TMJ--No, it's Trigeminal Neuralgia

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Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 7/18/2009 10:13 AM (GMT -6)   
I was diagnosed with Trigeminal Neuralgia yesterday. I thought maybe I had TMJ, guess not. I thought maybe I had a sinus infection too.

The right side of my face has been hurting BAD for at least the last 3 weeks. I had an appt. previously scheduled for this last friday, so I waited til then to bring it up to my doc. I have had pain near my ear and up to my scalp and my eyeball (felt like it was going to pop out sometimes) of and on for months.

I was wondering if anyone here has this condition as well?

It really bugs me at work, I guess cuz I have to talk on the phone a lot and my phone headset I wear is on my right ear. shakehead It makes all my teeth on the upper right side hurt something awful. My pain meds keep it to a dull roar, but if I take to long to take another one, shocked I start feeling it big time.

So glad to finally know what has been bothering me.

Thanx for 'listening'.
Dx Fibro 1/2008, gastritis
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed

Forum Moderator

Date Joined Apr 2005
Total Posts : 17307
   Posted 7/18/2009 11:08 AM (GMT -6)   
Months ago we had a discussion about trigeminal neuralgia.  Try using the google search at the top of the page.  You will see all posts in all forums about this problem.  Hope this helps you.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jun 2009
Total Posts : 286
   Posted 7/18/2009 12:14 PM (GMT -6)   
Lori, I have trigeminal neuralgia as well. I was diagnosed after having almost the same pain as you describe, except on my left side. My doctor put me on Lyrica for that and for the fibro, and it has helped alot. The other thing that helped alot was having my wisdom teeth out, since apparently they were also pushing on that nerve.

What has your doctor planned for treatment?

"You were only given this life because you are strong enough to live it."

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Indomethacin, Buspar, Cymbalta, Lyrica, Requip, Nexium, Symbicort, Compazine, Lunesta.

Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 7/18/2009 2:07 PM (GMT -6)   
Hey Sarah,

Ya, my doc told me to increase my gabapentin dose, so I'll see. I had cut back in the last few months from 1200mg a day to 300mg every other day(the last 6 weeks). I got my wisdom teeth pulled about 20 yrs ago. I take Ultracet, which keeps it at a dull roar. But like I said b/4, it will REALLY start to hurt if I don't take it on schedule.

I don't have any dental insurance, so I hope I don't need to find one. I have had a lot of work done in my mouth. Good smile though. hee! My dad paid for most of it.

I really hate the feeling of my eye wanting to pop out! Argggg...
Dx Fibro 1/2008, gastritis
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed

New Member

Date Joined Jul 2009
Total Posts : 1
   Posted 7/18/2009 3:25 PM (GMT -6)   
Oh my goodness, I had that a few years ago. It was the most agonizing pain ever. In my case, if my dentist and doctor had been talking together, I wouldn't have endured pain. It turned out I needed a root canal, and now it is crowned. It was actually a small inflammation of the trigeminal nerve caused by a small infection. I found that it only came on at night, when I put my head back to sleep. Then I wouldn't be able to sleep at all.

One thing to start with, IMHO is to get your teeth checked out thoroughly, I had nerve tests done, and nothing came back conclusive and had a Dr. tell me it was all in my head. My dentist confirmed what I had been going through, and voila, no more pain there, anyhow.
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