Michael Jackson had Lupus

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/9/2009 1:45 PM (GMT -7)   
I was watching Good Morning America today and a segment came on all about MJ and the fact that he did have Lupus.  SLE and DLE and Fibromyalgia.  The vitilego he had is also autoimmune.  I guess it all makes sense now why we saw him a wheelchair and always had an umbrella in the sun.  The medications he was taking was for his Lupus and Fibro.  The doctor they were talking to was not the weirdo doc that the police have been questioning, but rather a very intelligent, honest and revered doctor in L.A.  He confirmed everything and also mentioned that his heart attack was likely caused by the Lupus.
 
I wonder if this is going to shed some new light on Lupus and make it much more aware to people.  We can hope!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 7/9/2009 3:09 PM (GMT -7)   
I didnt know that, thanks for sharing.
Lyrica (15 months-quit Feb. 09), Paxil (10 months-quit 6-4-09), Started Cymbalta 6-6-09(horrible effects on me), Rozerem, Melatonin  Fibromyalgia, Depression, Anxiety, Panic Attacks-currently in therapy-new pdoc-possible Borderline Personality Disorder...
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
   


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 7/9/2009 3:41 PM (GMT -7)   
Wow-he had lupus and fibro? I had no idea. I had read that he took various medicines for "chronic pain issues" but had not heard the extend of it. Maybe this revelation will get the word out there about these conditions and make people see they are REAL (especially in the case of fibro..Lupus is very serious and deserves more research, absolutely, but I have never heard anyone doubt the validity of it)

Also, what is SLE and DLE? And I wonder if his skin condition was in anyway related to the lichen planus stuff that I have.
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 7/9/2009 5:41 PM (GMT -7)   
I figured that Michael Jackson was in a lot of pain. After all, he was a dancer. The moves he made would make his illnesses fell worse. Now maybe the press will show him some respect.

Donnaeil

noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 7/9/2009 5:56 PM (GMT -7)   
Hey Daniel I have lichen planus also. I thought I was the only one. How is doing for you?
Maggi
 
fibromyalgia, chronic pain, chronic fatigue syndrome, anxiety, depression, hypothyroidism, avascular necrosis, costochondritis, GERD
cra (can't remember anything)
 
in trying times, don't quit trying          
 


noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 7/9/2009 6:00 PM (GMT -7)   
Danielle, sorry I spelt your name wrong. It must be habit, since Daniel is my husband. Forgive me?
Maggi
 
fibromyalgia, chronic pain, chronic fatigue syndrome, anxiety, depression, hypothyroidism, avascular necrosis, costochondritis, GERD
cra (can't remember anything)
 
in trying times, don't quit trying          
 


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 7/9/2009 6:03 PM (GMT -7)   
Donnaeil,

I would love to see the press show him some respect. He always struck me as a very kind hearted person-a bit weird, yes, but kind and good if also a bit childlike-and I never believed those accusations and felt he was treated so badly by people even when he was cleared. Now to find out he was so giving and loving while he had these chronic pain disorders..yes, hopefully people will look at him in a different light now.

Maggi,

My lichen planus is a pain in the you know what. I have it especially bad on my hands (left one more then right) and get the awful tongue pain and white splotches pretty regularly, too. My Dr. basically said there was nothing he could do for me, so it's one more thing I just live with! How is it for you?
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 7/9/2009 6:04 PM (GMT -7)   
noklu said...
Danielle, sorry I spelt your name wrong. It must be habit, since Daniel is my husband. Forgive me?


Oh, that's ok! I've been called "Daniel" by so many people in my life that I don't even notice it anymore, haha. :-)
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/9/2009 6:26 PM (GMT -7)   
Hi Danielle,
 
SLE is Systemic Lupus Erythmatosis.  DLE is Discoid Lupus Erythmatosis.  SLE affects the entire body (organs, tissue, blood, etc).  DLE affects only the skin.  MJ had both.
 
I sure hope that this helps our plight.  To gain awareness of both Lupus and Fibro would be amazing.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


noklu
Regular Member


Date Joined Jun 2009
Total Posts : 110
   Posted 7/9/2009 6:27 PM (GMT -7)   
Well its sort of a good news, bad news.  I have had it for 10 years now.  The first time it was absolutely horrible.  The pain and itching.  My dermotologist put me on a high dose of prednisone.  about 6 months later it was back even worse.  So, another round of prednisone.  It really made a huge difference.  Cleared it right up, both times.  After that it stayed away for awhile.  Then I needed more prednisone for colitis, then again for a dislocated shoulder.  Short story long, I ended up with avascular necrosis and needed both my hips replaced, and I think my shoulders are next.  Having it in the mouth is painful, and I had it in my wahoo(vagina) also, and that is really bad.  Now, I just let it run its course.
 
Anyway, the prednisone is a wonder drug and I would still reccomend it if its a bad breakout, but I wouldn't make a habit of it.  Do you get it regularly?  Or do you have it all the time?  I am really curious since you are the 1st person I've talked to.
Maggi
 
fibromyalgia, chronic pain, chronic fatigue syndrome, anxiety, depression, hypothyroidism, avascular necrosis, costochondritis, GERD
cra (can't remember anything)
 
in trying times, don't quit trying          
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/9/2009 6:32 PM (GMT -7)   
Imagine dancing and putting on concert after concert after concert with fibro. He must have been so tired, and the constant round of performances would have been terrible for him. He must have been in so much pain by the final performance :-(
Co-Moderator Crohn's Forum.

New meds thread


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 7/9/2009 8:50 PM (GMT -7)   
And the press treats him the way it would treat us, as if we were junkies.

Donnaeil

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 7/9/2009 11:36 PM (GMT -7)   
I have heard that Anna Nicole Smith also had lupus, and was taking so many pain medications that didn't help her. It would make sense since she had just had a baby and I understand lupus flares worse post-birth. Wouldn't that be amazing if MJ's family allows it to become public knowledge and bring light to fibro and lupus? I mean, people who didn't know what vitiligo was now know. (But then would we be seen as "trendy" for having fibro?? I guess there are worse things!)

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/10/2009 6:34 AM (GMT -7)   
The autopsy is not going to confirm fibro. Let's hope if he did have fibro it was dxd by more than one reputable doctor. If he did have fibro where did he get the energy he had??? It could shed some light on fibro and lupus if he did have them but if he died from a drug overdose I think that is what they will concentrate on.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 7/10/2009 6:59 AM (GMT -7)   
I didn't know any of this, however, every recent photo showed a person in pain. The question about how he did what he did, well, we can all do what we have to do, regardless of the pain, but we pay a mighty high price for it, afterwards. The not being able to sleep makes so much sense, I struggle with this whenever I overdo. It is like I get really wired to be able to leap tall buildings in a single bound, but the "coming down", part, later is horrific. I for one, after an amazing feat, like moving all my furniture and belongings, on one of the hottest days of the year, hated to stop moving as I knew what lay ahead for me. A Lot of Pain. I am so upset at the portrayal of MJ in the media. It is as if he was a layabout, drug abuser. for heavens sake, why won't they let the man have his peace. This so called 'war on drugs', witch hunt, is a war on the sick, poor, elderly, and disabled, and also on celebs who have to have privacy in view of the way the media releases private information about the state of their health. Like the leak from the LA hospital that said, "Farrah Fawcett has given up". She went after them, and it's a good thing she did. How much can one little person endure?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/10/2009 7:54 AM (GMT -7)   
I think if MJ had just been honest and open about his diseases, life would have been much different for him. He took years away from the spotlight and basically hid from everyone.  I'm guessing he did that because he was so sick.  the doctor on Good Morning America did say that MJ wasn't taking the proper medications to treat the Lupus.  He didn't want to have the weight gain and puffy face that so many of the meds cause.  If he wasn't taking those "life saving" medications, it's no wonder he was so ill, and had a heart attack.  Lupus loves to mess with the heart.  We all do what we need to do.  He pushed himself through the pain and sickness.  It backfired on him.  I also hope that his family will allow his disease to become more public. 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/10/2009 12:34 PM (GMT -7)   
I'm so glad Farrah Fawcett taped her struggle with cancer it showed how real she really was and no matter how beautiful you may be you suffer with things just like everyone else does. If MJ did have lupus and fibro I think coming clean with the public and his fans would have gotten him a lot of respect instead of all the controversy surrounding his death. But look at many of us that don't tell everyone what we have so not to be judged or thought it is all in our minds. We all choose to handle things in our own way. I think MJ carried a very heavy load all his life.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 7/10/2009 12:55 PM (GMT -7)   
We are all a product of our upbringing. mj couldn't say no to being an icon. It was all he knew from 5 years old. Perfection was strummed into the very core of his being.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/10/2009 2:25 PM (GMT -7)   
Marlee and Tyno.  I agree.  And there is the trigger!  Trying to be perfect. Putting huge pressure on himself to be the best.  Aren't we all like that; those of us with Fibro and Lupus? Go, go, go, can't let anyone down.  Got big things to do.  Can't be a failure, can't mess up.  Everyone is relying on me.  The whole world is on my shoulders.  That's me in a nutshell.  No wonder I'm sick.
 
Maybe this is a chance for us to reflect on our own lives and realize that we need to slow things down. 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 7/10/2009 5:27 PM (GMT -7)   
I am quite sure it is so in my case. I had two small kids, single mom, 1 full, 2 PT jobs, 2 cats, 2 dogs, 2 fish, an aging extended family I would drop everything and run to for whatever little thing, my Dad, my Step mom, whom is about to get dropped, my youngest son, now, whom I am nursing along as he skirts the edge of disaster. now a small business, cause I can't do all the things I feel I need to do for my family on the pittance I get through disability. What is to become of me? I will tell you what. I am going to put a stop to all except me and my Dad. The rest can just go grow up.

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 7/10/2009 8:04 PM (GMT -7)   

Wow to do all that he did and to be in such pain.

I helped weed the garden last week and was in such pan the following week.

I guessed I missed that show I was watching in our area about how easy it is to get medication from Drs in Ca if you have the right amount of money.

Veronica


DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 12:48 AM (GMT -7)
There are a total of 2,735,199 posts in 301,283 threads.
View Active Threads


Who's Online
This forum has 151386 registered members. Please welcome our newest member, Kier.
194 Guest(s), 4 Registered Member(s) are currently online.  Details
Mews2much, Girlie, ChickNorris, Sb77


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer