I use the pain scale 1-10 at the hospital. I'm a 10 sometimes then goes down to 6 and I can be released.
I feel tired all day long. Sometimes during the day the light bother's me and I'm fatigued. I feel like I ran a marathon sometimes. Light sensitive. Migranes too like if I got hit in my brain. May sound weird. I'm new here. Have not been in a forum in ages.
I can fall asleep just sitting too long. Sitting too long then my legs lock up. My legs start hurting so bad like arthritis. I have to take a walk or stretch.
Hate the numbness and tingling on my limbs. It's rather annoying. Esp. at night. Restless legs.
Getting swollen and not being able to wear my rings. Sometimes hurting so bad that I can't wear high heels.
Sometimes I have to use my cane. Had a bad flare up recently. Unexplainable pain. I must have appeared loony toon, b/c I was crying from the pain. Had to go to ER 3x's. I was put in a wheelchair. Couldn't walk, move my arms much, be touched. Tenderness. I collapsed at the house.
Just glad it's undercontrol now. I think of other stuff when I get the pain. Like eatting or thinking someone has it worse than me. Somedays just no appettie. Mostly I want to eat junk or sweets. I not supposed to.