Post Edited (SassyMyKitty) : 6/9/2009 8:16:42 PM (GMT-6)
Sassy, I am relatively newly diagnosed too. I noticed that when I am in pain, I am more cranky and irritible and that creates more pain. The cycle can make things a lot worse. Stress is your sympathetic nervous system responding with increased heart rate, shallow breathing, tensed muscles, etc. I learned that if you can lower one of the sympathetic nervous system responses, the others will go down, too. So deep slow breathing can actually help alleviate the stress reaction of your body.
It took my hubby a very long time to learn to hold me when I needed it. Keep reminding yours. "I need you to hold me." Then of course, praise him lots when he does. Maybe it is counter intuitive for guys. But maybe the reminding will help. Eventually my hubby caught on.
In the meantime, this forum is helpful. Maybe an in person support group of others with fibro would help too (if you can find one). It is hard to come to terms with this. I am going through the same thing: it is here all the time. I keep hoping one day I will wake up and it will all have been a mistake. Then I try to do some of the things I used to do and discover it is not a mistake. I take Sherrine's story to heart and hope to someday build back up some strength and endurance.
big gentle hugs,
I really appreciate all the advice. You guys are like family to me. Actually, you are more supportive than some members of my family. I will have a talk with my hubby. It's weird because most of the time, he knows what is wrong with me, what I am thinking, and things like that, but when it matters the most, it seems that he is completely oblivious. I guess that is just men for you. LOL. I am just having a really hard time dealing with all of this. I know that I need to take it one day at a time, but sometimes that is really hard to do.
It is hard to find a quiet place to relax most of the time because I have a 19 month old son who keeps me very busy or is very loud, or both. So, that makes it kind of hard to find some quiet time. But, I love my son with all my heart.
Anyways. I am having a major fibro fog moment, so I can't really remember all that I was going to say. Thank you all for everything.
Sassy, We to sometimes get a little overwhelmed and cranky, but we are here to help in a small way of support. I have not been doing well for the passed week and no sleep has made my Fibro pain worse from head to toe, even my tongue hurts. Go figure.
Post Edited (SassyMyKitty) : 6/13/2009 2:14:04 PM (GMT-6)