what kind of doctor?

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holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 7/1/2009 7:13 AM (GMT -7)   
Ok, so long story short, two and a half years ago I was in a car accident. A few weeks later I began getting horrible migraines. I was constantly in pain. I also had neck and shoulder pain. I saw plenty of doctors, my primary care doctor, a migraine neurologist, chiropractor, neurologist (who as a jerk), and a Pain management doctor.  I had multiple spinal injections, chiropractic care, massage therapy, physical therapy, medication, and more.  I had been told I had Disc Degerative Disease (mild) and Whiplash. Once I was done with these treatments, my doctor diagnosed me with fibromyalgia. She didn't run any tests, but felt that my pain ws muscular, so she put that name on it. I am still to this day on Ultram, which is used to treat the pain.
 
 Really the only thing that actually helped was time.  The pain became less severe and less often, though I still get flare ups. It's hard to tell what causes flare ups. I know the change in weather can cause it, and my monthly period can as well. Sometimes sleeping in the wrong position causes it, sometimes it appears for no reason.
 
Well this last flare up is a doozy. I am on my 8th day of terrible pain and can no longer take it. usually my flare ups will last up to three or so days, but over a week? That has not been the norm.
 
I can feel the pain and pressure in my neck. Almost like a burning pain. It hurts to touch and it hurts just sitting there.  It honestly feels like nerve pain that's deep inside. My neck and shoulder muscles are sore as well, so I keep my massage pillow on them periodically, along with some heat. Then I've got the horrible, tension-like headache as a result of the neck tenseness.
 
My question is I am about ready to see another doctor. I have given up hope for too long. I still get pain and I am tired of masking it with medicine, I want to try at it again to see why I keep hurting and fix it. So what type of doctor should I seek out for help? A rheumatologist? An orthopedic doctor? I have no idea. I feel like I have muscle and nerve pain in the neck/shoulder area that causes the headache.

honeybaby
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 7/1/2009 8:13 AM (GMT -7)   

I too have been having the same problems with neck pain, headaches that are caused by the tension in my neck and the middle of my upper back... I have been going the the chiropractor and it feels good and soothes it some, but within the next few days the pain comes back. I know I have mild scoliosis so that may contribute some to it but other than that I have no other explanation than Fibro.

I don't really have any answers for you. It may just be residual pain that flares up at times from your accident. I have an old ankle injury and every once in a while it flares and I can't walk on it for a few days. I am sorry you are having such pain. I understand the frustration of not knowing what the deal is. Did they x-ray the area, and do nerve tests on it? I hope you find an answer but there really may not be one.

One more thing, do you really believe you have fibro? If you know you do, and don't just think the doctor labeled you with it for loss of any other ideas, then the pain really could just be fibro pain. Which, by the way, really sucks. Good luck!!

 

Marci



 
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IBS, Fibromyalgia, Anxiety
 
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There is a time for all things under heaven...


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/1/2009 8:22 AM (GMT -7)   
I also have terrible pain in my neck and back. I haven't had any luck with chiro, massage, acupuncture, etc. What about seeing a pain management doctor? They will have lots of good options for you, some of which we've never heard of probably! I'm considering seeing one too. I also don't want to get involved with narcotics. Alternatives are needed!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 7/1/2009 8:25 AM (GMT -7)   
I have always had chiropractic care after car accidents - there have been a few. It helps me a lot and I don't know where I'd be without it.
"...All shall be well, and all manner of things shall be well."
Julian of Norwich


holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 7/1/2009 8:44 AM (GMT -7)   
honeybaby - The chiropractor didn't help for me with the headaches. In the very beginning, my occipital nerve was inflamed, and that was causing horrible pain, so horrible I didn't realize I had other pain in addition to that. They gave me a nerve block and that helped with that pain. That's when I realized I felt pressure on my neck. The chiopractor actually relieved that pressure instantly, but was never able to touch the pain for whatever reason.
 
They did do X-rays, which just found whiplash and mild DDD. The MRI came out clean, other than a tiny bone spur which the doctor said is not what is causing me such pain. But he didn't say what could be, just that I need to basically get over it because it's all in my head. No one ever did any nerve tests. That's the other thing though. I feel like my nerves are effected some how, but at the same time, I don't have any tingling or numbing sensations, so it's hard to tell. I just have this pain deep inside of my neck and head along with the shoulder and neck muscular pain.
 
As for as the fibro, I just don't personally see that as what I have. I am not fatigued or anything like that. I just have head, neck, and shoulers. No other body aches of any sort, none of the other symptoms typical of Fibro.
 
Ginny - I did see a Pain management Doctor for awhile. I tried a few spinal injections, even did the rhizotomy, where they shock your nerves, or whatever it's called. None of that worked. Now, I will admit that the trigger point injections did work wonders for the shoulder pain. But that was the most painful procedure I have ever done, and at $600 a pop, I just couldn't get myself to do it. Plus it only helped the shoulder pain and not the head and neck pain since they can't do it on your spine.
 
I take the Ultram which is for the muscle pain of Fibro. It's hard to tell if it works. I am supposed to take Cymbalta, which is an anti depressant that also treats nerve pain, but I don't feel it does anything for me. I have taken vicoden before, but right now it's tylenol with codeine, when it's really severe. But no narcotics have ever really masked the pain.
 
Bella Scarlett - I am so glad the chiropractor helps you. I truly believe they can do wonders for people, unfortunately it didn't help me much. I am however, thinking of trying again, with this flare up.

honeybaby
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 7/2/2009 7:18 AM (GMT -7)   
I am at a loss for what to tell you. You must be getting frustrated, I feel for you.
 
So, you have tried muliple doctors, maybe try an internal doctor, mine is very good and she works until she finds an answer. You might also give a different Neurologist a try. I had several tests run a few years ago on my nerves to determine how the were working, the response from them... I think the Neurologist you went to should have tested you more. If it is a nerve problem then these tests could possibly find an answer.
 
No pain medications help with my pain either. It like they can't touch the area. Very strange. Also, bone spurs do cause pain, I have several in my ankle and they HURT. I wouldn't think that could  cause all the pain that your are having, but it could be causing some of it.
 
 I hope that relief comes your way soon. Have a good holiday!
 
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IBS, Fibromyalgia, Anxiety
 
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There is a time for all things under heaven...


noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 7/2/2009 9:19 AM (GMT -7)   
this is my story exactly! I have been seeing a PMR(pain, medicine rehabilitation) dr. I have been getting botox injections but I'm not 100% positive they work yet, I have had 3 rounds of injections. After about 3 weeks I need to get trigger point injections. My dr really wants to inject steroids also, which I know will help, but I already have avascular necrosis from steroids, which was mostly from prednisone, anyway, both of my hips have been replaced since.

The trigger point injections, I get them in my neck and shoulders and they really calm the pain. If you want a liitle more info let me know. I must say that my dr did not dance around my pain or prognosis, which was very refreshing for a change.
Maggi
 
anxiety, avascular necrosis, costochondritis, depression, cfs, hypothyroidism, fibro, gerd, thyroid, uc, crs(can't remember stuff)
 
in trying times, don't quit trying          
 


kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 7/3/2009 12:20 AM (GMT -7)   
Well you could be talking about me, as for the pain when I was at the pain clinic they asked me how I controled the pain and for me the answer was a soft neck brace I only use it when the pain is bad. Also when we suffer pain we tense up so I now have my hands behind my back when the pain gets bad this makes us drop our shoulders down thus releaving the pain.
Kathy
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