Lots of pain!!!!!

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nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 7/5/2009 1:35 AM (GMT -7)   
I don't know what is going on! I have actually rested on Thurs. annd I should be rested but the pain I'm having all over is terrigle. It has rained a couple of days  this week and the pain is  terrible sllover. My doc says it's NORMAL. He doesn't have it sl how would he be really sure?I can't sleep because of a headache and my shoulder is hurting. I've been hurting since Dec. so what gives?
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
 
Find blessings in every day!
 


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 7/5/2009 4:58 AM (GMT -7)   

Hard to say- could be many things. Im also head to toe in pain at the moment, but its freezing cold winter here, and to top it off i have a raging sinus infection and a bronchial chest infection, which always makes fibro pain worse. i am so sorry you are suffering, you have some very painful diagnosis.

keep you in my thoughts, and sending you healing ((((((hugs)))))))) from australia-

Maz XX


                        Co-Moderator Anxiety & Panic- Depression
 
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, IBS, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia,
Low clotting factor= bruising. Tendonitis, Bursitis. Meds: Zoloft 150mg. Xanax 4mg. Celebrex. Mobic. Panadeine Forte. Digesic. Nexium.  Codeine Phosphate. Phenergan. Multiple surgeries- I bear the scars of my poor physical health.
Age:29. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 7/5/2009 5:00 AM (GMT -7)   

p.s love your quote: "find blessings in every day!" what a great, positive attitude. Thanks for sharing that!

Maz XX


                        Co-Moderator Anxiety & Panic- Depression
 
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, IBS, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia,
Low clotting factor= bruising. Tendonitis, Bursitis. Meds: Zoloft 150mg. Xanax 4mg. Celebrex. Mobic. Panadeine Forte. Digesic. Nexium.  Codeine Phosphate. Phenergan. Multiple surgeries- I bear the scars of my poor physical health.
Age:29. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/5/2009 7:45 AM (GMT -7)   
This is only my opinion and some may disagree but this could be your new level of pain or you could be in a long flare. I know fibro is not suppose to be progressive but I also have MPS and I know the knots in my muscles have spread pretty much all over my body since being dxd with fibro and MPS. I also have osteo arthritis which continues to get worse with age. I do believe with everything combined my new pain level keeps going up from where it was when it all first started. When the weather changes, which happens often here, a lot more places hurts than use to. I still find heat is my best friend for the pain, it is July 5th and I have my little heater on me this morning cause it feels good on my muscles. It has been cool and damp here.
 
Hope you find something that works for the pain.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/5/2009 9:02 AM (GMT -7)   
Nurse, rain brings on a lot of pain for me.  It's the barometric pressure changes that occur.  If we are in a "High", then I do feel better. 
 
I, too, have Myofacial Pain and gentle massages help me a lot, also.  I do take malic acid/magnesium supplements and extra vitamin D3 because these help me with pain and fatigue.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 7/5/2009 10:54 AM (GMT -7)   
Hi Nurse. 
 
Any weather change makes me hurt all over.  My worse areas are head, neck, "sits bones area"and always my shoulders.  I can feel fine one a day and the next day it feels like someone stuck an icepick in my shoulders.  There will be clouds in the sky or a wind storm and sometimes rain (although we don't get much rain here) when this happens.   Always a barometric change.
I also take the malic/magnesium supplements and I feel this helps with my fibro.  Heat also helps me.
 
I'm sorry you hurt so bad.  Hopefully the weather will change for the better.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 7/5/2009 11:05 AM (GMT -7)   
I have a ton of shoulder pain too. I can barely stir at all anymore. It sure gets old, doesn't it. Doctors often don't understand...it's sad. Today at church, I had someone ask me to help scoop ice cream for our ice cream social. Scoop ice cream?! I haven't done that in 3yrs.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), buspar, abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/5/2009 11:08 AM (GMT -7)   
Hi puppylover!!

