I have no idea

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painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 7/3/2009 2:06 AM (GMT -7)   
Well its anoth night without sleep, but its ok, I watered the lawn and took some pills made some coffee, Im always wondering if Im going to have trouble getting SSD when I apply, I hate the government, skull   I hope every one is doing ok, most people are asleep I have no idea what to say so I think I will go watch TV, Its 2am here in Oregon.
Ed smurf

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/3/2009 4:19 AM (GMT -7)   
Ed, you need to stop drinking coffee at night.  You should have no caffeine after around 5 PM.  That includes anything with caffeine...like chocolate.  That could be keeping you awake.
 
Also, get on a sleep schedule.  Your body will be accustomed to that.  I am in bed by 10 PM and usually fall asleep shortly after.  I'm up by 6:30 or 7 AM.  I don't take naps, either, because I can't sleep at night if I do.  The only time I lay down in bed is to sleep and so my body responds to that.
 
The lack of sleep is making the pain worse so you really need to think about this. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 7/3/2009 12:08 PM (GMT -7)   

Sherrine, thank you very much for the reply, and I know I drink to much coffee, I go to bed the same time each night about 6:30 but most of the time I lay there wide awake or some times I go to sleep right away and wake up in 3 to 4 hours wide awake. I sleep on the couch and my wife has the bedroom, we dont sleep together ever. we have never had sex, its something I havent wanted for 10 years and she is ok with that.

We got married in Nov. last year we met on line and I moved her out to Oregon from Iowa in 2003 and a year later I moved her daughter out here, she was in a very bad relationship and I had been single for too many years. But we love each other and we have never had a fight we get along fantastic and now she works for the State of Oregon and the health bennies are great.

I will cut down on the coffee though, I bet I drink 3 pots a day.

Here in my town its going to get to 95* and she plans on working in the garden, NOT ME!!

Well I better go have a great 4th and take care of you.. smilewinkgrin ED 


Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 380
   Posted 7/3/2009 12:58 PM (GMT -7)   
Painter, for the SSDI, your best efforts on the paperwork and having a good primary care doctor that will document, document, document for you is what you need. (if you have specialty drs, the need to be in your corner as well.)

If the doctors do nto document how bad your disabilities are, then you do not stand a chance in SSDI court.

We battled with the dept of SS for so long! Their term of 'long' and my term of 'long' are two totally different concepts!

We put in for SSDI in Sept 07. We were turned down automatically. (This is horrible when there is only 1 income in the home and 'he' is the one trying to get SSDI) We both have fibro, but I have always been a housewife since we had children. (Except for working a little with cake decorating for 3 yrs.......now my fibro is so bad, I can't use my arms like that everyday.)

I finally wrote enough letters and had the paperwork of late bills to prove that we had a true financial dire needs and our case was pushed through to the judge in the SS court.

In Feb. of 09, we got a favorable decision. We started getting the monthly check in April and we are still trying to get the back pay. (The back pay is what we desperately needed to get caught up on the bills. I promised to pay some in May because we were promised a pay off on May 15, but so far, it has not been put in the bank.)

Make sure to keep copies of EVERYTHING that is sent in for your case. Make sure that you answers the questions in great detail. If it asks about your sleep....explain ad nauseam how today you might do this and then the next it is like 'this'.

If you have trouble with anything in personal care, that you add all the details of where you need help.

Over the time we were putting in MrP's paperwork, his skills degraded to me having to help him get up and out of the tub, some days he could not go downstairs, I had to prepare everything he consumed because he could not. I made sure that each new RX and each no skill lost was put down and documented with dates.

We are still battling the VA for help, but at least we have the SSDI that is keeping our heads above the water line.

painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 7/3/2009 2:29 PM (GMT -7)   
Thank you for the info, I know its going to be hard, I have missed alot of work and my employer has heired a replacement for me to train and at the end of this year I will be out of work the Im going to apply and see an lawyer some times Im in so much pain I can hardly walk and getting out of the car gets tuffer every time I drive Im not as bad as your husband but Ive been a painter for 40 years and at 60 I dont know what I would do for a job, no one would hiere an old man like me, so I will fight like hell.
Have a great day and thanks again for the info.
Ed

Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 7/3/2009 5:48 PM (GMT -7)   
Ed why don't you be a substitute teacher? As for walking why not carry a cane or crutches in your back seat so if you need them you have them. If I have a hard time walking around in the house when I go out I use my crutches.
What are you taking for pain? Take care.
DX:  Asthma   Fibromyalgia   Partially Blind


painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 7/3/2009 9:51 PM (GMT -7)   
Teacher,,,,,,, by the time I got out of collage I would be old enough to be on SSD. Im also blind in my right eye from an accedent that happend in 1957.

