getting cramped up! I go back to my doc next Monday and I am going to talk to her about it. My daughter in law has Crohns disease and she said her doc told her to give up the wheat and sugar too...So if we can chat somehow I can tell you what I have substituted since I realized my diet was pretty much gluten and sugar.


I have trouble swallowing only occasionally and never thought to ask about it so I don't know about that one. As for the traction thing, it looked easy to make, just the towel and the rubber/stretchy rope cord thing. Maybe you could ask your doc about any physical therapists that might see you on a one-time free basis? I certainly wouldn't want to try to explain it and then how to use it 'cuz the physical therapist who made it for me showed me how to do it. I would imagine I could mess myself up it if was done or made wrong. Or maybe you could call some local physical therapists in your area????

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/10/2009 6:41 AM (GMT -7)   
thanks for your response.

I am new too so I don't know how to chat. You have the same problems I do. I can't believe there is someone else that has all the crazy things I have. Do you have people that don't believe you or think "it is all in your head" ?? I guess having a sister-in-law with Crones makes it easier for people to understand. People don't believe what I go through on a daily basis. Even my GP says I "just need a holiday and get away". Well if I could function at that level I certainly would but I can't. My body is constantly burning or sore and it is exhausting.

My IBS has acted up for awhile now. I gave up gluten and wheat about 2 years ago. I found it helped then but know I am not sure because my ibs came back. I was tested by the GI specialist for celiac and I don't have that. I do eat a lot of oatmeal and rice and rice milk. What do you eat. I am trying to put on weight since I just dropped 30 pounds and I am barely 100 pounds. Do you take probiotics? My doctor yesterday told me to because I have some yeast on my tongue which leaves a horrible taste and burning sensation in my mouth. I think i mentioned I had some bizarre symptoms :)

it would be good to chat off line so we dont fill up this forum but I am very interested in how you are coping. Maybe we could help each other.

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/10/2009 9:04 AM (GMT -7)   
Dear Sappy: Welcome aboard. Leg pain. Huh? It tends to come and go for me. When I can get a lot of rest, and get my legs elavated, for several days, it tends to go. Then when I get real busy, for a couple of days, it's back. Voltaren works well for muscle pain, like arm muscles and also for back pain, but it seems to wear off in about twemty minutes. There is another cream, Emu Blue, really much the same, but a cream, not a gel, and that lasts longer, I find. You mentioned you couldn't take tylenol, but thought Darvocette might work. Unfortunately, Davocette is a compound of Darvon (a sedating pain killer, and Acetominophen (tylenol). so if you wan to avoid the tylenol, you ask for Darvon, and if they won't give it w/o the tylenol (cette) part, then always take it with food or at least with ensure or boost, something to coat your stomach. Good luck.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/10/2009 12:12 PM (GMT -7)   
Exactly, the majority of my stress is caused by the pain. I keep thinking why is this happening to me and even worse I keep thinking there must be something else wrong with me for me to have all this pain. I haven't been coping very well.

I think it is worse for the spouses and children when they can't understand why there are days when you can't do things and you are just not yourself. Everybody wants me to be like i was "Before" which I don't think is going to happen.

Its only been 2 years. I see that some people have had this for many years. I can't image dealing with this every day but I guess I have to get there. I just wish I had better control over it so I could do more things like eat, exercise, go to work.

I really appreciate everyone's responses. I don't feel so alone.
Today is another beautiful day!  Take a deep breath and let it go!


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/10/2009 3:10 PM (GMT -7)   
I guess what we all have to come to terms with is acceptance. Acceptance of the limitations. In some part the pain can be managed with relaxation, heat, meds, and light exercise but the fatique, well what can we do about that? I for one, can't afford a $2000.00 bed. I spend about 14 -16 hours a day laying down. My bed isn't kind to me. There should be some way to get help with this but if Fibro isn't recognized as a legit, illness, then, that's not going to happen.

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/10/2009 4:17 PM (GMT -7)   
I agree that sleeping is a major problem with the Fibro especially when just a light wind against your leg hurts and burns. I didn't know they had special beds for fibro. Do you know where you can get one? I don't think I can afford it either but I am interested in knowing more. I can't work and because Fibro isn't one of the "diseases" my insurance company acknowledges I am not eligible for any disability. Even my pyschologist thinks Fibro is due to stress. I keep telling him the Stress makes the Fibro worse but the Pain and the limitations cause the stress for me anyways. Vicious cycle.

thank you for your reply. I appreciate you honesty.

I haven't
Today is another beautiful day!  Take a deep breath and let it go!


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 6/10/2009 5:18 PM (GMT -7)   
sappy

welcome!
I know it sucks to have to deal with Fibro.
I have lots of hip pains and shin pains. I frequently whack my husband upside the head when he even touches my shins. I think it helps to prop the legs up on a chair or desk.

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/11/2009 1:23 AM (GMT -7)   
Yes, a sleep number bed, or a memory foam bed, both adjust to avods pressure points on the body so as to improve a nights sleep without tossing and turning, and getting numbness and pins and needles from to much pressure on the points where you body makes contact with the mattress. My current mattress, was a giveaway. I couldn't, can't afford anything else. So I find I'm awake 4 or so hours after finally getting to sleep in the first place. Added to that are the worries and fears associated with not being able to earn a decent living, and right now, as I believe my Dad is going downhill fast due to a brain tumor, and my landlord is an a--, who has a crew of morons working for him, whom in their enthusiasm to show me up as a neglectful tenant due to my not being well enough to keep up with the garden, the b---- who he sends to mow the lawn, went nuts with the weed wacker and broke the window out with a rock, on my Jeep. I need this car to go visit my Dad and transport him to appointments, driving w/o a decent windshield is dangerous, and I am beside my self, angry, worried and frustrated. Since I moved here I have been labeled a psych-b----, just stepping out my front door. I have had drunken phone calls from the Landlord late at night, screaming about dandelions not being pulled up (by me), I am not well, and certainly cannot tolerate any of this. It looks like I am about to move again, six times in four years, this will make 7. I think I am approaching my breaking point.