I still just love your name...it reminds me of when I raised and showed dogs and those little puppies. Something about puppy breath that is so endearing. Oh, guess I drifted...well, duh!

I'm right there with you in the elevated pain department. It's my opinion that one day's rest doesn't always do much. Slowing down and/or changing lifestyle can help some people but that sure isn't easy to do. I'm at the head of the list when it comes to not changing things I need to and always overdoing it. Try to pace yourself, rest, and for my I have to walk away from situations that cause anxiety/tension/arousal of any kind. They crank up the pain like mad. I've beendoig a lot of lifting and working with my hands lately and I can barely type even with pain meds. Tried writing a very short note to my cousin the other day and after 2 sentences my hand/arm was in so much pain I was in tears.

But even though life stinks because of the pain we must focus on the good thinks in life. For me answering posts and trying to encourage others helps me feel better and also makes me realize there are others out there worse off then I am. Doesn't make my pain go away but helps my attitude. I also enjoy surfing around sites related to my hobby...quilting. I belong to a couple of quilting forums and that's fun. Join in our Koffee Klatches each day and make sure to come to Chat night on Thursdays. It's a chance to have some fun and visit with new friends. Or maybe, if the budget allows, go do some online shopping. I hate going to stores and buy gifts and other things online. I make sure I know the place before ordering but I've never had a problem. Christmas is down the road a bit so I'm nearing the time when I shop online for all the grandkids..great fun!

Take care and give the Goldens a love for me! Our girl, who just turned 12, is nearly totally blind. In the past 3-4 months she went from bad to seeing nothing. But she's doing well and learning how to maneuver well. She and I make a pair...lol

Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 7/5/2009 1:16 PM (GMT -7)   
Hi Chutz and all. 
 
I also think that reading these posts has really helped me in a lot of ways.  I feel so bad for some of the people who have so much pain and/or sadness.  Some of them sound so amazing with how they are coping.  It makes me realize that even though I have bad days it could be a lot worse.  I'm thankful that my meds and exercise have helped me.
 
Right now the hobby I have to help me take my mind off of myself is my Golden.  I'm trying so hard to get her socialized so she can become a pet therapy dog.  I set my alarm to get up at 6:00 this morning so I could go to early church and then out with Maggie to work on skills before it got too hot.  It's suppose to get around 110 today!.  Today we went to a small mall with outside elevators and we just rode up and down in them.  Maggie is very relaxed in them which is good because she will have to ride them in hospitals etc.  We also go to most stores, as long as they don't have food in them, to get her use to different sounds, machinery, people,etc.  
 
I wonder if people without pets think I'm a little nutso to be doing this. tongue    But if she can be certified I think that would be very rewarding to both of us.
 
Nurse, I sure hope you start feeling better.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 7/5/2009 1:29 PM (GMT -7)   
I hear ya on this one
 
I would have to disagree about fibro not bein progressive ... over the last 3 years I have been stuck in a vicious downward slide into worse and worse pain.  I would get better for a while,  then waaaay worse, then better but not as good as before, then ever more waaay worse.  I think some of that pattern might have to do with my job stress and the changes in bosses I've had though.
 
I'm in a lot of pain today too though.  I had to work yesterday and one of our co-workers had a bullet wound which was infected so we had to take him to the hospital which left two of us to do a 4 man job.

Joshua tree
New Member


Date Joined Jul 2009
Total Posts : 7
   Posted 7/5/2009 9:29 PM (GMT -7)   
I must agree with a progression of the pain level in Fibro. I only could agree to the pattern, you White Choc Chip, mentioned. It's greatly the same I'm going thru, except that I don't work any longer and the good periods aren't but a few hours after days and weeks of great great pain. They never get really 'good' these periods, not that I could say that pain really subsided.
I was sooo much looking forward to summer, and gracious for the first time in 5 years they are having a couple of real hot days here, but no, it didn't the effect of relaxed muscles etc as I hoped so much for.
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