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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/11/2009 4:49 PM (GMT -7)   
 
I'm new to this forum.  I usually lurk around the kidney and chronic pain forum.
 
I'm posting regarding my Hubby.  His doctor is treating him for Fibro.  After going though enough reseach to make you go insane and reading through alot of threads with him we decided the doctor is correct on the Dx.
 
My Hubby is being stubborn on one point.  The mental fog.  He is refusing to see it.  I could make a funny that hes always forgetting that he forgets so maybe he just doesn't remember that he forgets ALL THE TIME.  I has to take time to pull thoughts out of his mind and then state whats he wants to say.
 
Could this just be a stubborn denial issue?  He is refusing to admit that the forgets so much.  He gave my daughter 50.00 to go to the mall last week.  He forgot by morning and was wondering where his money was.  It took alot to get him to remember.  I said "Remember sale" "Hot Topic" "50.00 dollars"  "Her driving"  Shes only been driving a week, all parents of new drivers will remember when their child is out driving.  He forgets so many things and always says he hardly forgets. 
 
I'm kinda at a loss.  Any Advice????
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/11/2009 5:00 PM (GMT -7)   
Thank goodness my 17 year old doesn't want to drive. I get the Brain  Fog thing from time to time and soemtimes I even forget my name but at least I know where I live.
 
HARA

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/11/2009 5:32 PM (GMT -7)   
Boy I wish my daughter didn't want to drive she has put over 1200 miles on my explorer in 3 1/2 weeks...lol I really hope he never forgets where he lives for he makes more money then me..lol

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/11/2009 10:36 PM (GMT -7)   
She's a teenager with a leathal weapon. Put restrictions on her you are the parent. Tell her she has to have a job and own insurance before she can go anywhere. Unless you are living out in the middle of 'No where'.
 
HARA
I have to teach my son how to take the transit bus system and he has Asperger's Syndrome - Mild form of Autism

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/12/2009 6:59 AM (GMT -7)   
My oldest has mental issues. They lean towards Organic Brain Sydrome (Brain Damage) but then they have said over the years that he has autism. Functionable Autism is what they called it. He looks fine when you look at him but he really cant function on his own. They have also dropped into the hat that he has a rage disorder. He will always live with us. But he refuses to drive also..........

Lauire
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/12/2009 7:09 AM (GMT -7)   
Laurie, there have been times I've sworn I did something but yet I didn't.  I have even had a couple of times that I have absolutely no recollection of doing or saying something.  That doesn't happen very often but it does happen with fibro fog.
 
I know you've read a lot of information but do check out the Fibro 101 thread...the second thread on the forum.  There are links to information, symptoms, gentle exercises, etc. on there.
 
Why don't you see if your husband will join us on the forum?  We do have several men and the advice is great here. 
 
Here is a site your hubby might want to read and get a few chuckles.  He'll see that he's not alone on this issue.
 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/12/2009 12:17 PM (GMT -7)   
LLPLUV said...
My oldest has mental issues. They lean towards Organic Brain Sydrome (Brain Damage) but then they have said over the years that he has autism. Functionable Autism is what they called it. He looks fine when you look at him but he really cant function on his own. They have also dropped into the hat that he has a rage disorder. He will always live with us. But he refuses to drive also..........

Lauire

 

 

From HARA: We definantly need an Autism Forum in here it would be very helpful, and maybe a Sleep Apnea Forum. Just suggestions.  My son teaters between being a normal person and an Autism person. He hates it sometimes and Yes my son does have some anger issues as well. He might actually get to live out on his own someday. So I am trying to teach him everything I can.   Did you know you can have someone come in and give you a break.?.... I don't know if they do that in your state but they might. I live in WA state so I only know a little about this state.

 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/12/2009 3:33 PM (GMT -7)   
Hara
 
We had the option of having someone come in and help but we chose not to.  He was to violent for a period of years.  He has been hospitalized for medication adjustments and therapy.  We've had in in and out of therapy for years.  We've had to replace every window at least twice in his lifetime.  He sent all his years in special ed then when he was in high school they mainstreamed him really bad idea.
 
He is now 20 and still difficult to deal with at times.
 
 
Sherrine
 
My husband doesn't have to join we go through posts together.  Sometimes I think he pretends to be listening to me...lol  I will get him to visit the site you listed so he can laugh hes got a great sense of humor.  I'm a very patient person for I deal with Chronic Pain everyday.  But sometimes it gets so frustrating on my part that he forgets so much.  He looks at me like I'm crazy.  But I love the man so I will just breath through it knowing hes not doing it on purpose..
 
Thank you all for giving advice  You guys are nice over here in Fibro World.
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 7/12/2009 7:18 PM (GMT -7)   
My biggest advice to you " Is just keep loving him."