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/11/2009 9:39 AM (GMT -7)   
hey tyno3, don't give up. I am having a bad day too and feel very hopeless but we can't give up . There are people depending on you. Your dad needs you. I went through the same thing with my mom since Oct with breast cancer. She passed away in April and I still can't believe what we went through. I had to find a friend who helped me take my mom to her appointments since it was so hard for me physically. My friend has fibro too. I know facing adversity is hard and with fibro there are bad days and good days.


It doesn't seem like you have anyone to support you. You need some help even if it is to move again. Always turn a negative into a positive. i know it is hard and don't give up. I have lost 35 pounds because of eating problems and I am under 100 pounds. Some days it is really hard to even walk around but sitting isn't any better. We have to thank God we were given another day to help others if we can. When you feel really down call someone you know and talk to them about anything but your problems. Sometimes a diversion is helpful. It is hard to be positive and caring about things when you feel so hopeless and alone but you have to look at it another way. Maybe the next place won't have any weeds :) I am not making light of your situation. It is serious and I understand.

If you believe in God you can always ask him for help. I can't hurt and sometimes you will be surprised at the answers!

i hope you find some help for you and your dad.
Today is another beautiful day!  Take a deep breath and let it go!


sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/11/2009 10:05 AM (GMT -7)   
BTW, i tried a memory foam bed in a hotel where my son was at a hockey tournament in Lake Placid last October. It was awful. I was so sore the next day I could barely walk. It think it was too soft to support my little body. I don't know the answer for sleeping better I wish I did. Maybe someone else will have some ideas too! Thanks,
Today is another beautiful day!  Take a deep breath and let it go!


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/11/2009 2:43 PM (GMT -7)   
Thank you for the reminder to breathe, sappy.

smiling2day
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 6/12/2009 11:44 PM (GMT -7)   
Hi Sappy, Hoping today is a little better. Work has been crazy and by the time I get off I do not want to touch a computer, hurts to just think about it. But I got on tonight to post a question on a new thread and to check on this post! Been thinking about you and wishing you some relief. Wanted to tell you the one thing that messed up my stomach and brought the IBS back was microwave popcorn. Got my stomach all settled and quiet then at a whole bag of microwave popcorn. Took me 2 days to recover...weird. Did you find a cream that helps with your leg pain? Keep me updated on that.

You asked if people thought I was crazy when they learned about this? I think most thought I was crazy before so that is to my advantage, just kidding! Not crazy, my kids understand and my boyfriend only gets it when he hugs me hard and I cringe, then he gets that "oh I guess you hurt" look.....ARGGGGG! I could go on but that would probably be another topic, haha!

Judgmental people will judge, its their nature. When they do I always wonder what is coming down the pike for them. I can remember believing stories I heard from male authorities as a teen that woman use the "bad back or arthritis" because they just don't want to work or want sympathy. I figured these adults telling me this knew something, well until I got in my first rear-end collision and the two more following in one year. Bad Back, arthritis..okay I believe its real! So for people who might judge us for their stereotypical description and lack of education on fibro, beware! You may find out the truth the hard way!!!!

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 6/13/2009 3:03 PM (GMT -7)   
Today is Saturday, and I am feeling better. I stood my ground with the three act circus next door and refused to be intimidated. I said a prayer for me and Dad, and then I said a prayer for the roommate b---- next door who stirs everything up and splits while they fight it out with me. I have already a bead on a place, that may be better. Less expensive, will allow my dogs, and the fellow comes from the same area as my children's father, and seemed keen to rent to me. So, we'll see. I also called my old Landlord and let him know I'm looking. I also found a beautiful, rustic house on the Atlantic Ocean, but I think it would be costly to heat in winter. We'll see what comes down the pike. Thank-you all, for being there.

sappy
New Member


Date Joined Jun 2009
Total Posts : 18
   Posted 6/15/2009 12:12 PM (GMT -7)   

Hey Tyno3

I am so glad to hear from you.  I was worried.  What a beautiful postive email.  I know things will get better.  There may be a few bumps along the way but it will get better.  Unfortunatly I am beginning to realize that the fibro will hang around but we can still do things to make a positive impact each day.  Even if it is just a small thing like watching a good movie to the end.  (I can't sit very long).  or taking to a friend.  Like today, i actually watered the garden (haven't been able to do that) and it felt good (still hurt) but I felt like I had accomplished something.  On the weekend I went for a bike ride (things people take for granted) even though it was short I enjoyed it. 

Let us know how it is going!

PS I am proud of you that you said a prayer.  God will answer in mysterious ways.  


Today is another beautiful day!  Take a deep breath and let it go!

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:23 PM (GMT -7)
There are a total of 2,736,161 posts in 301,356 threads.
View Active Threads


Who's Online
This forum has 151449 registered members. Please welcome our newest member, iwanttocry.
276 Guest(s), 8 Registered Member(s) are currently online.  Details
bluelyme, Ides, tickcheckguy, jennydancingfish, Xmaslover, platinumpixie, Tall Allen, Peter A


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer