Anyone have hypermobility joint syndrome?

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Statgeek
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Date Joined Jul 2008
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   Posted 6/11/2009 3:31 PM (GMT -7)   
I did some digging up rocks (consists of squatting down and scooping rocks with my hand into the shovel, then dumping them somewhere to be cleaned up.  The area used to be covered in plastic and little rocks were on top, but now it is a bunch of dirt.  Trying to fix it.   I've been taking breaks and trying not to overdo it.
 
My hips hurt terribly.  I thought that this does not feel like the fibromyalgia.  Fibro causes the all over body pain and feeling like you have the flu and morning stiffness and edema and arms and legs feeling like lead weights and fog and fatigue and ibs and . . .  
 
But this pain is very specific.  I have hypermobility joint syndrome HJS in the hips and hands.  And this could be making the rock digging even more difficult.  I wonder if this is the biggest cause for my not being able to walk much and the fibro exacerbates it and makes it worse.  If my hips hurt and I compensate and then feet hurt, etc. 
 
I am curious because I was diagnosed with this hjs about 15 years ago.  I also have arthritis in the neck and myofacial pain syndrome uh and fibro.  It is hard to sort it all out and  I don't know if sorting it out is even worthwhile.  I just wonder if I know what is causing the pain I can do the right exercises or avoid the wrong activities or take better care of myself somehow . . .
 
Who has this hjs thingy?  How does it affect you (by itself and in combo with the fibro and other stuff).

Sherrine
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   Posted 6/11/2009 3:48 PM (GMT -7)   
What you were describing can happen to me but not all of the time.  I don't even try to be in a squatting position because I wouldn't be able to move afterwards.
 
Anyway, I didn't know much about hypermobility joint syndrome so I googled it with fibromyalgia and found this.  It is interesting, I thought.
 
 
Sherrine
Forum Moderator/ Fibromyalgia
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Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
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RedDiane
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Date Joined Jun 2007
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   Posted 6/11/2009 4:24 PM (GMT -7)   
Old age has limited my flexibility, but my Rheumy says that I used to have hypermobile joints. I still hyperextend my elbows and knees all the time. I do have a lot of pain in my hips that causes me trouble walking and none of the drs. have been able to figure out what is wrong with them. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Bella Scarlett
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Date Joined May 2009
Total Posts : 87
   Posted 6/11/2009 6:16 PM (GMT -7)   
It is hard to sort out all of these conditions. I have a hypermobile sacroriliac joint. It has been especially bad this year due to the stress of changing jobs a few times. Sitting doing office work really bothers it. I have been on an exercise program for almost a year to strengthen the area. It is just beginning to make a difference, but I still get some pain.

lost in philly
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Date Joined Jan 2009
Total Posts : 243
   Posted 6/13/2009 4:45 AM (GMT -7)   
I also have HJS. One of my physical therapists said once that most people with FM have it. (Dont know where she got that info but that is what she said...) She did say that you will often find trigger points in the muscles that cross over the hypermobile joints.

My joints often hurt and I tell my doctors this and they say "FM doesnt cause joint pain". So If I know I dont have arthritis (tested once) is it HJS??
lost in philly

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donnaeil
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Date Joined Jun 2006
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   Posted 6/13/2009 9:59 AM (GMT -7)   
I am not hypermobile and my hips hurt. HOwever, my son was a ballet dancer and he is hypermobile. A doctor told him that was not good and my son replied, "Most of my friends are the same way." He does not even want to think about the pain he and his fellow dancerws will feel in the future.

I hope you feel better soon. Maybe you should get something else to scoop teh dirt/rocks in--another shovel or a broom?

Donnaeil

SleepyBug
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Date Joined Nov 2008
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   Posted 6/13/2009 12:41 PM (GMT -7)   
lost in philly said...
I also have HJS. One of my physical therapists said once that most people with FM have it. (Dont know where she got that info but that is what she said...) She did say that you will often find trigger points in the muscles that cross over the hypermobile joints.

My joints often hurt and I tell my doctors this and they say "FM doesnt cause joint pain". So If I know I dont have arthritis (tested once) is it HJS??


I am very curious about this. I have never been told I have HJS (I am not exactly even sure what it is) but I do have a lot of joint pain, especially in my elbows and fingers.

Could someone explain to me what HJS is? And if I'm feeling joint pain regularly, is it something I should talk to my Dr. about?

Oh, and I tried your link, Sherrine, and it didn't work for me..

Ok, I did some searching myself, and this sounds a lot like what we used to call being "double jointed". I definitely can not do the finger things, but my hands are terrible stiff and achy from having Carpal Tunnel for years and years. However, I've always been able to bend forward straight kneed and put my hands flat on the floor. (of course, I am only 5 ft tall, though, so maybe I can do that just because I don't have far to go. lol)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

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Post Edited (SleepyBug) : 6/13/2009 2:04:56 PM (GMT-6)


RedDiane
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Date Joined Jun 2007
Total Posts : 906
   Posted 6/13/2009 4:38 PM (GMT -7)   
Danielle, my dr. explained it as having your joints bend more than most people's do. I used to be able to put both my feet behind my head at the same time, I could do Chinese splits, I could touch my wrists with my thumbs, both forward and backwards. I was born with club feet, which means my knees were facing forward, but I could turn my feet to face backwards. They corrected this before I was two. I can't think if there are any more. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Statgeek
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Date Joined Jul 2008
Total Posts : 1495
   Posted 6/13/2009 10:47 PM (GMT -7)   
HJS is where your joints move a lot more than they are supposed to move. In some people it is not a problem. In other people it is a problem. It can cause some aggravating things like running into stuff when walking cuz the joints are too mobile. The joints also get injured more easily and I think are susceptible to arthritis. In some people, it causes pain. I have hypermobile hips and hands and a pt told me my neck problems are caused by hjs. Who knows. Right now the neck problems are mainly from myofacial pain. The hypermobility doesn't bother my hands too much. But I think it is causing extra pain in the hips.
Sue
Here is an interesting site about it. http://www.hypermobility.org/
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