Well...I've been diagnosed.

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/21/2009 9:42 PM (GMT -7)   
And today, after an extremely painful poking and prodding session, I was diagnosed with fibromyalgia. Yippee ki yay. LOL. Actually, I'm not surprised. He upped the dosage of lyrica to see if that doesn't help more.

I'm going to go through all the helpful info soon. Can't tonight. Just a few random questions. Do any of you end up spending all night up and then have to survive on 6 or less hours a night routinely? I get the fog. People are always asking me "What did you WANT?" 'cause I'll start asking for something and then forget entirely what I needed/wanted in the first place.

Anyway, Hiya again all.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/21/2009 10:49 PM (GMT -7)   
Hi Joie1 and welcome!

Well, I'm sorry you have fibro but at least you know why you feel so rotten. Glad you have joined our family here on Fibro Island. It's a tiny respite is a sea of pain. Without the friendship and help from the people here I would never survive the pain of fibro. I know you'll find what you need here too. It's an awesome group.

Time for bed...about an hour ago...
CHutz
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/22/2009 6:56 AM (GMT -7)   
Hi Joie and welcome. As hard as fibro can be to live with sometimes it is a relief to know what you are fighting. I'm going through that with my digestive system right now. Whatever is there is there I just want to know what it is that is causing the problems. I don't care for mysteries when it comes to my body.
 
I think you already know what a caring group of people this is so we will be here to help you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 7/22/2009 8:58 AM (GMT -7)   
Joie, we are here to help you.  This is a great group.  You will learn a lot, get a lot of support, and have a few laughs.  We will help you live a full and enjoyable life with fibro...if we remember to help you!  devil
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


topsyturvy
Regular Member


Date Joined Jul 2009
Total Posts : 30
   Posted 7/22/2009 9:44 AM (GMT -7)   
Hello,

I do not sleep well either unless I have ambien. I'm growing used to the brain fog, some days I'm surprised I remember to do anything at all. Right now I just have muscle relaxers, I'm trying not to be one a whole lot. But I do take something for depression and anxiety which apparently comes from having this pain in the rear problem. Guess it's just a matter of dealing with it the best we can.
Ramie
 
Zanaflax, Pristiq, Xanax, ambien and occasionally a pain killer
 
Fibro, depression, anxiety, PCOS


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/22/2009 1:42 PM (GMT -7)   
Hmm...thanks for all the support and thoughts. I can't take Ambien. They tried to give me that in the hospital when I was awake for three days after I came out of the weeklong drug fog (huge amounts of painkillers after surgery). I couldn't sleep. So they gave me half an ambien...I thought I was going to kill something. My limbs were all heavy and wooden but my mind was racing. LOL, I don't respond well to sleep aids. Well...I responded to that one from another surgery...A something. It's also a muscle relaxer or some such. Adavan? But cripes, I don't want to take crap to sleep. LOL.

Anyways, thanks again. I'm having a bit of a time of it typing.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 7/22/2009 5:29 PM (GMT -7)   
Here Joie1 have a flashlight to help with the fog....
 


topsyturvy
Regular Member


Date Joined Jul 2009
Total Posts : 30
   Posted 7/22/2009 7:22 PM (GMT -7)   
I mainly just take a muscle relaxer and ambien. I'm sure there is more out there that I could try but the dr I have right now is just well actually a PA so I am getting a referral to a rheumy so that may help out.

I know there are some days that I'd just rather not get out of bed. My husband was not feeling well today and he said his joints hurt really bad and he wonder if I hurt like that all the time....ummmm yeah I hurt like that all the time.
Ramie
 
Zanaflax, Pristiq, Xanax, ambien and occasionally a pain killer
 
Fibro, depression, anxiety, PCOS

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