SAVELLA - 3RD MED FDA APPROVE FOR FIBRO

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Barbara in Tally
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Date Joined Jul 2009
Total Posts : 2
   Posted 7/20/2009 11:15 PM (GMT -7)   
I'm thinking of asking my doc for it - anybody on it?  Is it working?  Do you have insomia? - appetite reduction?  (listed as possible side effects).

Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 7/20/2009 11:38 PM (GMT -7)   
Let me know. My insomnia is raging and the Meletonin stopped working
 
HARA

Barbara in Tally
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Date Joined Jul 2009
Total Posts : 2
   Posted 7/21/2009 4:20 AM (GMT -7)   
I take 3 x .5 clonipan for sleep and it USUALLY works pretty well.

Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 7/21/2009 6:31 AM (GMT -7)   
Hi Barbara and welcome. I haven't tried Savella but I'm sure you will get feed back from anyone that has. I'm glad you joined us. Read the fibro 101 thread, second on first page, it contains lots of great info. Read and ask questions and we will be here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
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MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 7/21/2009 9:06 AM (GMT -7)   
I'm on Savella, starting wk 2 of a 2 wk titration pack. The first 3 days are a total of 5 12.5mg pills, then days 4-7 are 25mg pills, 8 of them. And the days 8-14 are 2 50mg pills. I have read that it takes a full 6 wks for it to become fully active though. I will take my first 50mg pill tonight at bedtime, I must admit I'm a bit hesitant to take it, the 25mg pills have given me such horrible dizziness and 'brain zaps' that I have to lie down or fall down about an hr after I take it until it wears off, about the time for the next pill. I've not noticed any change in pain or fatigue, though my husband says there is a definite change in my mood, leaning towards the mean, b*tchy, and at times scary. It has also changed my appetite from one meal and munching through the day to nibbling though out the day and has caused me to lose another 5lbs. (At 93Lbs, back into my pre-pregnancy little girl jeans YAY! maybe?) LOL It is by class an antidepressant which means mood changes are possible, but it does effect everyone differently. I started taking buspar at the same time as the Savella but have altered my meds schedule and the mood changes come after taking the savella. I plan on continuing the titration pack though, in hopes that it will do what is says that it will do (change the brain chemistry to alter the way my brain responds to pain stimulus) though if the side effects are too much, I am calling my dr on Friday.
Though it's been a bumpy ride with savella, I still suggest trying it, as not everyone responds the same way to the same medication. I wish I had more positive things to say about it, but by nature I'm not a liar LOL

Best of luck and welcome.
Lola

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID


Buspar 10mg Savella Titrition pack Acetometaphen 500mg, Calming Sleep herbal suppliment, ActivOn topical pain relief, Melatonin 300mcg, B-complex, tramadol 50mg


Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 7/22/2009 1:51 AM (GMT -7)   
Barbara in Tally said...
I take 3 x .5 clonipan for sleep and it USUALLY works pretty well.
 
 
 
From HARA: I think I am going to talk to my Mental Health Counselor and DR to see if that would work for me to. I am taking a pill and a half of the same thing, maybe one or the other can up it for me.??hmmmm

marlygirl
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/6/2009 8:23 AM (GMT -7)   
Hi,
 
I started Savella 5 days ago. On the 4 th day I took one 25mg tablet and within an hour I was vomitng, had a terrible headache and wanted to die.  I was crying, I felt so bad.  To go on Savella, I had to quit taking Ultram.  Dr. gave me Percocet.  That made me worse.
When it was time for my second dose, I bailed.  I still had a headache on day 5 and skipped day 5 dose.  Today I went back down to 1/2 of the 25mg pill.  30 minutes later, I'm getting another headache--I don't think this drug is for me.
 
 

lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 8/6/2009 8:42 AM (GMT -7)   
Its a very hard drug to get onto b/c of all the side effects that everyone have been talking about BUT the good news if you stick with it...the side effects only last about a month! I have been on Savella for a few months now and the first few days/ week were a nightmare! I wasnt prepared for it to be that bad. I hadnt heard of anyone else taking it before at that point.
I think it is worth pushing through the rough patch...besides you loose weight right?!? lol So far I havent noticed it helping with pain, but it does make me more alert during the day and less in a fibro fog. I am giving it more time.

Good luck!
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/6/2009 9:02 AM (GMT -7)   
Welcome Barbara,

I have been taking Savella for almost a month. Started out with the introductry sample,
12.5 mg up to 100 mg a day. I now take 50mg 2x daily. Haven't had any bad side effects
but I can't say I had any noticeable changes since I've been on it. Hope it kicks in soon!