I take morphiene. nerontin, paxil, a pain patch, ambein, altenaloa. hydrchlothyiside, and rhe other I cant think of the name of it, I will let you know tomorrow.
Good night.
ED

Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 7/4/2009 1:41 PM (GMT -7)   
Ed
Look into your local school district where I am at all they do is a background check on sub teachers. But than again I teach in a inner city school on the East Coast and we need subs badly.

So how do you like being blind in your right eye? I have been blind in my right eye since birth. Would you believe I have actually had people tell I shouldn't be driving because of my eye sight. Such fools.

Have you had cataracts yet? I have had cataracts twice in each eye. It was very scarey when they had to be removed from my left eye, but now I only need glasses to read.

Happy 4th Everyone.
DX:  Asthma   Fibromyalgia   Partially Blind


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/4/2009 7:52 PM (GMT -7)   
Ed-
As I understand it everyone is denied the first time applying for SSDI. You have to immediately reapply. Other comments above are absolutely true re: documenting everthing. The system is awful.
Good luck. And i know it is hard to cut back on coffee, I have to also, but it really does help!
Rose
RoseCrone
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Fibromyalgia, TMJ dysfunction, Myofascial Pain Dysfunction, Chronic Fatigue Syndrome, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), major depression, going through a divorce to top it off!
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Ultram, Soma, Ativan, Lyrica (on and off), Armour Thyroid, Famvir, can't tolerate SSRIs or NSRIs.


painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 7/5/2009 3:56 AM (GMT -7)   
Yes the whole thing about ssdi scars the heck out of me. I have no idea on what to document or how to document anything.
Ed

Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 380
   Posted 7/5/2009 5:42 AM (GMT -7)   
You can go to the SS webpage for SSDI and apply online. You might be able to download the pages to fill out and mail in through the USPO.

Start with a daily log of what you can and can't do. Log your pain levels.

Have a medication page that is updated whenever you are given new RXs or deletes.

You will have to document each dr. visit..........what it is for and the outcome.

Mostly, they will want to know what you can not do. How your day is limited. The long hours that you sleep, verses being awake.

Do you have mental fog? How badly. How this curtails the activity that you do for your job now. (These are all things that you and your dr. need to be accurate on.)

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/5/2009 7:06 AM (GMT -7)   
Ed, I hope you slept better last night. I stop caffeine at 5:00 and I have a bedtime ritual and even my puppies know when it is 10:00 and bedtime. I also take xanax at bedtime to relax and help me sleep. I have to sleep with the TV on Nick at night and I know the voices of the old shows so I shut my eyes and listen til I fall asleep. This keeps my mind busy and stops it from going a 100 miles an hour. They are having fireworks here tonight and we are going to son's this evening so I will be way off schedule tonight. It rained all day yesterday so everyone had to cancel their fireworks.
 
MrsP, I think you should start a thread on how to get SSDI, you seem to have a lot of knowledge on this. I should have started mine in Jan and I still don't even have the paper work. I did ask my GP about it several months ago to see what he thought and he said he would back me 100% cause there is no way I could work. So I do suggest people talk to their docs first to make sure they are on board with them and will back them in getting it before they start. Why start all the work just to have your doc say they think you could work.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
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Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 7/5/2009 2:43 PM (GMT -7)   
Mrsppmrxky,
When you wrote about writing down each day what you can and cannot do...would this be an example?
Monday: Able: To get out of bed and fix breakfast for the kids.
Unable: To drive the kids to school because both my feet are numb.
Pain: Between 1 to 10 my pain level is an 8.

Do you need to write where the pain located at in the body?
DX:  Asthma   Fibromyalgia   Partially Blind


painter59
Regular Member


Date Joined Jun 2009
Total Posts : 83
   Posted 7/5/2009 4:27 PM (GMT -7)   
I see, I will start a writing things down and keep it in a note book. Thank you
Ed
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