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Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/15/2009 12:40 AM (GMT -7)   
Are mouth sores common in fibro?  I ate cheerios yesterday and my mouth is still sore from it.  I have an open sore in the roof of my mouth that hurts makes it hard to eat.  From cheerios?  Come on!  It is not like I ate ground glass.  eyes
Sue

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 6/15/2009 5:04 AM (GMT -7)   

I don't know if this is a fibro thing or not but it takes nothing for me to get a canker sore or irritation from something I eat.  Those taste bud thingys on my tongue swell and get sore.  I have had four or five cankers going on at once.  Been to dentist, periodontist..blood work and the best they can come up with is 'reccurent aptheous ulcers."  I do know that dry mouth from meds and fibro make the tissue more fragile and thin from lack of saliva.  Chapstick is my best friend cause my lips are so dry.  If you have dry mouth, I would say it's a fibro-thing.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 6/15/2009 5:48 AM (GMT -7)   
I don't know if it's a fibro thing or what, but this happens to me, too. Happened to me yesterday, as a matter of fact, only with me it was from eating Lays potato chips. I had a couple of hand fulls in the afternoon and then my mouth hurt the rest of the day. I don't have any open sores, but I do get this scratchy feeling on my tongue like I've eaten sandpaper or something..I've noticed it only tends to happen with crunchy foods. I do have terrible problems with dry mouth also, but don't get canker sores that often and have never any tests or anything done. Like Donna, I also keep lip balm close by (for me it's Burt's Bees, though, haha).
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 6/15/2009 5:49 AM (GMT -7)   
I do get these things also - but never attributed it to fibro. Hmmmm, something to think about.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), buspar, abilify, trazodone, lorazapam, nexium, nabumetone, hydrocodone, c-pap machine, estrodial patch.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 6/15/2009 6:06 AM (GMT -7)   
Sherrine has the answer for this, she calls it medicinal rum. devil She says she rinses her mouth out and spits the rum out but I have my doubts about the spitting part.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/15/2009 6:52 AM (GMT -7)   
I have a book on fibromyalgia, and in it, it says that this is a common problem with fibro. I get sores on the sides of my mouth all the time. They just come out of nowhere. So, yes, it is common with fibro.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 6/15/2009 6:56 AM (GMT -7)   
Hi Sue- I get sores, mostly on the sides of my mouth that will come and go. When I first got fibro I had them all over. Not fun!
 
Jill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 6/15/2009 6:58 AM (GMT -7)   

This really does work!  Honestly!  I have Crohn's disease and would get sores in my mouth and all along the sides of my tongue.  I barely could eat anything.  Finally I thought the alcohol could kill bacteria so I got some rum, swished it around my mouth and spit it out.  It really burned for about 20-30 seconds and then the area was somewhat numbed...which was a relief to me.  I noticed later that day that the sores were better so I used the rum again.  It didn't burn nearly as badly and by the next day the sores were pretty much gone. 

So, when my children would get canker sores, I'd dip a Q-Tip in the rum and put it on the sore.  They knew it would burn but they also knew it would clear it up.  They would even come to me and ask me to use it on a canker sore. 

To this day, they use rum for things like this.  I had a mild cold sore starting and got out the Blistex and my daughter told me she uses rum for that too!  LOL

This is how my "medicinal rum" stories have gotten started on this forum.  Marlee does like to get into my rum supplies when I have a virtual party at my house.  devil

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 6/15/2009 7:57 AM (GMT -7)   
Mmmm Sherrine-rum?  My sister has Crohn's and gets these huge blood blisters that seem to just pop up suddenly.  Doctors have seen these and just guess they are from the Crohn's.  I might mention the rum rinse to her.  She does not use or believe in anything I read from the Internet.  She will definitely think I've been swallowing my rum rinse.
 
