What's your fibro feel like for you?

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BeckyR
New Member


Date Joined Jun 2009
Total Posts : 12
   Posted 6/24/2009 9:27 AM (GMT -7)   
For me it feels like I have the flu x's 10,000 on bad days and the flu x's 100 on good days.   It hurts so bad.  Just a constant ache and flu like feeling.  It also feels like I'm running a low grade temp and when I take my temp sometimes I am and sometimes I'm not.  I don't want to move or be touched.  I can't even watch TV during bad flares.  Watching the actors run around hurts.  I have to watch a show where there's no fighting or people getting hurt.  I know it sounds strange but it's true.  When I'm on my period the cramps are insane.  I've never had cramps like this before.  In the mornings I'm so stiff I can hardly move.  I feel like my 70 year old mother and I'm 33.  I keep working because I have to.  If I could I'd quit in a heartbeat. 
 
I'm just curious to know what it's like for you.  I know it's different for everyone.
:) Becky
 
Psuedotumer Cerebri Jan 08, Fibromyalgia May 09
 
Diamox, Metformin, Amaryl, Nexium, Lyrica, Darvocet


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/24/2009 10:05 AM (GMT -7)   

Hi Becky, sounds like you are having a hard time.  Hope that this is a flare and will get better for you. 

Sometimes I just feel like the regular flu: achy all over, extra sensitive skin, feeling feverish without a fever, lethargic.  Sometimes I hurt a lot all over and cannot get comfortable no matter what I do.  Pressure anywhere on my body hurts because it feels like there is a giant bruise under my skin all over my body.  The fibro points whatchamacallits hurt way worse.  Somedays I feel pretty good and have mild pain that is tolerable.  Then, for no reason, bam! it will hit me.  Usually that happens when I am out doing stuff like shopping or walking - walking fine one minute - walking like a 90 yr old woman the next.

Sometimes I am exhausted for no apparent reason (except fibro).  Sometimes when people talk to me if feels like the ideas have to get through thick pea soup to reach my brain.  I hear words words words, what do you think?  I brain grasps for a thought and it is not there. 

The other day I had fog pretty bad.  I was (still) working on my thesis and it wasn't going so well.   When that happens I write whatever word I come up with and highlight it so I can go back and fix it later.  For some reason, I was able to think of the words circuitous and indicitive, which is pretty random.  But when my husband asked me where I wanted to go for icecream, I had nothing but blank space! smilewinkgrin

Sue


Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 6/24/2009 10:05 AM (GMT -7)   
Becky,

On a normal day, I want to sit down and cry. The weight of my clothes is uncomfortable and the thought of putting my feet on the floor makes me cringe. On a bad day, I want to scream from the pain. Those are the days that my children can't even give me a hug cuz the thought of someone touching me brings tears to my eyes. I get that full body muscle burn. Like the day after I ran a marathon kinda burn. I have that burn all day everyday and on the bad days it's a burning and aching in my joints.

Heather
Love many, trust few, always paddle your own canoe!
 
dx's:  not sure anymore
 
meds.:  none at this time
 
 


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 6/24/2009 10:54 AM (GMT -7)   
On bad days, I'm extremely sensitive to light, noise, movement, temperatures and touch. I feel achy all over and I have a weird headache. Tender points in my inner elbows and knees tend to throb. My feet hurt. I may have anxiety and/or IBS, or a low grade fever. I'm best being left alone in my house, my dog nearby.
"...All shall be well, and all manner of things shall be well."
Julian of Norwich


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/24/2009 11:46 AM (GMT -7)   
For me, fibro feels like I have been hit by a mack truck on bad days, and on good days I only feel like someone has hit me a few times with a baseball bat. On my bad days, everything hurts. It hurts to move, it hurts to pick up my son, it hurts to do anything but lie around, and even that hurts. On good days, I feel a little better. I can move around and I can carry my son and stuff like that with only mild discomfort. I am always tired, whether it is a good day or a bad day, but I have a little more energy when it is a good day. When I am in a whole lot of pain, I do sometimes run a low-grade fever.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 6/24/2009 12:25 PM (GMT -7)   
On my good days, I only need 2-3 vicodin. On my bad days, I need 3-4 vicodin, 2-3 oxycodone, 3 flexiril. Isn't that horrible. Its not just the fibro, I still have pain in my hips from replacements in 2005 & 2007. I often feel like a druggy. Am I? I would say I am dependant, not addicted.

I also feel like a mac truck hit me on my bad days. The hardest thing for me to do, is unload the dishwasher. Its really weird how loading it isn't as bad.

All in all, I would say I am doing not bad. I like to talk myself into feeling good. It sometimes works. Good luck to you.
Maggi
 
anxiety, avascular necrosis, costochondritis, depression, cfs, hypothyroidism, fibro, gerd, thyroid, uc, crs(can't remember crap)
 
in trying times, don't quit trying          
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 6/24/2009 3:48 PM (GMT -7)   

Becky, I always have pain in my back, shoulders, and neck.  Right now you can add my upper right arm, fingers, and left foot.  Each day is a little different for me.  I keep the pain under control.  I don't wait until I'm miserable before I take my ibuprofen.  That's important for me.

You mentioned you don't want to move.  Not moving can make the pain worse.  That's why we are soooo stiff in the mornings.  We've been lying in bed all night.  Try the stretching exercises in the Fibro 101 thread.  They really do help.  Also, walk, get up and walk around every few minutes if you can.  That helps to keep the muscles more flexible.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 6/24/2009 4:22 PM (GMT -7)   

Like trolls beat me all night with a meat mallet. But there are good days and on those, I feel like I just got whacked a few times with soup ladle.