When I fianlly went in for Dx wasn't so much the pain although there are times it really gets to me but mostly it was because DB/F and I was playing a word game and I used to be a great speller, well I couldn't remember how to spell EGG I told him it was EEG and we had a good laugh when I finally relized I was wrong.

Understand him when he gets (frusted), See What I mean about spelling, I can look at a word and know it's spelled wrong but can't remember how to spell it correctly. Anyways, when he goes to do something and he can't do it due to the pain or fingers not working right.

Understand when he can't even remember his phone number or things he has always know and feels like he is losing his mind.

I have walked outside and cryed when I first really started showing signs and couldn't llift and wash a pot or make my bed and had to ask for help. That's the biggy asking for help. And since husband reads these. ASK FOR HELP!!!!!!!!!! It doesn't make you less of a person. I'm a strong will person due to being married to men that have never done or helped me with things but I have learned to tell Mitch when I can't do something or when I even need him to dry me when I get out of the tub because my hands don't work right or I have problems with my legs to stand.

Sorry so long. You have found a great site and wonderful people to talk to.
Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/12/2009 11:12 PM (GMT -7)   
LLPLUV said...
Hara
 
We had the option of having someone come in and help but we chose not to.  He was to violent for a period of years.  He has been hospitalized for medication adjustments and therapy.  We've had in in and out of therapy for years.  We've had to replace every window at least twice in his lifetime.  He sent all his years in special ed then when he was in high school they mainstreamed him really bad idea.
 
He is now 20 and still difficult to deal with at times.
 
 
Sherrine
 
My husband doesn't have to join we go through posts together.  Sometimes I think he pretends to be listening to me...lol  I will get him to visit the site you listed so he can laugh hes got a great sense of humor.  I'm a very patient person for I deal with Chronic Pain everyday.  But sometimes it gets so frustrating on my part that he forgets so much.  He looks at me like I'm crazy.  But I love the man so I will just breath through it knowing hes not doing it on purpose..
 
Thank you all for giving advice  You guys are nice over here in Fibro World.
 
Laurie

 

 

From HARA: I feel for you and now know why you don't have someone come in. I know kind of what you mean by 'angry outbursts'.  At least windows are fixable. I wish you son was to.  

 


GBuck
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/13/2009 10:18 AM (GMT -7)   
My father has alzheimers disease which he also has the same mental forgetfulness. It progresses as the years pass.

They are claiming now that alzheimers willl be a leading disease in the coming years, it is becoming much more common and frequent, and now more among younger people.

Therer is a man called Trevor Marshall online who has linked diseases like AZ and Fibro (and other diseases as well) because he says they all stem from TH1 disease - a bacteria in your body.

Indeed many highly trained Lyme doctors know that when BACTERIA enter and invade tissue and joints all kinds of symptoms can occur. MANY lyme patients have first been diagnosed with fibromyalgia, spondylitis, arthritis, carpal tunnel, Heart conditions, RSD, MS, etc. and it isnt until they start getting ABX like minocyclines that they see some remission and many are cured. The Key is long term antibiotics. some reports say 50-70% of fibro/cfs patients were finally diagnosed with Lyme disease. I am a member of a lyme group and MANY on there had fibro DX's.. Please look up.dr joseph Burrascano and trevor marshall.

One antibacterial that helps treat Lyme and other bacterias is called Samento - it can be purcheasd online . It may help you with your symptoms- it will cause more symptoms at first when you kill the bacteria, it can cause insomnia and grouchyness, and more pain, but it will level off as you use it. We supplement with probitotics as well.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/13/2009 12:13 PM (GMT -7)   
Most everyone on this forum has been checked for Lyme but thank you for  your concern.
 
I did check out the two people you mentioned.  Joseph Burrascano gives long term antibiotics for patients with Lyme and that is a questionable procedure.  But, there are two sides to that story.  He has, although, been taken to court over this and received disciplinary action.  But, perhaps the jury is still out on long term antibiotics.  It is very hard on organs, too.
 
Trevor Marshall is advocating things and have never had any controlled clinical studies to see if they even work.  He has offered no proof.  Also much of what he advocates contradicts the positive and large growing body of evidence that supports the positive role of vitamin D in our bodies.
 
When you are suffering, you grasp at straws.  Please be careful.  Some of this could really hurt you.
 
Sherrine     


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 7/13/2009 1:23:26 PM (GMT-6)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/15/2009 11:46 AM (GMT -7)   
Thank you Sherrine for reseaching the names.  My husband and I would NEVER take chances with our health.
 
I will always love my husband.  He has been my rock throughout 18 yrs if marriage.  He has always taken care of me with my health issues and has been a wonderful father to our three children.  He has been outstanding in regards to our handicapped adult child.  If he forgets something its ok as long as it doesn't burn the house down...lol
 
Thank You all for such caring responses
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all

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