I'm New - And Tired of Being in PAIN!!!

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Tired of Pain
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/25/2009 9:31 AM (GMT -7)   
Hi everyone!  I was diagnosed a year or so ago with fibromyalgia but figured this was a "catch-all" phrase for people who always complained of pain.  I have disc degeneration in my back and have had lower back surgery in the past and two cervical fusions in the last 10 months.  I'm only 36.  I also have a Chiari I malformation of the brain although I'm assured this is not contributing at all to my symptoms.
 
There is not a day that goes by that I am not in pain - my hands, legs, neck, back, arms, jaws.  Everything hurts - ALL THE TIME!!  I am usually very active - I have two children, three step-children - 15, 14, 13, 13, and 11.  I play softball when I'm well.  I walk my dog everyday.  I have a full time job.  I have a big house and have just hired a cleaning lady as I can no longer do it by myself.  I notice everyday that I lose some sort of ability.  Like last night - I went to the grocery store and had to ask my husband to stack the cans of dog food.  I just couldn't do it.  Unless I'm using a heating pad and taking Percocet (which I limit to 5mg at night only) and 2.5 mg of Valium at night, I am in pain!!  And, I only use those medications so I can sleep through the night.
 
I guess I have to accept that fibromyalgia is my diagnosis although I worry all the time that I have ALS or multiple sclerosis or something like that.  My uncle died of ALS.  It scares me terribly.  So, I'm here to vent, share, cry, complain.  I'm angry!  I'm discouraged!  I'm in pain!  And, I just don't know how long I can keep my happy face on!  I feel like it's starting to win!

noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 6/25/2009 9:57 AM (GMT -7)   
I hear you, and I feel for you. Welcome to the one place that everyone knows just how you feel. I joined 2 weeks ago, and its the best thing I did.

It sounds like you've got it all, and with five kids you have your hands full. I was angry also, after I got thru denial. Are you on other medication, like Lyrica or Cymbalta? Do you have a good dr. that listens to you?

I used to play softball also and I loved it. Get a load of this: I was playing 2nd base, I am right handed so my glove was on my left, a fly ball comes at me, and for some reason I jumped and raised my right arm, well my arm didn't come back down because I dislocated my shoulder. Oh geez the pain was terrible. That ended my softball career, and also started my fibro. That was 2003 and I haven't been right since.

We all have stories, we all listen and give our feedback. So share, vent, complain, cry and even stomp your feet, if you can. We are here 24/7 and we all can relate.

Again, welcome, and don't be shy.
Maggi
 
anxiety, avascular necrosis, costochondritis, depression, cfs, hypothyroidism, fibro, gerd, thyroid, uc, crs(can't remember stuff)
 
in trying times, don't quit trying          
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 6/25/2009 10:02 AM (GMT -7)   
Hi, Tired, and welcome.  Yep!  We are all tired of pain but it does come with the territory, unfortunately.  But, you can learn how to control the pain, with the help of a good doctor, and live a full and enjoyable life with fibro.
 
Find a doctor that believes in fibromyalgia.  My doctor is a board certified Internist that is affiliated with a medical school.  There are other good Internists and rheumatologists that can help you with the pain.  They will do testing to rule out these other illnesses.  You see, fibromyalgia mimics other illnesses and so they need to be ruled out first.
 
I use ibuprofen with food and extra strength Tylenol to help me keep the pain under control.  I still have pain but I'm not woozy from medications.  I also use malic acid/magnesium supplements and take Vitamin D3 to help with the pain and fatigue.  These vitamins and nutrients can be low in people with fibro.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibromyalgia, including a link all about malic acid/magnesium supplements, and a link called What Else Could It Be?
 
I'm so glad you found us and joined in.  Read back posts and ask questions.  We are here to help you.  I hope to hear more from  you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Tired of Pain
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/25/2009 10:10 AM (GMT -7)   
Thanks for your response! I understand the whole injury thing - I'm the Injury Queen! Broke my right elbow sliding into third base, broke my left hand catching a football (needed surgery!.) I've had left arthroscopic knee surgery, lower back surgery from breaking my coccyx bone. I could go on and on. But - none of those stopped me! I tried Lyrica - could barely walk! Right now I take Lexapro (I've been on that for years,) Topamax (headaches,) Vitamin D (2000 Iu daily,) Percocet, and Valium. I was on Baclofen prior to my last neck surgery but they stopped that and added the Valium. My doctor is great, but I would love to find someone who truly specializes in this. I live in Baltimore so I have Hopkins practically in my backyard! I would think they have someone. I'll go anywhere! Something has to give!! Again - thanks for listening. I feel like I'm losing my mind!

Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 6/25/2009 10:29 AM (GMT -7)   

Hi T O P, and welcome to the family! I am so sorry you are having such a hard time right now.I was dx in '06, but I believe I have had this since I was a baby. It is very upsetting when you get this dx and not quite sure if they are correct in the dx. You have some things that run in your family, have you told your dr about them. The drs usually test everything else to eliminate the other possibilities, before they say Fibro. Sometimes it is just hard to accept this dx, but when you do THEN you can start making decisions of how to help yourself.

I actually brought my suspicions to my dr, had a hard time trying to convince her to have me tested. Finally she agreed and Fibro is what the rheumy told me. I have a lot of illnesses on both sides of my family, not to say I won't get them someday, but right now the Fibro and other 'fun' stuff are enough to keep me busy.

I put myself thru college, worked as a teacher, raised three children, volunteered at my church for many yrs., took my children to their activities, work, school, etc., took care of my mother and her affairs, ALL w/ my happy face on. It finally got to the point, I had to back off on too many things I had to do. I just can't do all of them. Ppl thought I could handle anything, so did I. I have had to try to pace myself, I had to quit working. I am not up to that pace anymore. I miss it terribly, but I was spent after class. I had nothing left to give to my family or ME.

Many of us have had to stop working, some are working, raising families, trying so hard. We all understand what you are going thru. This is such a good place to come and feel safe, we all vent, share, cry, laugh - YES, laugh. You will share w/ us and we will share w/ you. I believe we all help each other.

I used to do the groceries by myself, take my DM, pack her things,bring them back to her house, then go home and put my away. I ended up having to bring one of my children w/ me to help, now they have to drive me and pack and unload. My arms can't hold items, let alone bags. I do my exercises every day to try to build up strength, but that is where I am at. I keep trying, b/c I'm not ready to give up everything.

I am in pain everyday, but each day I try to do my stretches, rest w/ my heating pad, or bed buddy. I drink a lot of water. I have no rx pain meds, I use Tylenol for Arthritis. It isn't easy, but I'm not ready to give up.

At the top of the 1st page is a thread called Fibro 101, read it if you haven't already. There are a lot of good topics there, compiled by several of our Mods, the articles are very helpful. Pls ask ???, vent, share, read back posts. The ppl here are very kind and generous w/ info and understanding. And again, Welcome to the family.

God bless.  Alice.

 


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/25/2009 10:48 AM (GMT -7)   
Everyone here sure understands what you are going through. I have been diagnosed for almost a year now, and there are days when I just can't take it anymore. And then there are other days where I just accept that I have this condition and I try to do what I can. Fibromyalgia is all about balance. You need to balance your time between being active and resting. You don't want to overdo it because that will just cause a bad flare.
I envy that you have a cleaning person. I wish I had one. Having one will certainly take some of the load off your back, which will be very helpful. Just hang in there. Come here to vent all you need to. There are a lot of great people here. We all understand what you are going through. Good luck to you. Just hang in there.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


Tired of Pain
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/25/2009 1:20 PM (GMT -7)   
Thanks everyone for your thoughts! I'm learning alot! Alice, it's funny you say you've had this since you were a baby. I remember being a little girl and always being in so much pain - especially my arms and legs/hand and feet. My doctor was always saying I had "growing pains." Well, it made sense since I'm 5'10" and seemed to always be growing. I wonder?!? But, other than being tall, I'm very average - not overweight, rather slim - athletically built. Since I'm work, I'll have to spend more time on here this weekend and learn some new things! Again, thanks for your support!

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 6/25/2009 1:48 PM (GMT -7)   
There is a weekly chat every Thursday night. It's at 9 est. time. I don't know what that translates to to where you live, but it is a nice way to meet the people here and talk with them live on issues that are bothering you. It's a lot of fun, at least for me, to talk with people live who know what I am going through.  
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/25/2009 5:34 PM (GMT -7)   
Hi and welcome to our oasis in a sea of pain. Sincerely...I am glad you have found us. This is the one place I can come and know that others understand and care...truly!

Also, everyone here has felt your frustration and fears, the pain and hopelessness, but we just keep pushing on in hopes of a better treatment and, Heaven be Blessed, a cure! It isn't out there yet but hopefully one day it will happen. We're here to hold you when you are down and know that you will be holding up the next new person as they come to join us.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 6/27/2009 8:16 AM (GMT -7)   
Hi Tiredofpain and welcome. I've had this for years and I still get very frustrated with my body when it can't keep up with what my mind would like to be doing. smilewinkgrin You have a lot on your plate with a job and 5 children. I hurt to some degree everyday but it is the fatigue part that gets to me most days. I'm not on narcotics, I take 4000 mg of tylenol a day and 100mg of amitriptyline, which helps with the pain.
 
I'm glad you found us you will enjoy all the help you will get on here.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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