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 6/25/2009 1:57 AM (GMT -7)   
Donna, reminds me of the migraine commercials where a little creature attacks the person's head. I always think that the creature is much too small. Did anyone ever read the other Dorothy and the Wizard of Oz books? Baum wrote several. In one, there is a princess who can change her head. She keeps a room full of heads and when she tires of one, she takes it off and puts on a different one. I sometimes wish I could do that.
Sue

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 6/25/2009 5:45 AM (GMT -7)   
Sometimes like the goblins from Lord of the Rings are drumming constantly on all of my bones.
Sometimes they only drum on my hips or ankles.
Sometimes I can't to anything more than lay in bed and shake.

evolving
Regular Member


Date Joined Jun 2009
Total Posts : 24
   Posted 6/25/2009 10:00 AM (GMT -7)   
becky.... are you on any meds at all? my meds do help...but i do still have those days when i just get so down from feeling so miserable. im so glad yall are here...God bless all of you......

BeckyR
New Member


Date Joined Jun 2009
Total Posts : 12
   Posted 6/25/2009 11:12 AM (GMT -7)   
It's amazing how different it is for everyone.  I was having a bad flare the last 2 days and yesterday it felt like I got sucker punched in the gut.  Don't know what that was about.  I'm on Lyrica.  I don't like it though.  I'm gaining weight and it makes me feel high.   I'm trying Gluten free and I'm going to see Dr. St. Amand.  Oh I also see a chiro 3 times a week who has made me able to sleep through the night.  He'll be starting the fibro therapy on me probably next week. 
:) Becky
 
Psuedotumer Cerebri Jan 08, Fibromyalgia May 09
 
Diamox, Metformin, Amaryl, Nexium, Lyrica, Darvocet


allspicepepper
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/25/2009 3:32 PM (GMT -7)   
My flare up has been the last three days. With work i hate, housework and repairs, gardening, making all the bills, and have all my top teeth pull in a couple of weeks have made me really tension so my fibro has really act up. If I could quite my job and just make end meets then I could keep my flare up to a low. With meds it helps a little but the shots I get a couple times a year helps the best. But its not time for one yet.

Lefty85
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 6/25/2009 6:04 PM (GMT -7)   
On my worst days, every inch of my body hurts. My muscles get so stiff it's difficult to even move. I feel exhausted and like I'm running a fever. I get sweats and cold chills constantly. Sometimes I also feel really sick to my stomach and it will cramp up. The pain is the worst in my back, neck, shoulders and hips, and also down the backs of my legs. On the better days, the worst pain pretty much contains itself in my back, and I can function fairly normally, as long as I take it easy. Everything affects my fibro. Any change in the weather makes it flare up, it gets worse as soon as the sun goes down, and whenever I have my period it is about 100 times worse. I too also work full time, because I don't have any other choice, and also because I want to have an obligation to keep me moving every day (or at least as often as I can manage).
Fibromyalgia, Depression, Anxiety
***********
Amytriptiline, Flexeril (PRN), Percocet (PRN), Ambien (PRN at bedtime), B12
***********
Be not afraid of going s l o w l y, be afraid only of standing still.
 
 
 
 
 
                                                                                  


Bootknife
Regular Member


Date Joined Apr 2009
Total Posts : 44
   Posted 6/25/2009 8:14 PM (GMT -7)   
On good days it feels as if I am 96 years old with mild dementia,tremors in arms and hands, burning pain all over my back, and sciatica down my right hip/leg requiring a cane to walk and stay upright for any distance.

On bad days (Usually lasting several days/weeks) the burning pain is all over. It is as if a mule kicked me in the back and sent me over the rail fence, only to find the fence was for the bull pen and the bull decided to trample me for invading his teritory and hooked his horns under me and tossed till I ended up over the fence again, resulting in added pain the feels like he gored me as well several times.

The bad days increase the incoherency of my comunication and comprehension to laughable levels. And the pain left by the bull and mule leave me with the "Shock" felling of central and peripheral numbness and coldness that you get after a physically traumatic event.

I think I'll start drinking my self to sleep during these times. :-)

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 6/25/2009 11:20 PM (GMT -7)   
I have been in a really bad flare this week, my worst since our below-zero winter temps. On my good days, I feel calm, alert, perhaps stiff for a few hours in the morning, and am able to pace myself. I will have eaten something for breakfast and at least one other meal. On a bad day, I have to take twice as many meds. On a really bad day, it feels like my body is breaking down. I feel like I'm a mole in Whack-a-Mole and my head hurts. All the little buttons of spine at my neck, all the way down, hurt and burn, can't have anything touch them (no bra! oh, no). Even though I am well-padded, it feels like those bones plus my hips and knees and elbows are about to poke out thru the skin when I lie down. If I try to sleep, everything hurts. I am taking meds but they have plateau'd this week for some reason. I just sit and cry when it hurts the worst, when it feels like a giant is squeezing my bones. Then the pain will feel like St. Elmo's fire spreading across my skin, or electric needles jabbing and burning. I know the pain will ebb and flow, and I will be able to eventually make myself move around a little again, but sometimes I just can't. I am fearful that when I speak I will babble. Tonight I feel like a poorly-assembled bag of human parts, wandering the house in a fog, joints and pieces being tightened and squeezed enthusiastically by an invisible giant. I can't have the dogs or cat on me because it is too painful.
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