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


marlygirl
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/6/2009 9:09 AM (GMT -7)   
Savella is not for me--
Just vomited again. No wonder you lose weight!! I am on Diamox. Not a good thing to be vomiting and taking a med that is a diuretic. It will land me in the ER. It's happened before. NOT willing to take the risk. Ultram was much kinder to my body. I think these Drug manufacturers don't get it when we say we are sensitive. Perhaps the key is much slower up dosing. I am tired of trying new meds.

Fibro, CFS, Chiari, Migraines, DDD Cervical and lumbar spine, Fused C3-7

Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/6/2009 10:50 AM (GMT -7)   
I also took Savella for 6 wks and had to stop. It made me very agitated and irritable. Found myself jumping down peoples throats for no reason and that's just not like me. Sorry to say I can't recommend it. The rheumatologist I saw just yesterday thought the same about it.

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 8/6/2009 11:30 AM (GMT -7)   
sadly I will not be trying this Med.. I can not take any kind of anit depressants.
 
I am interested to know how well it works for others though.
 
Best of luck to all.
 
Spirit ~ idea

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/6/2009 12:56 PM (GMT -7)   
marlygirl said...
Savella is not for me--
Just vomited again. No wonder you lose weight!! I am on Diamox. Not a good thing to be vomiting and taking a med that is a diuretic. It will land me in the ER. It's happened before. NOT willing to take the risk. Ultram was much kinder to my body. I think these Drug manufacturers don't get it when we say we are sensitive. Perhaps the key is much slower up dosing. I am tired of trying new meds.

Fibro, CFS, Chiari, Migraines, DDD Cervical and lumbar spine, Fused C3-7
 
I'm with you on that. I hate trying new meds also. My Rheumy wanted to put me back on Prednisone. I looked at her and told her I would rather eat cow ....... Eewww sorry.  I don't want to be too grose. I'm trying the HERBAL thing because I'm either allergic or can't stand the taste of some pills. I hope you find a happy medium at some point. I would tell your DR. to take the Savella him/herself.... LOL
 
HARA turn I am feeling pretty good today. Ther herbs are working...slowly..but they are working. I've only had one neck spasm today.

Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 8/6/2009 1:20 PM (GMT -7)   
Hara, so you would rather eat a cow then take prednisone.. I take it you have been on prednisone. I am not a fan of prednisone but if I have a lung infection I have to take it. Love the way it makes my face rounder and nigtmares of coming off it.

Take care,
Stari
 


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 8/6/2009 2:39 PM (GMT -7)   
just started savella. on day 3 of titration pack. my pain doc did warn me of poss nausea. She said it would go away after a week, If it happens at all.

Well sure enough bad nausea on day 1 of pill and here it is day 3 and I am going on phenergan for nausea. She said hopefully it will go away and the med will work well.

here is hoping.

melissa
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/6/2009 3:54 PM (GMT -7)   
Stari said...
Hara, so you would rather eat a cow then take prednisone.. I take it you have been on prednisone. I am not a fan of prednisone but if I have a lung infection I have to take it. Love the way it makes my face rounder and nigtmares of coming off it.

Take care,
Stari

Yes I would rather eat cow d--! than go on Prednisone. It drastically ups my blood sugars and I don't like being between 300-400 and that close to the ER. NO thanks.
 
HARA yeah

marlygirl
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/6/2009 5:23 PM (GMT -7)   
I'm about ready to call it quits with antidepressants, too. 
I don't like the side effects of Prednisone either but it's amazing stuff if you get results with a medrol pak. The last Medrol pak gave me 4 months of relief.  Insomnia, massive appetite, and hyped feeling only last 1-2 days. 
 Hara, what herbal remedies are helping your pain?  I tried acupuncture, but for the whole week after I felt like I had a dozen bee stings.  Then with the next treatment it started all over.  Sorry,  I think if something makes me feel worse, it's crazy.  Nothing like a tepid bath with peppermint sea salts...  Problem is--  my head and neck  don't get relief in a bath.  GRRR...
I use a LOT of muscle rub, ice and heat.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/6/2009 9:26 PM (GMT -7)   
I use Ginger Root for my inflammation which turns my pain down a little or to an off position. I put a little cut up in a drink or a use the powder and put it in an empty capsoles (sp). I have to be careful of the Ginger because it acts like a stimulator and I don't get any sleep when I really want to.
 
I also take a mixture of freshly powderd Clove and Cat Nip for a little bit of a sedative. I'm still experimenting with dosage and when.
Oh I also am taking Burdock Root for my gas pains.  Burping becomes very flavorful at times.
 
I figured I have all these herbs that I bought a while back I might as well learn how to use them.
 
HARA
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