I also get little sores on my lips and sides of my mouth.  Right now I have a little white spot near the back of my throat that my doctor is unsure of.  I go back in a month or so for re check on this and other things.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 6/15/2009 8:04 AM (GMT -7)   
Ok-this is really weird. My throat is still bothering me, so I went into the bathroom with a hand mirror to see if it was red or splotchy at all, and discovered that my tongue is all red and raw on the tip and along the first half of the center, then the rest of it is white and splotchy. Has anyone ever experienced anything like this? If so..what is it?? I'm going to the local clinic this afternoon (it was going to be 6 weeks before I could get in to see my regular Dr.) but they aren't known for being real on top of things..they're more of a place to go when you need an antibiotic then they are anything else. So...what do you guys know about this, if anything??
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/15/2009 8:38 AM (GMT -7)   
Danielle,

That 'splotchy' thing inside the mouth is likely something called 'lichen planus'. My cousin, who also has fibro, has it too but hers is way worse than mine. For me it's mostly a faint white spiderweb looking area on inside cheek and the tongue. I had my dentist and a specialist check it out and confirm it. It's just there... Cousin's doc told her it was fairly common in fibro folks. Here's more on the condition...

Chutz


Definition
By Mayo Clinic staff

Oral lichen planus is a chronic autoimmune inflammatory condition affecting the lining of your mouth, usually resulting in characteristic lacy white patches. Oral lichen planus occurs most often on the inside of your cheeks but also can affect your gums, tongue, lips and other parts of your mouth. Oral lichen planus sometimes involves your throat or esophagus.

While oral lichen planus usually begins during midlife, it can occur at any age. An initial episode of oral lichen planus may last for weeks or months. But unfortunately, oral lichen planus is usually a chronic condition and can last for many years. Although there's no cure, oral lichen planus can be managed with medications and home remedies.
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/15/2009 9:36 AM (GMT -7)   

Wow, I am going to try that medicinal rum thing.  Would medicinal scotch work too?  I don't have any rum.  We used to put teeny dabs of rum on the baby's gums for teething.  A friend from church recommended it.  I am not sure if it helped or not.

I also get sores inside my lips that appear from nowhere and these little sore blisters on the back sides or roof of my mouth.  If the little blisters can be popped, they stop hurting immediately. 

I looked it up on the internet and found this:

NSAIDS and Methotrexate can cause mouth sores.  Yogurt, folic acid and acidophilus can help. 

And of course, dry mouth can cause them too. 

I will keep looking.

Sue


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 6/15/2009 11:08 AM (GMT -7)   
Sue, I think any alcohol will do.  I use rum because I like the flavor.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


TarheelMama
Regular Member


Date Joined Mar 2009
Total Posts : 28
   Posted 6/15/2009 11:42 AM (GMT -7)   
wow!  I thought I was crazy!  I can't enjoy cookies chip, some cereals, tacos, and all .that kinda stuff.  now i know i'm not alone.

*~*~*Katie*~*~*

 

~Fibromyalgia, Arthritis, Carpal Tunnel Syndrome, Lordosis, Chronic Fatigue, IBS, Chronic Cystitis, Bicornuate Uterus, PCOS, Cancer Survivor, Dyslexia, Memory Loss, Anxiety, Depression, ADD, Kidney Disorder, Kidney Stones, Migraines, Allergies, Eczema, Diabetes, Bulging Disks, Weak Ligaments in Knees~

 

(Insulin, Gabapentin, Cyclobenzaprine HCL, Zolpidem, Rozerem, Hydrocodone ES, Toradol Shots, Steroid Shots)

 

*Don't dream it. Be it!*


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 6/15/2009 1:24 PM (GMT -7)   
I've been having alot of trouble just recently with my tongue being sore and having these little white parts that stick up. I did have them on the end of my tongue now they are at the middle of my tongue. It's rediculous. It's hard to eat anything. gurrrr  At least it's helping me loose some weight.
 
As for the sores. I have been getting my sore in the crack of my mouth. Now That's irritating. I go to open my mouth and the sore cracks open. I even have some sore just on the inside of my upper and lower lips. You can't see them but I know they are there. I can feel them. I don't know what to do or where to go at this point?
 
HARA

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 6/15/2009 1:30 PM (GMT -7)   
Chutz said...
Danielle,

That 'splotchy' thing inside the mouth is likely something called 'lichen planus'. My cousin, who also has fibro, has it too but hers is way worse than mine. For me it's mostly a faint white spiderweb looking area on inside cheek and the tongue. I had my dentist and a specialist check it out and confirm it. It's just there... Cousin's doc told her it was fairly common in fibro folks. Here's more on the condition...

