How the disability exam went yesterday...

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lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 6/9/2009 5:22 AM (GMT -7)   
First, thank you SO MUCH everyone for your positive thoughts yesterday as I went through my hour and 1/2 long exam! Your support was wonderful!
In PA state, I wish they had their own doctors lined up to examine me (as swayed to one side as they may be!) at least I would have a doctor! I have had a hard time finding a doctor to do the exam--no one wants to be buried in ongoing paperwork.
So I was finally referred to what he called himself a "Disability Doctor" and I said that I needed a disability exam and I had some paperwork. Pretty clear right? They said sure he does those sorts of things, come on in. I get an appointment 3 days before the paperwork is due (soonest I could get in) and get 1 and 1/2 hours of poked and prodded and having him tell me that I dont have fibro (!) instead I have been exposed to a toxin and have nerve damage and need to see a toxicologist (!?!) THEN, I slide the paperwork across his desk to him and say, "This is the form I told your receptionist about". Mind you, all he has to do on the form is check a couple @%^&# boxes and sign his name. Already my head is spinning b/c of everything he has said and done to me for sooo long but I kept telling myself it was worth it for this exact moment when I slid the paperwork to him! He takes one look at it and says, "I didnt know anything about this. Oh, I dont fill these out. I only do exams."
HUH? WHAT? What is the use of the exam or calling yourself a disability doctor if you arent willing to fill out the paperwork which is 90% of the battle?!? He said he would attach his notes, but that wouldnt do anything...
So I left paying a big copay I couldnt afford and now I have 3 days to scramble. Maybe I can extend the deadline.
Next time I will ask 1) do you do disability exams 2) will you fill out THEIR required forms and also 3) how quickly can I get the forms back.
I am also having a hard time finding doctors who do this, so I might have to go to an Independent Medical Examiner (IME) like you get in legal issues. They also do them, but something tells me they dont take regular health insurance--only cold hard cash. devil
As far as preparing for an exam, some of you suggested not taking meds that day. I would really not do that, you dont want to be out of it b/c you have to answer alot of questions and represent yourself well. B/c we can be fine one day and in excruciating pain the next, I would suggest being extra active for the few days before the exam. You want them to see you at your worst, without faking and you want it to be natural. They notice EVERYTHING (That I wore slip on clothing, that I squirmed in my seat, that I stretched my legs b/c I had cramps...)
I went home feeling like a deflated balloon. Maybe some of you can learn something from my struggles--ASK lots of questions over and over about the forms, I dont know how I wasnt clear...
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 6/9/2009 5:40 AM (GMT -7)   
Oh what a waste of your money and energy. Thanks for the warning though. I hope you can get in to see someone or get an extention on it. I have got to get the paper work and get started on this so I will keep your advice in mind.
 
So in other words he is one of those that doesn't believe in fibro??? You might be better off by him not filling out the paper work.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
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marissaleemom
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/9/2009 6:30 AM (GMT -7)   
 I live in SW PA and my son sees a Chriropractor who is a disability  specialist and does lots of exams and such for disability. You sure got "ripped" off. I feel bad for you. I thought SSD has their own Dr's they can send you to? Could you call SS office and ask them?
 

GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 6/9/2009 6:38 AM (GMT -7)   

Hi lost in philly-

I can relate somewhat to what you are going through. I am fighting Soc. Sec. Disability and have learned alot! Through my clinic that I go to, they have an area there that Dr.'s specialize in what you can and can't do regarding employment. BUT, they fail to mention  most the time your insurance will not cover it and it comes out of pocket. I ended up having my own Dr. fill out all the forms and if Soc. Sec. or my lawyer feels I need more than that, we will go from there. I almost went through the same thing you did, paying for it out of your own pocket!

What a waste, and sorry you had to go through that!

Jill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 6/9/2009 8:23 AM (GMT -7)   
Maybe that should be question #4---Do you believe in fibromyalgia???

Id laugh if it wasnt too sore...ok a snicker.

Im sorry if I wasnt clear before, I have so many exams and paperwork right now! This disability exam was for welfare. I have many irons in the fire right now, its a little much---group long term disability insurance, SSD/ SSI, welfare...everybody wants me to prove something to them too! I just really dont want to lose my house over this! But no one wants to call a 37 "year young" ...disabled (that's what the quack called me--former not the later!). Well me either, wasnt what I planned mister but I am! Just cause you dont want to admit someone so young is disabled doesnt mean I am not! Doesnt mean I suddenly can work and pay all these medical bills!

He wants to be my number 13 doctor on my long list of doctors I have seen...he thinks he can cure me b/c he is sure I have been poisoned by toxins (not fibro) and need kelation. Ha! Another doctor with a big ego and an axe to grind against doctors #1 through 12. Give me a break!
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/9/2009 9:28 AM (GMT -7)   

Philly,

Did I miss something???  Did he do any tests, such as urine, stool, hair samples etc? You said he wants you to do kelaton (chelation?).  That is treatment for heavy metal poisoning, as far as I know.  How in the world does he know you have heavy metal poisoning? 

