body aches - so what, that's normal, right?

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myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 7/18/2009 8:43 AM (GMT -7)   
Yep - I decided today that I don't want my body aches. I have them everyday, so why is this bugging me right now? Ever have one of those days where you just don't want the pain - if even for a few hours? I guess one never gets used to being in pain. Some days I just can't get used to the coping part either. I've had this for 3 years, shouldn't I just "get over it"? Well, I would never say that to you guys - so I won't say it to myself either.

Yes, I'm just rambling.....trying to get through another fibro day.....just waiting for the old vicodin to kick in. Thanks for listening.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 7/18/2009 9:03 AM (GMT -7)   
Oh my gosh, yes, I have those days. Sometimes it just gets to be too much, doesn't it?

A couple of weeks ago I had a very strange and kind of depressing experience. I was sitting outside on the porch and all of the sudden I realized-oh my God-nothing hurts! For like 5 glorious minutes, not a single thing on my body was aching or burning or numb or tingling or stabbing or stinging. At first I was soooo happy, but then I just wanted to cry because I realized I hadn't experienced that in so long.

You're right, I don't think you ever just "get over it"...you have good days, and not so good days, and lots of days in between..but no matter what, life is never the same and that can be such a hard adjustment.

I hope your meds kick in for you soon and you start feeling a little better :)

{{{{gentle hugs}}}}
~Danielle
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 7/18/2009 9:28 AM (GMT -7)   
I agree with your frustrations. I get that way often too. I 'try' to tell myself "one day at a time" but some days I just want to roll in a ball and cry my heart out. It's a constant battle with my emotional part of my brain. Wonder how bad I really could be if I'm not taking an anti-depressant. Uff da! :-b

I have had the same experience Danielle has had and I get excited during those minutes but it never falls the big nasty fm cloud surrounds me once more. For how long this time before another feeling of 'bliss', God only knows.

Sending you some hugs and a soft shoulder to cry on today.
:-)
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 7/18/2009 9:43 AM (GMT -7)   

I tried to cut my fingernails today and just pressing down on the clipper was agonizing.  Even the pads of my fingers hurt.  Last night I tried sleeping in the bed, the couch, the chair and even the floor.  The throbbing hip and leg  pain would not cut me a break.  I ended up watching info-mmercials for vaccum cleaners and weight lifting equipment.  Oh yeah, and the old colonic cleansers.  It bites, and the moments of painless bliss are almost surreal.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Post Edited (vestabula) : 7/18/2009 11:01:30 AM (GMT-6)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/18/2009 9:58 AM (GMT -7)   
I know that after all these years, the pain doesn't go away.  I just try to ignore it the best I can and keep moving.  That's about all you can do.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 7/18/2009 12:18 PM (GMT -7)   
Oh don't I know about the pain.  Wish I had some kind of pain killer but so far my doctor won't give any to me.  I see a rheumatologist on the fifth of August but he doesn't see Fibro patients anymore and the only way my doctor could get me in was to tell him it wasn't "just" for the Fibromyalgia that he wanted him to see me.
 
When I had my gall bladder removed a couple of months ago I was prescribed Norco.  It was such a relief!  For a while there was absolutely no pain.  And I could finally sleep!  No couch to chair to bed to late night shows.
 
Sometimes if I sleep well I wake feeling almost normal.  Yes..that's when the hope sets in.  Thinking, maybe this is going away.  Wondering what I did the day before to make it better but it always comes back full force by afternoon.
 
My doctor has given my Savella which helps a bit I suppose but not at all what I had hoped for.
 
I won't give you a hug cuz I know those hurt..but I do wish you well and blowing a kiss your way ..  thank you for being here all of you.  It does help to talk to someone who understands and doesn't look at me like I'm just a slacker!

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 7/18/2009 12:24 PM (GMT -7)   
This is quite a challenge to live with. I too try to ignore that pain but that doea not always work. Distraction helps. My swimming helps a lot but that does not mean that I do not feel pain while I do it. However, the pain lessens with swimming so it is worth it.

I think stress reduction has worked best. Now that I no longer have to worry about supporting all my children life is a lot easier. In addition, I have completed my degrees and certificates (going back to school was stressful but worth it). Having only one child to care for is so much easier.

I too have watched those colonic cleanser commercials all night long.

Hang in there. My doctor will not prescribe pain pills for me and i am glad that yours does.

Donnaeil.

RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 7/18/2009 5:12 PM (GMT -7)   
Even having a dr. who prescribes pain pill isn't that great sometimes. My dr. will try anything I ask. Over the years I have taken every NSAID there is and none worked. I finally asked for narcotic pain meds. He gave me darvocet and Vicodin both, (in succession, not together) I took them for a couple of months each and increased my dosages, too. I might as well have been popping M & M's. He asked if I wanted to try Oxycontin, but I asked if it likely would work any better and he said no. Since then I have read that people with fibro might have opioid receptors in their brain that don't work. So I try to ignore the pain, too. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


neeters
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/20/2009 8:43 PM (GMT -7)   
I am new to Fibro and already am so frustrated beyond belief today. I have been having some so-so good day and some bad days but today was a horrible day. My knees, legs, ankles and my ear hurt ALL DAY. A constant throbbing pain. Nothing helped. I have taken my Ambien now and am heading to bed to see if I can rest. My nap was okay as I took a vicodin but, I really don't want to take another one today.

Ugh! I hope it gets better once I come to terms with it all and find tricks that help me.

Hugs everyone for the valuable info and for being a shoulder.
Diagnosed with Fibro in 09.

Lexapro, Xanax, Ambien, Prevacid

Fibro, IBS, anxiety, depression, agorophobia, allergies, recurrent urinary tract infections and ovarian cysts, endometriosis, asthma, heart murmur, acid reflux, thyroid goiter.


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 7/20/2009 9:28 PM (GMT -7)   

I freak out sometimes too. Everyone has on the forum I'm sure. Get used to the pain. I have it all day. I try to think of something else. I work harder at work or take a walk. Stretching my arms and legs helps.  yeah  I can do that at work without looking weird.

Take preventative measures so it doesn't get too bad. To prevent it worsening I keep time of my muscle relaxers and anti-inflamatories. I keep a schedule for the meds.

I think this is a learning experience. Maybe I'm supposed to be this way, because I can really relate to my Mom who has Lupus now. blush


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 7/20/2009 10:18 PM (GMT -7)   

Body aches in pain. I know what you mean. I feel like I want to just get knocked out or put to sleep for a couple hrs. to ignore the pain.

I feel tired all day long. Sometimes during the day the light bother's me and I'm fatigued. I feel like I ran a marathon sometimes. Light sensitive. Migranes too like if I got hit in my brain. May sound weird. I'm new here. Have not been in a forum in ages.

I can fall asleep just sitting too long. Sitting too long then my legs lock up. My legs start hurting so bad like arthritis. I have to take a walk or stretch.

Hate the numbness and tingling on my limbs. It's rather annoying. Esp. at night. Restless legs.

Getting swollen and not being able to wear my rings. Sometimes hurting so bad that I can't wear high heels.

Sometimes I have to use my cane. Had a bad flare up recently. Unexplainable pain. I must have appeared loony toon, b/c I was crying from the pain. Had to go to ER 3x's. I was put in a wheelchair. Couldn't walk, move my arms much, be touched. Tenderness. I collapsed at the house.

Just glad it's undercontrol now. I think of other stuff when I get the pain. Like eatting or thinking someone has it worse than me. Somedays just no appettie. Mostly I want to eat junk or sweets. I not supposed to.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/21/2009 7:12 AM (GMT -7)   
Hi Little I don't think I have welcomed you. I think anyone that deals with a chronic illness day after day deserves to have a pity party once in awhile and so many of us have other things to deal with on top of the fibro. It is hard to be strong every minute of every day. I find venting once in awhile cleansing and then I'm ready to fight it again. We are only human and I don't think anyone expects us to be otherwise.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 7/21/2009 10:49 AM (GMT -7)   
Just had botox shots in neck and shoulders for myofascial pain.  It makes everything hurt way worse for a few days.  Then supposedly it gets better.  I am trying this to see if it helps.  This is my second time getting botox.
 
 We are redoing the pool and the fiberglass guys are coming on Friday.  Then hubby decided at the last minute he wanted to repaint the coping (the edge thingy around the pool). Has to be etched, prepped, and painted before Friday morning.  Last night I was applying etching to the coping and scrubbing it with a brush.  I pushed through the pain and should have stopped.  Last night I was in so much pain I cried because I could not find the pill cutter.  Finally gave in and took a oxycodone.  Finally the pain ebbed away and I could sleep last night. 
 
This is really hard to get used to.
Sue
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