Found some people who were really supportive

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Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/13/2009 11:59 PM (GMT -7)   
Hubby called my dad today to talk to him about something else.  They were talking and hubby mentioned the fibro and how I do pretty good if I pace myself.  I didn't tell my dad about the fibro because of some other family members' responses.  That wasn't fair to him.  Dad was completely understanding.  He says to hubby, "Fibromyalgia??!!  That stuff can be painful!!"  He was all worried about me and when hubby told him I used a scooter in vegas and a wheelchair in disney, he was supportive and glad I did. 
 
At a baby shower a friend asked why I have the cane and I explained that I have a muscle disorder and need it sometimes.  She asked what muscle disorder so I told her.  I told her that I usually don't tell people the name because some people don't think it is real.  She has it too and we talked and were supportive of each other.  It was nice to be validated. 
 
Sue

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 6/14/2009 12:05 AM (GMT -7)   
I'm glad you found some supportive people :)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 6/14/2009 8:27 AM (GMT -7)   
It is awesome when other people understand. I don't tell many people about the fibro either because of the same reason. I am glad that you have the extra support now. That was like it was meant to be.

Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 6/14/2009 9:09 AM (GMT -7)   
This is good news!  I think people are starting to understand it a little more.  Even though those stupid commercials aren't that accurate, it has put the name "fibromyalgia" out there. 
 
You know, when I got fibro, it was called fibrositis.  Ten years later I was talking to my cousin and she was telling me she was having a lot of pain and I told her I did too.  I asked her what her problem was and she told me it was fibromyalgia.  Sue, I had NEVER heard of fibromyalgia!  I told her I had fibrositis and it sounded so similar.  When I got home I looked it up and realized we were talking about the same thing!  LOL  Even I didn't know I had fibromyalgia!  smhair
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


smiling2day
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 6/14/2009 9:11 AM (GMT -7)   
That is great you were able be honest with a couple people and found support! I believe there are many supportive, educated, informative people out there.

I tell people, even tho' some do not understand, care or believe. I figure either they will start hearing the "f" word enough, from enough people they come in contact with in their lives, that they will take notice (someday) OR it makes me feel healthier compared to them because I may be in pain and feeling cruddy but at least I am not stuck in a little box with blinders on...The second part I do not say to them, its just for me.

Seems like you have some new people behind you!

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 6/14/2009 1:09 PM (GMT -7)   
Sue

Glad you were able to put it out there and get great responses and support. Maybe we shouldn't be as wary of telling people, who knows maybe people are starting to understand? Your dad sounds awesome!

I am like a lot here and don't mention it to too many people. I hadn't even told my kids until a couple of months ago - they just knew I had a bad back. I guess I didn't want them to think of me as sick. My older son just told me today that they actually mentioned fibro on one of the crazy cartoons they watch on cartoon network - and it wasn't bad!! A woman was about to try something and said "I hope this doesn't affect my fibromyalgia".
Fibro dx 2004, RLS, raynauds


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 6/14/2009 2:45 PM (GMT -7)   
I do tell people I have fibro. I get all number of differing responses.....from "oh, that's the disease where you just think you are in pain, but you're not!" to "Oh, I feel so badly for you!" I tell everyone so they get educated. I know I have pain, so if they don't believe me, "oh well." I understand that some folks with fibro don't want to say anything...but please be brave and try it. It helps all of us in the long run.

I'm so glad you got good responses from people. This is a very encouraging thread. *hugs*
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), buspar, abilify, trazodone, lorazapam, nexium, nabumetone, hydrocodone, c-pap machine, estrodial patch.


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 6/14/2009 2:55 PM (GMT -7)   
I don't talk about fibro to too many people and just casually mentioned it to my kids recently.  I guess I didn't want to worry them.  They don't ask any questions about it.  I do have a best friend that I talk to about it.  She understands.  
 
One day I did say something about it to a lady I had just recently met.  She said "Oh, I always thought only obese people get that".  I wonder where that came from? confused
 
Glad that you found some supportive people.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/14/2009 5:47 PM (GMT -7)   
Yes, maybe we should tell more people. I was a little leery because I told my mom, sisters and aunt and they are eerily silent about the whole thing. I try to act like using a cane and (while on vacation a scooter and wheelchair) are normal and not weird. I sent my mom an email from disneyland and said hubby was having fun pushing the chair because he could pretend like he didn't hear me when I wanted to go shopping. Never did get a response.

puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 6/14/2009 8:23 PM (GMT -7)   
Yes Danibm my best friend is wonderful.  Actually I have 2 best friends that listen to me and I've known them both since I was a teenager or even before.  They both remember me talking about all the weird aches and pains I had and I how I would get up every night and soak in the bathtub of hot water to relieve the pain and stiffness.  I'm 63 now and we are still friends. 
 
They are priceless! yeah
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/14/2009 8:50 PM (GMT -7)   
Glad to hear that you have found people who are supportive of you. Sometimes, our families will surprise us. My grandma has fibro, but she has never been officially diagnosed because she has so many other things wrong. She told me today that she didn't see the point in getting diagnosed because it won't change anything. But, I am glad that I have her because she really understands me, and so does my hubby. I have one friend who doesn't know much about it, but she believes me, and she knows that I am in pain and is supportive of me. It's nice to have supportive people in our lives. I am glad you have some.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 

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