I wonder if you have any recourse you can take against him in order not to have to pay the bill and possibly get him off the streets pedaling his quackery!

I'm sorry this is going so horribly for you.

Sue


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/9/2009 10:00 AM (GMT -7)   
Lost, I can't believe this!  I have social security disability.  I had a long interview, then was given papers to fill out describing what I can and cannot do.  I had to have all my medical records from my doctors sent to them and then they sent me to their own doctors to be checked by them.  Their doctors couldn't hold a candle to my doctors, by the way.
 
A few months later I received my disability!  I didn't have to pay anyone and you shouldn't have to either, if it is social security disability that you are going after.  I was 50 when I received it. 
 
I agree with Sue about reporting that doctor you saw yesterday.  That is ridiculous!  Golly, I hope you get someone to help you soon.  This is a terrible situation you are going through right now.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/9/2009 7:04 PM (GMT -7)   
Sorry to hear all of that went the way it did. I know that had to suck majorly. I have been considering applying for SSI, but I just don't know. I know that I am going to be denied the first time at least, and I wonder, because of my age, if I will be able to get it in the near future at all. I worry that all the hassle won't be worth it...
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


debimum
Veteran Member


Date Joined Feb 2006
Total Posts : 712
   Posted 6/11/2009 6:11 AM (GMT -7)   

Hi,   I have heard it's hard to get on disability.   I have considered it a lot lately.  I have a hard time working, mostly getting up in the mornings to be there at a certain time.

   I also live in PA, Lancaster County.   Does a person have to be off work for a period of time for them to even consider them for SSD?  That would be tough because I don't see how people would live then.

  I am sorry your going through all this mess.  I was going to ask my GP about it.  I know he will help me if I do this.  Which it would be so much better for my health and sounds like for you too.  

   The PA at my doctors is doing research on Fibro. she said there has to be something that would help us.  She is so kind and is leaning towards using natural things too.  She said the meds are just masking things and she feels the two can work hand in hand together.     I have a great chiropractor who believes there is an iodine epidemic for thyroid disease and prostat disease in Lancaster county.  But I believe it's all over the US because the same things seem to be predomiant alll over.   I have been taking iodine tablets and using the Celtic sea salt. I take a pinch during the day and then drink water with it.  I want to get out for a couple of books to read, becasue I believe there is something to the salt and iodine thing.  Heck I have tried everything else what is it going to hurt?   The two books are Salt Your Way to Health and The Pleasures of Menopause.   I still belive this all has somethign to do with hormones too.  Mine is when I started to go into menopause.  And at 37 any woman can start going through the hormone process.   But I have hopes in this PA.  She said the men don't really want to bother with it and they say just give her this med or that med.  She believes there is something that can help us have more quality of life.    I would like to give my husband an intimate life again.  that's what hurts most.  He is understanding, but it still makes him feel like I am not attracted to him, which is far from the case.

   I do hope you have luck with things,   did you try the university of PA hospital?  get on their site and maybe there is a doctor there that would help you.   I do appreciate their knowledge there.


back to square #1- off meds for now-dx with fibro.  Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections.  Asthma/COPD.
 
 


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 6/14/2009 1:54 PM (GMT -7)   
It's very hard to get on disability. I just got the letter yesterday that I was denied here in MI, on my first try. I'm not giving up, and this time I'm getting a lawyer.

I hope things get better for you. *hugs*
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), buspar, abilify, trazodone, lorazapam, nexium, nabumetone, hydrocodone, c-pap machine, estrodial patch.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 6/14/2009 2:45 PM (GMT -7)   
Debimum, why don't you just buy iodized salt?  Whenever I purchase salt I make sure it is iodized and I haven't had a problem.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 6/14/2009 3:12 PM (GMT -7)   
I dont understand why some people are made to jump through hoops to get on SSI. The state of WA welfare office had a lady that helped fill out the paper work for me and basically did everything for me, except after I was denied a few times, she gave me a list of lawyers, and I found one and we where going to go to court, but a few months later he called me and said social security decided to rule in my favor, I was only 21 when they approved me for migraines and pancreas problems. I was only sent to do one of those brain tests that took about 2 hours, but I was never sent to see a doctor to exam me, I also had to do a drug screen before they started the whole process, which of course I passed, but all in all, it was very simple for me since I had that lady do everything for me. I also still get welfare for my children til they're 18 cause I get no child support for them, so I get almost $1200 a month plus food stamps, so I'm not complaining, but why are some people made to do some crazy things to get on SSI when I wasnt, it seems like it would all be the same?

-hellokitty

Chronic Pain Moderator

Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.

meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."         -Mother Teresa

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