Alice, have you found out anything about what happened to you???

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Marlee2
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   Posted 7/15/2009 11:13 AM (GMT -7)   
Just wondering if they were any closer to finding out what caused the paralyses???
 
luv and hugs
Marlee
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Irish Babe
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   Posted 7/15/2009 1:53 PM (GMT -7)   

Sweet Marlee, thank you for asking. I went to my drs office last wk to drop off papers for her and a note to call me, since I hadn't heard from her. She was going to take a patient in, saw me and asked me to come into her office. She pulled up all the reports from hosp and other sp dr who tested me. She said all tests came up negative, she believes I had Panic Attack/ Anxiety. I was scheduled to see her this past Monday, but I had another test to get thru for ENT. I had such a horrible reaction to the warm air blown into my right ear. I felt like I was spinning out of the chair, I was so nauseous. As soon as I was done, I took a Reglan. The audiologist called my DH in the room. One look at me and he knew I was having the same reaction. The two guys helped me out of the exam chair and into a regular chair. My whole body was tingling and started to freeze again.

The audiologist asked if I wanted anything, including 911. I said no. I figured if this is what is happening, I will wait it out. I can't afford another ER or hospital bill, this one is going to kill me. It took about 30 - 40 min for it to pass. My left hand came back first, then right, just like last time.

I went to my appt w/ pcp on Monday, only to find out the receptionist 'lost' my appt. Had to argue w/ her about all the appts I had that she didn't have records for on the computer. My dr. came out and said 'Come in'. She asked how I was, I was so nauseous and shaky. She ck'ed my BP, it was hi. My temp was low. She said she wanted me to see someone for the panic/anxiety. She gave me a rx for xanax, in case I have anymore of these problems.

I found out she never got my message to call me, the message I left w/ that same receptionist that lost my appt. This woman also lost my DH's appt last month. The beauty of it is, both times we were called to remind us of the appt. DUH!

I p/u a couple of books on panic/anxiety to help me get a handle on things till I can get into see the other dr.

I have always been the strong one, did what I had to do. Now, I feel like I am letting ppl down. My DH has been very supportive, so it isn't anyone's attitude - just me. I just have to get a mind set and deal w/ this. I have been trying to do relaxing things, very light gardening, reading, exercising, etc. My younger sis called shortly after I got out of the hosp to say the contractors were coming over to finish up, so what time could I p/u Mom. I told her, I'm barely able to handle me, let alone Mom. Dead quiet, then, sigh, I guess I'll just have to figure something out w/ her. I spoke w/ my mother so she understood, wasn't sure how my sis would phrase things. My mother was concerned about me, no problem, just upset that she couldn't help me. Love that woman!

Anyway, I'm awaiting an appt w/ dr, trying to keep calm and visiting w/ my wonderful friends here. I do appreciate your thoughtfulness, it means a lot to me.

God bless.  Alice.


SleepyBug
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   Posted 7/15/2009 2:04 PM (GMT -7)   
Wow. Your Dr. thinks it was all anxiety/panic? I had no idea that a/p could cause paralysis like that.

I also struggle pretty bad with a/p-just had an attack today at the grocery store, as a matter of fact. Thought I was going to pass out I was shaking so bad. So, I do understand how awful a/p can be...please take care and know you aren't letting anyone down!! Also please keep us posted on how you're doing.

{{{{gentle hugs}}}}
~Danielle
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Sherrine
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   Posted 7/15/2009 2:10 PM (GMT -7)   
Alice, I have never heard of that before but saw that it can happen during anxiety attacks!  It's terrible that you are going through this.
 
You take on so much and try to pick up everybody's pieces.  You have to start thinking of yourself and start taking care of yourself.  You are every bit as important as those loved ones you are always helping.  Remember that.
 
Let us know how you are doing, okay?
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Irish Babe
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   Posted 7/15/2009 2:17 PM (GMT -7)   

Danielle, I had no idea a/p could cause paralysis, either. But all the tests came back negative, and they did a lot of tests. lol.

I'm so sorry you're having a problem w/ a/p also. It must have been so frightening for you today in the grocery store. I hope you are feeling better now. I will say back to you, pls take care of yourself. I will keep you in my prayers. Thank you for your kindness, much appreciated. I will try to keep an update on my progress, I hope you will do the same.

God bless.  Alice.


vestabula
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   Posted 7/15/2009 2:28 PM (GMT -7)   

Hi Alice..so sorry about your newest experience.  I know a/p can cause paralysis and tingling.  It sure can.  It's very scary but just remember it's not dangerous.  When they tested me for Meniere's Disease they blew hot and cold air into my ear, along with ice cold water.  I begged them to stop as I would not stop spinning.  They did, thankfully.

