I'm no doctor but it sounds like fibro to me. You have had all the extensive testing we all have been through and are experiencing typical fibro symptoms. Even after numerous expensive and repetitive tests, that all came back normal except for some spinal stenosis and compressed vertebrae, the rheumotologist I saw fifteen years ago was still reluctant to diagnosis me with fibromyalgia even though I levetated off the table when she pressed on the trigger points. On my dx sheet she wrote myofascial pain/fibrotitis which I guess was what the call fibromyalgia back then. However, she confessed she wasn't sure this condition existed. I have since found a doc that takes it seriously...which is half the battle. Not everyone jumps a mile in the air when the trigger points are manipulated. Some are not sensitive to them at all...or are on one day and not the next. I have a friend on disability for fibro and she only has two tender points.
This is an insidious disease and everyone is different. Again, I'm in no position to dx you, but our symptoms sure do sound like mine!
Hi, Sayyadina, and welcome! Some people are very sensitive and practically jump off the table when the areas of tender points are touched. I didn't. But there are times where I'm more sensitive.
Keep a journal of what you do and how it affects your body and take it to your doctor, when you find one. Make sure they believe in fibromyalgia. There are some doctors that don't. Your symptoms are very much like what we are suffering. I hope you get to the bottom of this soon.
Be sure to check out the Fibro 101 thread and read back posts. There is a lot of good information in them that could help you out.
I'm so glad you found us and joined in and I hope to hear more from you soon.