14 year old daughter officially diagnosed w/ FM.

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lettuce
Regular Member


Date Joined Jun 2009
Total Posts : 78
   Posted 7/2/2009 9:08 AM (GMT -7)   
Good News?!!  My daughter saw the FM doc & the diagnosis is official.  She does have FM.  We feel relief finally knowing! Thank God for an answer! She is also relieved! This was the 7th doc she's been to since Nov.  We feel she's had it since age 8!  She was put on Cymbalta 30mg 1x daily by doc #6, he left town.  The new doc increased her dose to 60mg 1 x daily.  It's just been 2 days, so we'll see how she does.  The doc asked her what on her body does not hurt & she said her face, then she smiled.  She will be put on a 504 plan for school this fall,  she will succeed!   Thanks to everyone for your hugs & prayers.  I'll keep posting her progress. 

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 7/2/2009 10:26 AM (GMT -7)   
It stinks that she has FM, especially at such a young age, but at least she has a diagnosis ... it is such a relief to actually have an answer to the problem, even if it's not necessarily a good one. When I was describing my symptoms to my doctors I kept feeling like singing "Head, shoulders, knees, and toes." or I would tell the doctor, "How about I tell you what doesn't hurt ... it's a shorter list."

Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 7/2/2009 7:20 PM (GMT -7)   
She will do ok as long as you keep up your positive attitude. I've had this my entire life from as far back as I can remember at age 3 and I have had three children, gone to college and run a successful wedding cake business. If you can, steer her toward a type of job that she can do at her own pace so on bad days she can take it a bit easy and on good days she can get lots done. Carry on!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 7/2/2009 11:09 PM (GMT -7)   
I'm so happy you finally have an answer and the beginning of treatment for your lovely daughter. It is heartbreaking to see your children suffer but at least you know what you are fighting. I truly believe within her lifetime there will be a revelation as to what causes this miserable disorder and hopefully a consistent treatment and/or cure.

Hugs to you and your 'baby',
Chutz
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

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If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
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Hello~Kitty
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Date Joined Jun 2005
Total Posts : 610
   Posted 7/3/2009 12:23 AM (GMT -7)   
I'm starting to be comvinced that my 9 year old son may have fibro too. He's always complaining of pain in different parts of his body all the time and sometimes seems fatigued. He also complains of lots of headaches and stomach pain and he has depression and anxiety. But he also is a very active boy, I call him my monkey boy cause in a blink of an eye he'll be 30 feet high up in a tree lol. So it could just be muscle pain from all his activities, but I dont know abot he depression and anxiety and headaches...I guess I will just keep an eye out if he gets worse.

-hellokitty

Chronic Pain Moderator

Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.

meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."         -Mother Teresa


lettuce
Regular Member


Date Joined Jun 2009
Total Posts : 78
   Posted 7/3/2009 9:25 AM (GMT -7)   

     My daughter was always active.  She climbed trees & ran around on her hands & feet because she was either a lion or a horse.  I always thought it was odd that she had muscle aches as a child.  One main thing that tipped me off was that she never had the stamina that other chilren had, she would run around but sleep for 2 days after having 'too much fun'.  I feel she may have had this since she was 8 or earlier, thinking back.  I would try to tell doctors this but no one would listen until now.  In Nov I had a doc tell me that's how teenagers act. I couldn't get across to him that she was like this as a child also.  Thank God for a diagnosis.  She seems so happy now,  I think it's because people will "believe" her, now that she has a name for it.  Sad but true huh?  I hope you find answers for your son.  

     As far as a career goes for her, she wants to be a cosmetolgist.  She is so good at giving massages also, very strong hands.  She knows what she needs & can do that for other people.   She's a very sweet person who is strong & knows what she believes & wants in life.    She is a problem solver & looks at things differently.  She knows how to block out the teenage girl drama with friends.  She's a very special person.  She will succeed.  All the school trouble is just a bump in the road!

 Thanks to everyone for your care & input. 

 


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 7/3/2009 10:34 AM (GMT -7)   
I'm so glad to hear that you guys finally have an answer. I feel sorry that your daughter, who is so young, has this illness. But, now that you all know what it is, you can actively seek the right treatment. That's what's important. Once you know, you are able to be treated correctly. I wish you both the best of luck. Keep us posted. And your daughter is also welcome to post on here anytime. We welcome all those with fibro, think they have fibro, and all their family members who need support and information. Welcome to the fibro family.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/3/2009 12:16 PM (GMT -7)   
I'm so glad you have the answer to her problems. Like Chutzie, I believe they will find the cause and cure for fibro before long or at least better meds to control it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
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Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 7/6/2009 8:12 PM (GMT -7)   
Congrats on the diagnosis.. so glad you found out what it was... officially

me and my mom.. figured that i probably had it since i was 14 or 15 maybe earlier..

i wanted to be a chef.. but after trying 2 or 3 times.. i had to give up because my hands are to sensitive to hot and cold.. i only wish i could go into the cake business..
but i have a hard time hanging on to things..
Diagnosed - fibromyalgia 2001
Meds  amitryptilene 20mg/day
 
 

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