I was told, after the a/p diagnosis that the tingling, frozen feeling was from hyperventilation.  I carry a paper bag with me at all times.  Of course, I'm not a doctor but am only telling you about my experiences with those sensations and what the doc told me it was.

Feel better

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Irish Babe
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   Posted 7/15/2009 2:33 PM (GMT -7)   
Sherrine, thank you for your concern. It means a lot to me. I make a mental list every day of the good and important things in my life. It helps me get a solid start to my day. I have been trying to keep my mind busy w/ learning about a/p and practicing some relaxation techniques. We have had some great weather, sunny & cool, so I'm trying to be out early in the day and early evening. I have been keeping a good diet, so that isn't a problem.

I have several dr. appt in the next 2 wks, so I will be busy getting info from them. I tried looking up info on paralysis from a/p, I couldn't find it. Do you remember where you saw it?
 
I feel better just knowing what the dx is, I think I was more frightened by a possible stroke or HA. I'm not making less of this, I just think I can help myself to work thru this. God willing!
 
I will let you know how things are going. Thank you again.
 
God bless. Alice.
 
 

vestabula
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   Posted 7/15/2009 3:01 PM (GMT -7)   

Alice, I have a book on Anxiety called The Anxiety Disease by Dr. David Sheehan.  Besides listing the myraid of symptoms he cites case studies of some of his patients.  He has a woman that was forever running the the ER with paralysis and she was convinced she had some deadly neurological disease, or was having a stoke.  It was simply anxiety and panic.  There are several other cases in the books where people have this sensation...he calls it 'hysterical paralysis' and it is completely harmless.  I have had happen only once and now that I know what it is, I calm down if I feel it coming on and it passes.  Like I said, hyperventilation can cause this too. I feel frozen, tingling and unable to move until I breathe in a paper bag.

But...if you are still concerned that it is something else, by all means continue to have it checked out.  I hope you feel better and  the relaxation techniques help you through this.  You have a good positive attitude and I know you can get through this.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Irish Babe
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   Posted 7/15/2009 3:07 PM (GMT -7)   

Donna, thank you so much for your reply. When were you tested for MD? I had done some reading on the tests they were to do, and it was mentioned about the water. I was upset b/c I can't even use ear drops, any fluid in my ears and I am spinning! I spoke w/ the audiologist b/f the testing and he said he only uses w/c air, not water. I thought it would be ok, W R O N G! How long did you feel the effects of the water in the ear? That must have been horrible.

I appreciate the info on the brown bag, good idea. My small purse is crammed w/ all my med stuff now, but I will find a spot for the bag. lol.

I will be seeing the ENT as a f/u to orig visit and this testing, hopefully they are thru torturing me and just give me the lowdown on what is going on. From my mouth to God's ear.

Thank you for the advice, do appreciate it.

God bless.  Alice.

 


Marlee2
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Date Joined Aug 2007
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   Posted 7/15/2009 3:17 PM (GMT -7)   
Wow, I thought I had, had every symptom of anxiety/panic disorder, guess not. Alice stress and taking on everyone's problems on top of my own is what got me to where I am now. I thought I was the family keeper and had to take care of everyone but I wasn't taking care of myself. Our minds and bodies can only take so much before something has to give. I have felt like I'm stuck in the fight or flight mode for 11 or 12 yrs now.
 
It's good that it isn't anything that can't be treated but you have got to do some weeding in your life my dear friend. A/P disorder is no picnic but there are meds, like xanax, that does allow you to live a normal life. I don't know where I would be without it. You might want to consider therapy too.
 
The thing that stopped panic attacks in their track for me was reading what they are. The body dumps too much adrenaline into your system which causes physical feelings which scares us so we dump more adrenaline into our systems etc til we are in a panic attack. When they would start I would just keeping saying to myself, "it is only a physical feeling", over and over until I finally stopped having them altogether. Driving was a big problem for me for a long time but I would not give into the anxiety cause I was not going to give up that freedom.
 
I do not have any kind of social anxiety, surprised??? Mine is mostly when I'm not occupying my mind and body. I've also learned over the years that I have to be in control of things, have an out and can't have anyone else controlling me, don't know if that makes sense.
 
Get better!!!
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
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vestabula
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Date Joined Nov 2008
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   Posted 7/15/2009 3:19 PM (GMT -7)   

Alice, I was tested years ago for MD but they can do an MRI or CAT scan now to dx it...or so I have been told.  I would see if that is an option for you as the testing I went through was brutal.  They spun me around in a chair in a room with checkered walls...Oh...I don't want to scare you but back then they DX'd by measuring the time it took for your eyes to stop spinning aournd in their sockets!  My Dad had it and so does one of my sons so I guess it might be hereditary.   I don't remember how long it took me to stop spinning..long enough so that they stopped the testing and said I absolutely had MD.  I have to limit salt from my diet as that retains water and fills up the ear canals, hence the spinning. 

Ask for the MRI, if they want to do anymore testing.  You don't need to go through the archaic procedure I did.  Good luck, my friend.  And take nice, slow deep breaths and if you feel the tingling, breath through your nose with your mouth closed.  I am the queen of anxiety symptoms!

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Irish Babe
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Date Joined May 2007
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   Posted 7/15/2009 3:57 PM (GMT -7)   

Marlee and Donna, thank you for your replys. The audiologist was telling me the horror stories you had mentioned, then quickly said, but I don't do that. My mat GGM went deaf in her 30's, her son, my mat GF was deaf from an early age and my mother has hearing problems and balance issues, ringing in the ears, etc. So it is possible that this is being passed down the family tree. But if they want to do more testing, I will mention an MRI. I have reached my limit on fun! I can't stand salt, don't eat it, and yet I always have some dr. tell me to limit my salt intake.

I don't think I have any social anxiety. I like being around ppl I actually like. I also need to be in control, I don't like to feel closed in, I do have severe claustrophobia. I haven't driven in over a month, and then it was only short trips. I want to be able to drive again, so at least I can go to the boardwalk for my walk. I go on the wk ends w/ DH, but I want to do 'my' thing when I want to do it.

When this attack hit last wk, I figured it was a/p since conversation w/ my pcp, so I wasn't afraid I was going to die. I was just hoping not to throw up from the testing. My DH was w/ me and was helping to calm me down. My dr gave me info on therapy, I think that will help as long as we don't meet several x a wk. Can't afford that.

Donna, I'm going to see if I can find that book, it sound very interesting.

Thank you both for lending me your strength and encouragement.

I love this forum, the ppl here are tremendous. I am shedding happy tears right now. Thank you.

God bless.  Alice. 


Irish Babe
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Date Joined May 2007
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   Posted 7/15/2009 5:39 PM (GMT -7)   
Danib, thank you and I will return the sentiment. Your kindness touches my heart. I hope you are feeling better now. Sometimes, I wish we could just reach out an give a real hug to our friends here, but the best I can do is a cyber hug. Hope you have a good night's rest and feel so much better tomorrow. My thought are w/ you.
 
God bless.  Alice.

getting by
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   Posted 7/15/2009 6:13 PM (GMT -7)   
Hi Alice,

It is so strange what the anxiety and panic can do to us. Make us feel like we are dieing. But I am glad that you found out what it was. That would be so scarey.

I hope that you find something to ward off the panic attacks. I have had them, but not that bad.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


AustenFan
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   Posted 7/15/2009 7:45 PM (GMT -7)   
Hi Alice.  I've also been diagnosed with MD and had a battery of tests.  I too had the ENG caloric testing (warm/cold air and water) done.  I had the worst panic attack of my life in the midst of it and made them stop half way through.  I also had them go get my husband who had to help me out of the room.  Not a fun test.
 
There is another test I had done called an ECoG which uses these electrode thingies in your ear canal.  It wasn't painful or uncomfortable at all.  It isn't 100% effective at diagnosing MD, but certain patterns that show up in this test can indicate Meniere's.
 
I also had a balance platform test.  They strap you into this parachute harness type thing (so you don't fall), and you are on this moving platform while looking at and tracking different objects on a screen.  It helps determine if you have trouble with balance.  It wasn't too bad.
 
I do have a book I'd like to recommend.  It's called Phobia Free by Harold N. Levinson.  It discusses  the direct correlation between inner ear problems (with dizziness, vertigo, etc.) and anxiety/panic.  Even my ENT, who specializes in Meniere's at a University hospital, believes there is a very direct link between inner ear problems and anxiety/panic.
 
I hope you get a diagnosis and feel better soon!
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Irish Babe
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Date Joined May 2007
Total Posts : 1371
   Posted 7/16/2009 6:27 AM (GMT -7)   
Karen, Austen, & Danib, thank you for your replys.
 
Karen, so good to hear from you. How are you doing w/ your new job? It was very frightening while it was going on, but knowing it wasn't 'The End' was a relief and I was able to get my bearings faster, I think.
 
Austen, I can't believe all the tests they made you go thru, that had to be horrible. The 'water' alone would have been my undoing. I will try to find the book you recommended, also, that is a very interesting idea. Thank you for suggesting it to me.
 
Danib, you are so sweet! I think the ppl here are so good, it's like you have 'come home'. We all have things going on in our lives, and we are all in the same boat. The best thing we can do is offer kindness, friendship, and understanding to each other. That is what I have always received from the ppl here and I treasure that goodness. I am so glad we can be here for each other.
 
I thank you ladies again, you are all wonderful! yeah
 
God bless.  Alice.

Marlee2
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Date Joined Aug 2007
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   Posted 7/16/2009 7:34 AM (GMT -7)   
Austen that is interesting, I had never heard that. A few months ago I was getting nauseous everytime I would get up and move around so I finally went to the doc and he said it sounded more like an inner ear thing from allergies than a stomach problem. With Sjogren's what mucus I have in my body is very thick. It got better for awhile and I thought it might be the vit D I had started taking and had stopped. Well the stomach problems are back and I haven't been able to do much cause every time I get up and move around I get nauseous. I'm on reglan, carafate, prilosec, pepto and even gas x and nothing has helped. I'm going in Mon for test from esophagus clear through small bowel to see what is going on. So now I'm thinking what if I put myself through all these test and find out that I have an inner ear problem and not a stomach problem. confused I know my right ear feels stopped up a lot and kinda hurts sometimes but that has been going on for years. DH has an app with an ENT Tues maybe I should have him look at my ear.
 
I'm trying to get better so we can go on vacation but we are going to the mountains and high altitude bothers my ears any time. What to do, what to do???
 
Didn't mean to change the subject but you all have me thinking now and we know that is not a good thing.
 
Alice, this is the safest place to bring your problems. I have never been a part of such a compassionate group of people and we strive to keep it like that.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
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Date Joined Apr 2005
Total Posts : 17094
   Posted 7/16/2009 8:34 AM (GMT -7)   
When I was having anxiety, I would cup my hands over my nose and mouth and breathe that way to stop the hyperventilation.  I would have passed out looking for the brown bag!  LOL
 
Here is a very informative site that might give you some good ideas to help yourself.  I found it interesting.
 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Irish Babe
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Date Joined May 2007
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   Posted 7/16/2009 2:56 PM (GMT -7)   

Marlee, you are so right, Austen brought up a very interesting topic. I hope you can get some answers from the ENT. I have had the problem w/ thick saliva (all the time) and thick mucous (during colds & such). I started w/ the plugged ears, felt very full and so hard to hear, on my wedding day. I think I said 'I Do' at the right time. smilewinkgrin   I have had that problem on/off during all these yrs. I will see the ENT for f/u visit tomorrow, hopefully, he will have some answers - and no more miserable tests to subject me to. I hope you and Ken can take your vacation, you've had such a yr, you both need to get away and relax. I believe you said you were going to Montana, I have never been there and it looks so beautiful.

Sherrine, I went to that site and it said, ... ummm... I forget how it was phrased, shakehead but it didn't connect, but it had a substitute to ck. I went to that and it had some interesting items. I did ck out a few of them, I will give them a better look in a bit. I don't know if I hit the wrong thing or not, I'm not that savvy on the computer, as I've mentioned a time or two, or three. If that wasn't the one you meant, pls let me know. I'm interested in any ideas that might help. Thank you for looking it up for me, I do appreciate your time and effort.

Danib, This is a good group, isn't it!! I hope today has been better for you.

I went to the cardiologist today for my f/u to hosp stay. He is very nice, ck all my vitals, my BP was great, heart and lungs nice and clear. He did an EKG in the office. Everything looked good. I have a f/u w/ ENT tomorrow, as I mentioned. I hope this is as good a visit as my appt today. I hope I get answers, not more questions or tests.

I hope you all have a good evening and a wonderful tomorrow.

God bless.  Alice.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/16/2009 3:24 PM (GMT -7)   
Alice, why don't you email me and I'll copy and paste it and send it to you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AustenFan
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Date Joined Aug 2008
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   Posted 7/16/2009 3:37 PM (GMT -7)   
Have any of you ever tried Mucinex for the thick mucus?  I have a problem with lots of thick mucus (TMI, I know), and my allergist has me take it regularly, not just when I have a cold.  It does seem to help some.  It's kind of expensive, but there are generic versions.  I know CVS carries a cheaper store brand.
 
I also take benadryl at night when I'm having the "dizzies."  It is an inner ear stabilizer (accordiing to my ENT), and it also helps dry up the fluid in my inner ear that is making me dizzy.
 
I hope everyone feels better soon.  I so know what it is like to be on the receiving end of anxiety, nausea, dizziness (or all of the above).
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 7/16/2009 3:40 PM (GMT -7)   
Austen, I have the same problem with the mucus and take Mucinex fairly regularly...it does seem to help a lot. (and I get a generic store brand version and make sure NOT to get the one with the decongestant!) I know there is a Dr. who swears by Mucinex and a strict hypoglycemic diet as a way to virtually cure Fibro, but I don't know...seems a bit too good to be true, like most Fibro cure alls.

Never knew Benadryl could stop dizziness! Thanks for that info..I do get dizzy sometimes, so that's good to know! :-)
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein

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