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Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 7/22/2009 11:04 AM (GMT -7)   
Its that time again, the 'witching hour' when i should be asleep and cant cos my pain is NOT under control, and the fog is dominant cos it took me 6 times to type the word 'asleep' properly. every night this week at the same time i have woken to excruciating pain, and horrid sinusitis- feels like my face is going to explode, and with my TMJ it feels like my stupid jaw is locked in place. My pain management in NOT enough, but they wont prescribe anything stronger than high codeine based stuff as i am on Xanax, and that is seen as a conflict, and they flag me as an addict- which is unfair. i use my Xanax at the prescribed dose and am responsible.
 
sorry to vent, but its 3am and i knew i could come here- where people understand.
 
Maz XX
                        Co-Moderator Anxiety & Panic- Depression
 
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, IBS, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, GERD,
Low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Mobic. Panadeine Forte. Digesic. Nexium.  Codeine Phosphate. Phenergan. Multiple surgeries- I bear the scars of my poor physical health.
Age:29. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/22/2009 12:04 PM (GMT -7)   
Maz, I went through a period of waking in the wee morning hours, not cause of pain just cause of my messed up brain I guess. I starting taking another dose of xanax since that is what I use to sleep and was able to go back to sleep but I was still staying within my rxd dosage of xanax. I'm not on codeine so I don't know if you could take pain med and xanax in the early hours and get back to sleep but that is my only suggestion.
 
Peaceful dreams I hope.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 7/22/2009 1:00 PM (GMT -7)   
When this happens to me, I read for an hour. If I'm still not sleepy I might clean something or pick up around the house or take a walk. Maybe that would help you?

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 7/22/2009 1:17 PM (GMT -7)   
Reading works for me, too..but nothing too upsetting or in depth or anything like that. I usually pull out light and fluffy "chic lit" kind of books for those times..
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 7/22/2009 1:24 PM (GMT -7)   
I mostly agree with WCC, except I wouldn't do something active like cleaning or taking a walk (but that's me). I take Tofranil 2 hours before bed to help me relax, so most of the time I don't have the problem. But now and then I'll have something on my mind and can't "get the hampster off the wheel" inside my head. So if I get up and watch TV or play a game on the computer for a bit--something to interrupt the cycle of spinning thoughts in my brain--then I can relax and go to sleep. If my insomnia is pain related, I might try spending some time in my massage chair or a warm bath.

Oh, sinusitis is horrible. I know all about that face exploding thing. So sorry. Moist heat applied gently on the face can help. Neo-Synephrine nasal spray is really good. It shrinks the swelling inside nasal passages caused by irritation, which contributes to congestion. YIt works fast and you're not swallowing another pill.

Sorry, hon. Hope you feel better.
Donna


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 7/22/2009 2:21 PM (GMT -7)   
Yep, I get on the computer, too, when I can't sleep.  Have you tried putting moist heat on your forehead using a Bed Buddy?  I made my own.  You take a tube sock, fill it 2/3's full of raw long grain rice and tie a knot at the end.  Then pop it in the microwave and it gives off moist heat due to the moisture in the rice.  This might help thin out the mucous so it will drain and help ease the discomfort.
 
Also, try steaming up the bathroom and breath the steam.  That helps loosen mucous, too.
 
Of course, no caffeine after 4 or 5 PM.  I hope you get a good night's sleep tonight.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 7/22/2009 3:44:32 PM (GMT-6)


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 7/22/2009 2:36 PM (GMT -7)   
My mind ususally lets me go to sleep once it figures out that if it doesn't let me sleep I'm going to do something silly like taking a walk or cleaning :D

crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 7/22/2009 4:18 PM (GMT -7)   
Heck I don't clean or take a walk during the day so it's the farthest thing from my mind in the middle of the night!
Donna


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 7/22/2009 4:54 PM (GMT -7)   
Maz,
   I know what it is like, mine was usually between midnight and 2.  Unfortunately for me, my alarm goes off at 3:30 and I'm up and running (some days crawling) to go to work. Most of my real bad night pain started when my waterbed exploded
during the middle of the coldest snap this winter. 200 gallons or more on the floor. The drains were frozen so we drilled holes in the floor (it's a mobile home) and let it drain on the ground. I never knew how much my body had become used to having the heat at night.
     Do any of you have spasms with your fibro? Since then my body kind of curls up and hurts like hell for a minute or so then I can straighten back out. Keeps hitting like that. I do hot showers which helps. Since my herbal regeime I've been doing better and have only had 2 major attacks and a couple of small ones. I'm now on day 6 without painkillers.
 
                                           Nana Monster

Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 7/22/2009 5:24 PM (GMT -7)   
Maz,
I am going to play mom for a minute ok. What time do you go to bed at? I don't work during the summer so my routine is to stay up until midnight or 1 and getting up between 10:30-noon. Have you tried changing your bed time?
 


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 7/22/2009 5:36 PM (GMT -7)   
I'm with you, catlady!
 
Clean in the middle of the night...are you kidding me...LOL!  What I want when I can't sleep because of the pain is for Sherrine's pool boy to give me a midnight massage....Now you're talkin!
 
Maze...I know what you are talking about.  I paced the floors last night because I felt like I was on fire.  I also have TMJ and can't wear the stupid $800 mouth guard because it gives me canker sores.  I have chewed holes in my cheeks while I 'so call' sleep.  I think we should have a Witching Hour Chat forum for those of us are up watching the Jewelry Channel in the middle of the night.
 
