Shoulder and clavicle pain/stiffness that never goes away?

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Veteran Member

Date Joined Mar 2005
Total Posts : 1431
   Posted 7/9/2009 3:56 PM (GMT -6)   
Hi everyone,

Several months ago, I developed pain and stiffness in my shoulders and clavicles (collar bones). I have no clue why it started up. I ignored it for awhile, because this is how FMS goes.........things come and go all the time. But this hasn't budged.
I don't seem to do anything unusual during the heavy lifting or twisting my shoulders.
Does anyone else have this? It doesn't affect my range of motion of my arms. It's especially painful when I'm lying down.
I do sleep on my sides. Maybe that worsens it??
DH says maybe its my neck.......but I have no pain in my neck and have full range of motion there too.
I hate to keep taking tylenol to sleep all the time, but its pretty painful.
Any ideas?

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 7/9/2009 5:56 PM (GMT -6)   
My shoulders always hurt. I mean always, always no matter how the rest of my body is feeling. I am not sure why, but I've always wondered if it relates to the awful whiplash injury I suffered when I was 17? Then again, I am also a side sleeper so maybe you're on to something there?

The only thing that helps me with my shoulder pain is my Sock Buddy. I get it super hot and wrap it around my neck and shoulders and really does make me feel better!
love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Regular Member

Date Joined Jun 2009
Total Posts : 110
   Posted 7/9/2009 8:56 PM (GMT -6)   
I also have the pain aaaaaaalllllllllll the time, and I also got a whiplash 7 years ago. In fact, that started my fibro flare big time. I have never been the same since.
fibromyalgia, chronic pain, chronic fatigue syndrome, anxiety, depression, hypothyroidism, avascular necrosis, costochondritis, GERD
cra (can't remember anything)
in trying times, don't quit trying          

Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 7/9/2009 9:28 PM (GMT -6)   

I have the shoulder tightness that makes my the area between my neck and my shoulders look like a football players shoulders. I love to have  that area massaged but the person doing it has to really apply pressure to loosen that area up. If it doesn't hurt, it isn't working. It's almost like that area is "locked up" or something that it gets so firm and hard. My daughter has wonderful magic hands that can do wonders for me and she gives a foot rub that makes the world go away. The problem is she lives two and a half hours away.


Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
Find blessings in every day!

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 7/10/2009 9:38 AM (GMT -6)   
From about the middle of my back up has always been the worse area for me. Sometimes when we go to bed I will turn with my back to DH and he will rub my shoulder blades and it feels so good I almost purr turn I have to sleep on one side or the other and it is getting harder to do as the knots in my muscles multiply. Heat is about the only thing that works to relieve it some and massage.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
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Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 7/10/2009 1:30 PM (GMT -6)   
I've had strange pain happen and last up to nine months before is started easing up.  Last summer I was limping so badly because of pain in the top of one foot.  It lasted until the first week of January and just disappeared.  Isn't fibro fun?  shakehead
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Sep 2003
Total Posts : 254
   Posted 7/10/2009 2:35 PM (GMT -6)   
I also have shoulder and collar bone pain, my collar bone gets so sore I cannot touch it. My shoulders ache like crazy but my pain goes down the chest area, I call it my bra strap pain, follows that route.

I was put in a head lock when I was CNA at a nursing home, this is the area where my fm started but was only left side now it is both sides. I have some neck compression, so who knows what is causing it.

I also sleep on my left side. If i lay on the left my right arm gets pins and needles, right side same thing in the left arm.

You are not alone, Linda
Fibromyalgia. mofascal pain syndrome, dxed in 1882. Costochondritis, Two herniated cervical discs. Cervical and upper spine arthritis with a large bone spur in mid back. IBS.

Look toward the sun and the shadows will alway fall behind you !!!

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 7/10/2009 4:36 PM (GMT -6)   
Hi Cathy. I have something called upper crossed syndrome which is basically a lot of muscle imbalances in the upper part of the body. So I have some muscles that are too tight and working too hard and others in the area that are too loose and not doing their jobs. This can cause all sorts of pain and stiffness like you are experiencing. If that is your problem I don't think it will go away to an acceptable level without intervention of some sort. A massage therapist, physical therapist or chiropractor trained in muscle rehab would be your best bets for good help. I go to a chiro myself. The results have been somewhat mixed but I have many more problems in my shoulders than just upper crossed syndrome. Hope you are feeling better very soon. Lisa
Life is the ultimate contact sport. Train accordingly and play hard.

Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 7/10/2009 9:27 PM (GMT -6)   
I'm getting to the point that I hate to wear a bra. Even my breast's are so sore. I have fibrocystic breast disease and have to see a breast surgeon each year for my mamo and exam. I go Monday and I'm always a little concerned that one of these many lumps will turn into sometining else. Just what I need with all the other things that are going on with my body. I wish fibro didn't zap your enengy so. Today I was able to get my shower and make chicken salad and the rest of the day was spent in my bath robe on the couch. It get's so old but what do you do. Who can exercise when you have the energy of a snail!
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
Find blessings in every day!

Veteran Member

Date Joined Mar 2005
Total Posts : 1431
   Posted 7/10/2009 9:52 PM (GMT -6)   
Thanks for your input everyone.

I was thinking that maybe I should see a physical therapist. Its just so weird to get these problems, and you have no idea why they started. And like you said Sherrine, things can stop as abruptly as they started. It seems like every year I get some problem which eventually goes away. I have no idea why I get it or why it goes away!
I'm still not convinced that some of my pain isn't from my elevated uric acid level. I don't have the traditional gout in the toe, but I have these various, unexplainable pains in different areas.
When my FMS started up about 13 years ago, I had this shoulder pain too. I also got this horrible pain/stiffness in my lower back. I couldn't even turn over in bed. It finally all went away!
PALMY.........I've had a sensitive collar bone my whole life. Even when I was younger, if I pushed on it just a little, it would hurt. How strange!

Regular Member

Date Joined Aug 2008
Total Posts : 71
   Posted 7/11/2009 9:57 PM (GMT -6)   
If you can get a good PT it may help some. I have been dealing with severe neck, shoulder and upper back pain for a long time (a couple of years?). It never goes away, but some days are not as bad as others. Part of the problem in my case is myofascial trigger points...some are hard as rocks. Some muscles are just one big tirgger point! I have tried TP injections, no help at all.
My PT has been helping some, but I know we will reach a level where she won't be able to do more, and a couple of months later I am back to where I started. The TENS treatments give relief,, and she just tried a cortisone patch on one trigger point...something new....and it helped a lot for about 24 hours. I use lidocaine patches almost every day.
Last year the PT thought it was a pinched nerve but turned out it was not. I just recently found I had a rib out of place, I believe it may be some of the source of the pain. Look up costochondritis. 60-70% of people with fibro have this, and it can cause these symptoms.
Good luck. I feel like I have tried everything under the sun...but I am sure there are still things to try!
Fibromyalgia, TMJ dysfunction, Myofascial Pain Dysfunction, Chronic Fatigue Syndrome, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), major depression, going through a divorce to top it off!
Ultram, Soma, Ativan, Lyrica (on and off), Armour Thyroid, Famvir, can't tolerate SSRIs or NSRIs.

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 7/11/2009 10:41 PM (GMT -6)   
Cathy, I would see a dr. Maybe this is myofacial pain or something else. Since fibro moves around and this stays in one place, it seems like something different and maybe it can be helped.
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