Hi everyone, newbie here.

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[emo shaman]
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/23/2009 3:04 PM (GMT -7)   
Hi, just thought I'd write a quick into post, as I'm new to this forum. The name's Garth, I'm 22 years old, and I was diagnosed with fibromyalgia about a month and a half ago. I decided to join this forum to be able to talk to people who can relate to the things I go through and have gone through before I was officially diagnosed. Getting the diagnosis was quite a shock to me, due to the fact that before I was diagnosed, I really had my doubt about the existence of it, considering the only person I knew with it was a real addict type person. Guess it was a real kick in the butt by karma for me to get it diagnosed. I did not get my diagnosis until May of this year, when I was in the hospital for a couple weeks due to psychiatric reasons. [very long story, not really appropriate to talk about here, but my symptoms of fibro DID play a huge part in that hospitalization] I had been seeing doctors for years for chronic headaches and nerve pain, had two brain MRIs and one MRI of my left hand, but those really didn't prove anything except for a misdiagnosis of carpal tunnel, [which I got unsuccessful surgery for] and a birth defect of the brain that supposedly has no effect of the rest of me. After explaining all of the symptoms beyond the disabling headaches and the nerve issues of my left hand, I went into the fact that I'm fatigued most of the time, nauseous and dizzy [to the point of falling down my stairs at home, which are a spiral staircase QUITE OFTEN], and the sleep problems [never had a deep sleep in my life, most of my sleep is in REM phase], and so on, the psychiatrist and a few of the nurses suggested fibromyalgia, so did one of the other patients there who also had it. After getting out of the hospital I saw my regular physician and she confirmed it after I explained everything to her. I'm not really sure when all this started showing up, but some of it I've had my whole life, and some of it has shown up and/or gotten worse in the past few years. I'm lucky to be on disability for mental health reasons, because there's no way I could attempt any sort of work at this point. I am on Ultram 50mg four times a day, but even with that the pain's only dulled enough to function around the house and get slight exercise every so often. I'm pretty dependent on caffeine and energy drinks due to the fatigue, and I've recently started drinking Yerba Mate more often because it has less of a crash than coffee and energy drinks do. Even after a month and a half of knowing I have this, I'm still in quite a shock knowing that I'm only 22 years old, and I have what seems to be a life long condition in which there's only management for, not a cure. I refuse to let it hold me back on living, but I'll admit there are some days where I hurt too bad to want to even get out of bed, or I'll sleep most of the day. Don't get the wrong idea, I'm not looking for pity and whatnot, just understanding and advice. I do realize I'm not the only one in the world with this, but it's a heavy load for me considering that I'm also schizophrenic, have PTSD, major depressive disorder, and gender identity disorder [I'm FTM transgendered]. I have however made many changes in my life recently such as overcoming my addictions of the past and improved relationships with my family and my significant other. It also helps to have the diagnosis of fibro so they realize that I'm not and haven't been making up all my physical symptoms for all this time, so they do go easier on me for certain things. Well, I'm sorry for such a long intro post, but I always have quite a bit to say. Looking forward to being a part of this forum, and thanks for reading if you've made it all the way to here. :-)

SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 6/23/2009 3:21 PM (GMT -7)   
Welcome to the forum! I'm still sorta new myself, but I have found this forum and all the people so wonderful! It's already helped me out so much! I hope you end up loving this place as much as I do! :)
~*~Sarah~*~

"You were only given this life because you are strong enough to live it."

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Indomethacin, Buspar, Cymbalta, Lyrica, Requip, Nexium, Advair, Compazine, Lunesta.


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 6/23/2009 3:22 PM (GMT -7)   
Welcome, Garth! This is a great place to come for the support and understanding you seek. You will find folks here to be just wonderful. I'm sorry you've gone through so much. Coming here and knowing I'm not alone in the fibro battle has helped keep me from the deep depression I was headed toward. There's a lot of love here, and humor, and acceptance.

:-)
Donna


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 6/23/2009 3:26 PM (GMT -7)   
Hi, Emo, and welcome!  I'm so glad you found us and joined in.  We are all in the same boat so we will help each other out.  I've had fibro for 22 years and have had a full and enjoyable life with it.  So, we will help you learn how to work around fibro.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia and you will learn a lot. 
 
It's important that you have a doctor that believes in fibromyalgia.  Many see a rheumatologist, but I see a board certified Internist.  He can take care of all my health problems.  It will be trial and error but you will find what works for you to help control your pain.
 
You do need to keep moving with fibromyalgia.  If you sit or lay too long, you will be stiff as a board.  Gentle exercises (found in Fibro 101) and light exercise does help with the pain.  Walking is my form of exercise.  Water exercise is good too, if you have access to a pool.
 
Be sure to read back posts.  There is a world of information in them.  Also, ask questions.  We are here to help you.  I'm so happy that you joined us and I hope to hear more from you soon.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 6/23/2009 5:31 PM (GMT -7)   

Hey Garth,

A few years ago I was told that I had a birth defect on the right side of my brain. Dr said the same thing that it was no big deal.

It makes me wonder if this isn't related in some way though.

Veronica


DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


[emo shaman]
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/25/2009 8:57 AM (GMT -7)   
Thanks to everyone for all the welcomes to the forum!

To ladybug: Wow, you too? Is yours located in the white matter of the brain? That's where mine is located..Seeing as what I know about that part of the brain it just seems like it would make sense if they were related in some way.

To Sherrine: You've had fibromyalgia for 22 years? Holy crap, that's how long I've been alive. I'm sure treatments now are much better when they were when you were first diagnosed. It was hard for me to get the diagnosis, due to all my mental illnesses, and the belief that my pain was supposedly just psychosomatic. I may hallucinate quite often, but pain is 100% real for me, not just 'all in my head' like doctors and family have assumed at first. about the exercise thing, lucky for me I do have a pool at my house, (LOL I'm not rich, it's an above ground pool that came with the house when my grandpa bought it in '92) and it's been one HOT summer, so the pool's been above 80 degrees so I've been swimming every day. I also do alot of walking, but I notice after long walks my legs lock up and have excessive pain in them, especially in the left leg. Swimming is the one thing I can do without hurting afterward, and it does wonders with my asthma as well. When I can't get outside due to weather reasons, I try to keep up with exercise by working out on my grandpa's bowflex. The thing works great, and if I don't set the weight to high, my muscles don't get strained to the point of intense pain, just worked out. It also helped me lose about 50 pounds that I had gained from heavy duty antipsychotics in less than a year. I do notice extreme stiffness on the days I feel too unmotivated to exercise, and those are the days I end up sleeping all day unfortunately. I try to force myself up on those kind of days, but sometimes it is quite difficult.

To crazyoldcatlady: First thing, love the username. Though I'm allergic, I love cats and have two myself. =) But yeah, it's nice knowing I'm not alone in this and having support..My fiancee is quite supportive, but she can't relate so there's only so much she can help me with. Before my diagnosis, the pain and everything else was just wearing me down so badly mentally, and got me to the point of my depression leading to desperation of getting out of my situation in an unwise way. But, if it weren't for me doing what I did to land myself in ICU then in the psych ward for a couple weeks, I would have never gotten the diagnosis nor a solution for it that wouldn't get me in trouble. Maybe everything really does happen for a reason, because now I feel as if I'm heading on the right direction, and I have more of an understanding of what's wrong with me.
It starts with a canvas
A starchy, blinding white.
Then comes the flash of illumination
And the tools to record the plight.
So I begin drowning the surface
With a swamp of acrylic swirls.
I'll get it right this time.
This time it will last.


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 6/25/2009 12:20 PM (GMT -7)   
Emo I don't remember excatly what all DR said but he did say something about my memory, or at least that's what my ex husband said, which is funny cause I remember all the bad things that ever happened to me but not so much of the good. I was in a fog I think that day. All my DRs that have MRI's since then have freaked out thinking at one time it was something they were going to have to operate on due to thinking it was a antirusim( Not sure of Spelling) all the way to I have had a mini stroke.

I was great speller as a child can't hardly spell any more since this illness has taken over.

Hope you are feeling better.
Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 6/27/2009 8:53 AM (GMT -7)   
Hi Garth and welcome. I only knew of one person who said she had fibro before I was dxd and as it turned out she had dxd herself cause of her aches and pains so I was very devastated when I researched fibro and knew my doc was right and that is what I had. I knew something was wrong but figured it would be something I could take a few pills for and be back to normal. I think that has been 6 yrs ago. I was one of the lucky ones that didn't get it til around 50. I still get frustrated cause there is still so much I want to do in my life and my mind goes at a 100 miles an hour and the body just creeps along like a snail. smilewinkgrin
 
Read and ask questions and we will be here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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