Chutz


Definition
By Mayo Clinic staff

Oral lichen planus is a chronic autoimmune inflammatory condition affecting the lining of your mouth, usually resulting in characteristic lacy white patches. Oral lichen planus occurs most often on the inside of your cheeks but also can affect your gums, tongue, lips and other parts of your mouth. Oral lichen planus sometimes involves your throat or esophagus.

While oral lichen planus usually begins during midlife, it can occur at any age. An initial episode of oral lichen planus may last for weeks or months. But unfortunately, oral lichen planus is usually a chronic condition and can last for many years. Although there's no cure, oral lichen planus can be managed with medications and home remedies.


Oh my gosh, Chutzie, thank you SO much for this information!! Not only does it explain my tongue, it also explains the weird rash looking things I get on my hands!! I looked up pictures of both, and the oral lichen planus looks just like my tongue and the skin lichen planus looks exactly like what I have on my hands. Dr.'s have been trying for YEARS to figure out what the heck was on my hands and I have tried everything under the sun to get rid of it with no luck. Now I finally have a name for it and can talk to my regular Dr. about it when I get in to see him. So thanks again!! It is so nice to finally know what the heck is going on! :)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/15/2009 10:59 PM (GMT -7)   
Wow! Thanks, guys, for this thread! Of course I feel a bit foolish for not thinking about fibro being involved, but I am so relieved that this is common for fibromites! My mouth feels like a war zone much of the time which is bad enough as you all know, but now I can quite worrying about it, which I'm sure doesn't help at all!
Thanks, too, Chutzie for the lichen planus information. I've only had one bout with this so far, but it lasted several weeks. Guess it will eventually return, but at least I know what it is now!
(((hugs)))
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 6/16/2009 8:33 AM (GMT -7)   
Wait what? This is a Fibro thing too? I get the sores right where it hurts like all heck to smile!

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/16/2009 5:40 PM (GMT -7)   
Do you think that something like whiskey would work the way rum does? I don't have whiskey here either, and can't really afford it right now, but I prefer it over rum. The only alcohol I have in my house right now is a bottle of my favorite wine...which I may treat myself to a glass of tonight...
I had heard of whiskey or rum being used in the old days to help with teething...but I never figured it would actually help HEAL sores like that...hmmm...
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 6/16/2009 5:48 PM (GMT -7)   

As I said before, I chose rum because I like the taste.  But it's the alcohol that does the work so I don't know why whiskey wouldn't work.  I just know the sores heal up for me.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 6/16/2009 10:35 PM (GMT -7)   
WOW, this is happening to me at the exact same time of this thread! I have been noticing that my mouth is really sensitive lately and thought at first I was biting my cheeks or tongue in my sleep or something. I definitely have the lichen mouth.  I was so excited to dig into a big bag of potato chips yesterday (my guilty pleasure!) and could only eat but one or two, because my mouth felt full of glass! I used minty Listerine because it hurt to brush my teeth, and that helped (the alcohol). Next time I will try tequila! And also I immediately got these cracks in the corners of my mouth. I've just been using a lot of Vaseline- I mean a LOT of Vaseline! Today at work I was sitting at my desk and my co-worker walked by my desk on his way to the restroom. A few minutes later he came back, stopped just outside to talk to someone, and perhaps a total of ten minutes later walked by again and I was putting on Vaseline AGAIN! So embarrassing. tongue

lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 6/17/2009 4:19 AM (GMT -7)   
I also read that increasing your B-complex will help with not getting mouth sores...
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 6/17/2009 5:22 AM (GMT -7)   

Littleneck...I have a jar of vaseline in almost every room in the house and carry a tube of it in my purse because my lips and the corners of my mouth are so dry and cracked.  I used to be embarassed too when friends and family would come over and see all this vaseline everywhere...wondered what they thought I was doing with so many jars...LOL!  Don't care anymore.  Again, I think we get the mouth soreness and dry lips from lack of saliva.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/17/2009 5:56 AM (GMT -7)   
Awesome Sherrine! Thanks! Now I have a way to help heal those annoying sores when I get them. I get them all the time. It seems like when they finally heal, more come along to replace them. It's crazy.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


Corinne44
Regular Member


Date Joined Nov 2008
Total Posts : 98
   Posted 6/18/2009 12:57 PM (GMT -7)   
My fibro Dr. asked me before if I ever had mouth sores. She said that some people get them. Luckily, I haven't. I hope yours go away soon.
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