Huggies
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/22/2009 5:45 PM (GMT -7)   
Awwww Maz...I'm sorry you're getting such rotten treatment from the doctors. You do nothing wrong yet you get the penalty. It's impossible to get past some doctors who are just scared about money...and only money. My opinion is that is they are unwilling to give you good pain control then recommend you to someone who can. If they won't do that then get out of the business. Do they remember their oath they took? "First, do no harm." Is letting you suffer doing harm? You're darn right it is.

Maybe they could come up with a combination that would work. I take Effexor and there are no issues with me also taking oxycontin and percocets. But if you go in and ask for them I would imagine it would not be a good scene.

I hope warm thoughts and gentle hugs will help. It's all I can offer right now.
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 7/23/2009 1:08 AM (GMT -7)   

Thanks for your responses guys-

I go to sleep by 10.30pm usually. I take my 4mgs of Xanax prior to bedtime. When i wake in the night from pain, i generally get online, come here or to Facebook- I also read. I am an avid reader (not just because im an english teacher- i adore reading). I put a movie on and wait for the painkillers to kick in, but today, ive taken the maximum dosage and ive had zero relief. im in the grips of a really strong flare- from head to toe i hurt, like my joints have been locked out of place. And my head is pounding- and my jaw is all tight and awful.

Ive done the wheat bags and the heat feels good. My mum is a nurse who offered me a massage as my back is really painful, but im so sore i cant bare to be touched.

Thankyou all so much for letting me vent and sook, its great to be around people who GET IT. I just want to cry, but crying hurts! rolleyes Blessings,

Maz XX

P.S Ive had major sinus surgery just on 2 years ago. Every ear, nose and throat complication you can get, ive had. had a cat scan and MRI last week and basically my sinuses are rotting away and the surgery- the highly painful and costly surgery- was a dismal failure. Combine the sinus facial pain with fibro facial pain and BAM! exploding head! eyes


                        Co-Moderator Anxiety & Panic- Depression
 
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, IBS, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, GERD,
Low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Mobic. Panadeine Forte. Digesic. Nexium.  Codeine Phosphate. Phenergan. Multiple surgeries- I bear the scars of my poor physical health.
Age:29. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 

Post Edited (Mazfire) : 7/23/2009 2:12:29 AM (GMT-6)


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/23/2009 6:08 AM (GMT -7)   
Oh Maz that has to be sooo painful. That made my face hurt reading about it. No wonder your in a major flare. I so hope you can get some relief soon.
 
Did I read right that you take 4 mgs of xanax at a time to sleep??? I'm only allowed 3 mg a day.
 
Get better. (((hug)))
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 7/24/2009 12:32 AM (GMT -7)   
Marlee2 said...
 
 
Did I read right that you take 4 mgs of xanax at a time to sleep??? I'm only allowed 3 mg a day.
 
 
 
Hi ((((Marlee))))
 
Yep, Im prescribed 4mgs a day for management of Panic Disorder and Agoraphobia. I take it at night- and it is a pretty high dose, but having been on it for so long, I dont feel its effects. I also take Zoloft for the Panic etc.
 
Maz XX
                        Co-Moderator Anxiety & Panic- Depression
 
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, IBS, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, GERD,
Low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Mobic. Panadeine Forte. Digesic. Nexium.  Codeine Phosphate. Phenergan. Multiple surgeries- I bear the scars of my poor physical health.
Age:29. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 7/24/2009 1:42 PM (GMT -7)   
Oh Maz, I am so sorry. Even though you take xanax I think you still need some type of pain reliever or muscle relaxant. Zanaflex is a great one You can take it in the daytime and also about one hour before bed. It works on the central nervous system and helps you sleep.

I hope you receive good treatment soon. Xanax is not enough.

Donnaeil

Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 7/24/2009 9:57 PM (GMT -7)   

Hi Donnaeil,

For pain i take codeine based prescription painkillers and tramadol, paradex etc. But none of it is strong enough.

Maz XX


                        Co-Moderator Anxiety & Panic- Depression
 
 
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
 
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ disorder, Endometriosis, PCOS, Chronic E.N.T and Upper respiratory tract infections, Reactive Arthritis, IBS, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, GERD,
Low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Mobic. Panadeine Forte. Digesic. Nexium.  Codeine Phosphate. Phenergan. Multiple surgeries- I bear the scars of my poor physical health.
Age:29. AP first DX @ 10. Fibro etc DX @14. Proud Aussie.
 
 


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 7/26/2009 1:44 AM (GMT -7)   
Hi Maz,
     It's 4 am and I'm supposed to be on vacation. Unfortunately my body is going ...."It's time to get up for work!".
Kind of stiff as we've had nearly 5 days of off and on rain, the fronts play hell with me. I just took my 4 am dose of Super Cissus which has a built in painkiller and waiting for it to take effect.
    For your sinuses check into colustrum (bovine breast milk). It boosts the immune system and doesn't play havoc with you. I've been on 4 a day, 2 in the morning and 2 at night, along with the same of hylaronic acid. I've been averaging only 2 or 3 sinus infections a year instead of one every month. I used to live on antibiotics..as soon as I got done with a dose I got another one. Whenever I feel one coming on I just up the dose of colostrum.
 
                             Hope you feel better
 
                                       Nana Monster
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