newbie/ It must be something else!

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veelynn
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/21/2009 9:53 AM (GMT -7)   
Hi, I am new here and my story starts 2 years ago when I fell down some steps. I was holding my 1 year old at the time and when I fell I just wrapped my arms around him and hoped for the best while falling down 12 steps. My son was ok but I took a beating and was taken to the ER, nothing has been right since then.

I was diagnosed last year with Fibro and said "No I don't have it....something else must be wrong" I have a high pain tolerance and so this can't be me. But nothing seems right. I have every symptom listed plus more. I can't stand severe heat or cold. Some days I can't think straight and even slur my words due to jaw pain. My muscles spasm..like a charlie horse...the one's in my rib cage usually knock me to the floor. The constant pain is driving me nuts. I feel so weak and this really bothers me because I used to be a weight lifter in my twenties. I was so fit and musculer back then. Now I am fat and can't hardly walk or even pick up my children. I cry myself to sleep over that one and over the lack of park outings for the kids.

My skin has started to darken in the creases and my doc says it is cause I am obese. ( I am only 40 pounds overweight but apperently that is enough). My joints ache all the time but my ANA has never been positive. My teeth are falling out. And I have a serious vit D defiency. I had to give up my dream as a nurse because I can't move the patients.(this isn't to bad I am going back to school for my second career choice, I hope anyway). I had a severe case of an SVT and my heart had to be flat lined to get it back to regular beats. I have anxiety and stress which is made worse since my husband was laid off from work and can find nothing. I am about to lose our house and just about everything else. My husband loves to blame me and say ..."I can't work ..you can't even take care of our 4 or 5 year olds ..cause you can't pick them up or take them places" Oh how this bothers me. He also likes to tell my that If I could handle pain I wouldn't have this problem

My doc told me that I need to be able to handle pain better and that it is all caused by depression and stress. He told me to see a psychiatrist for my depression and get rid of my stress and I would be pain free. He refuses to give me any medication except anti depressants. I asked him about disablity and he told me noone gets on disabilty due to fibro because it doesn't warrent it...only sick people get on disability.

My husband can't stand me..my doc thinks I am crazy..my kids want their mom..I want my life back! My world is caving and yet I still can't say out loud..."I have fibromalgia" . I think it must be something else... this is actually the first day that I have even believed enough to even look at a fibro board. That is because I rode my bike across my driveway yesterday and now my calves are hurting so bad..I literally can't walk up steps. It has to be something else...I think

boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 6/21/2009 10:05 AM (GMT -7)   

hi,

It sounds like you're getting it from all angles. Is there any chance you can get to see another doctor coz as soon as you see one that understands fm you'll get the right help.

I spent years like you, i refused to believe i had it, i couldn't say i had it and what i eventualyy realised was i didn't think it exsisted.

But whtt does exist is all the pain and torture that goes with having it. So whether you or your doctor thinks its fm or something else the main thing is that you get help.

you cannot go thru the rest of your life like this, so perhaps this is your first step in acknowleging you have it.

Acceptance from yourself is the first thing you need.

Above all, change doctors..........i had four different ones, now that i know it's fm, i stay away from doctors and rely solely on my own treatments.

take care and i hope you get help, as a basic human right you deserve it.

 

 


BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most!
Fibro and spinal arthritis, trying to mange it with diet, exercise and accepting my limits, as i'm allergic to EVERYTHING!
TTC NO1 since Jan08


noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 6/21/2009 11:35 AM (GMT -7)   
My hugs go out to. FIND A NEW DR
noklu
 
anxiety, avascular necrosis, costochondritis, depression, cfs, hypothyroidism, fibro, gerd, thyroid, uc 
 
in trying times, don't quit trying          
 


Shash13
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/21/2009 10:40 PM (GMT -7)   
Hi veelynn and welcome to our forum! I have to echo the thoughts from the others: please get a new doctor! Not only does he have no right to speak to you that way, he obviously does not understand or believe in fibro......You may need some help with depression and stress, as they are definitely worsened by fibro pain and limitations, but to blame them and you for how you are feeling -- no way!!! You can have fibro and still maintain a life; it may be a bit different from what you are used to from the past, but who wants to live in the past anyway?! The future holds the promises! Please read Fibromyalgia 101, the second thread at the top of the page. It has tons of helpful info and is a really great read. BTW I am on disability and have been for some time -- it was kind of a fight, but that's the way it works regardless of your condition. Mine was based on fibro. Others have had the same results, too.
This forum has many caring and supportive people who truly love one another -- please post again.......
(((hugs)))
Shash
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 6/22/2009 7:17 AM (GMT -7)   
You have lots of fires going right now and all you can do is try to put out one at a time. I agree with the other posters, find a new doctor. Get a proper diagnosis. Once you do and accept it, you can begin to take care of yourself accordingly. In the meantime, do what you can do: eat well, try to get good rest and exercise, even if it's just napping with and out walking with your children - then you will feel like you're being a good mom, too (even though I'm sure you already are). "One day at a time" - overused saying, maybe, but it's true and it works.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 6/22/2009 8:15 AM (GMT -7)   
Hi veelynn and welcome to our family. I'm glad you reached out to us, it's a step in the right direction. It's hard to accept having a disorder that there is no cure for, denial is very common in the beginning. I think the fact that you posted on here means you are ready to accept this and get help for it. I'm sorry everyone in your life is treating you so badly and putting the blame on you for having a disorder that you would gladly give up if you could. You need to find a doc that believes in fibro and will work with you on getting some of the pain under control. Then you and your doc needs to educate your hubby on fibro. Many of us on here do have depression problems, my depression and anxiety problems started long before fibro.
 
Many of us are low in vit D and some are low in B12. I know when I got on D it made a difference in my energy and motivation.
 
We all have to learn to live our lives differently with fibro and pace ourselves but we are living our lives. I'm almost 59 yrs old and I feel like I go at a snails pace but I keep going and eventually get things done.
 
There is such a wealth of info on this forum and how we do live our lives with fibro so I really hope you will stick with us and learn all you can about it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 6/22/2009 10:36 AM (GMT -7)   
Welcome Veelynn!

Sorry to hear your having a hard time with your husband and yourself. Try a new doc that understands FM. When you call to make an appt. ask them if he treats anyone else with it. Have you checked out the National Fibromyalgia Association website fmaware.com? They have a list of docs you can call on, hopefully in your area.

I really understand the guilt we feel when we can not do what we use too. Its like mourning a death of our previous life, but we are born anew with a new and improved outlook on what life can bring us now. Your kids LOVE you, no matter if you can't run around in the grass with them, as long as you are there.

Read, read and read as much as you can on FM and share it with your 'next' doc. It also wouldn't be bad to share some info about fm to your family too. Maybe your husband is scared a little right now. It's always tough to see someone you love hurt so much and don't know what to do for them.

Take some hot showers or baths, they can help relax you. Heating pads are great too!

Hugs,
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


veelynn
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/22/2009 12:33 PM (GMT -7)   
Thanks so much for everyone's support. It is nice to know I am not alone(although I wish no one had to live with this). I am talking with one of my mom's friends who has this condition tomorrow and she is going to give me the name of her doc and change my doc ASAP. I will keep in touch and keep all of you in my prayers.

Thanks!
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