So fatigued...

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bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 7/23/2009 6:12 AM (GMT -7)   
Hi, I'm new to fibromyalgia but not HealingWell (I have ulcerative colitis). I've been having a lot of fatigue and joint pain (mostly in my wrists and fingers). My rheumy thinks that it may be fibromyalgia b/c my inflammation rate is normal, so it's not RA. But she won't give me an actual diagnosis until she sees if vitamin D supplements are helping with the fatigue.
 
But I'm so tired all the time, even if I get 11 hours of sleep. It's like I can never get enough sleep. Sometimes, I only have energy to sit on the couch and watch TV instead of doing something productive. Just stepping out of the house for a few hours makes me want to take a nap. I'm only 20, but I feel much older. I just want some energy!
 
Is there anything you all do to help with the fatigue?
Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric


myjoy
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Date Joined Feb 2009
Total Posts : 686
   Posted 7/23/2009 7:01 AM (GMT -7)   
Sorry you are having all this fatigue. Have you been tested for sleep apnea? That was my big problem. I went to a sleep center and found out I stopped breathing 39 times per hour.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 7/23/2009 7:23 AM (GMT -7)   
I thought that people with sleep apnea woke up in the middle of the night? I don't have that problem at all--I sleep like a baby!
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 7/23/2009 10:38 AM (GMT -7)   
Hi, Bookworm, and welcome to the fibro forum.  I have Crohn's disease so I know a little of what you go through.  I, also, have a vitamin D deficiency.  Many with fibromyalgia have that too.  I'm taking 3,500 IU of D3 a day to help me with that.  A vitamin D deficiency can cause pain and fatigue.
 
I also take malic acid/magnesium supplements.  Many with fibro are deficient in these nutrients, too.  These have helped me a lot with pain and fatigue.  They don't work for everyone but it might be worth a shot!  Be sure to ask your doctor first.  I asked my doctor and he thought I would be wasting my money.  So I asked him it they would hurt me and he said they wouldn't so I decided to try them.  Guess what?  My doctor was wrong and they did help me.
 
Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibromyalgia including a link all about malic acid/magnesium supplements and also a list of symptoms. 
 
People with fibro many times don't get into the deep REM sleep.  I fall asleep easily but I basically doze.  I'm up several times a night too, so I'm not getting as restful a sleep as the average person.  This is part of the fatigue issue. 
 
I'm glad that you popped over her and joined in.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.
 
Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 7/23/2009 11:41:18 AM (GMT-6)


bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 9/3/2009 8:41 PM (GMT -7)   
So the fatigue issues bettered for a couple weeks. But I started classes this week and it's almost unbearable. Sure, I usually get a bit more achey during the first week of school b/c of walking, but last night I could barely stand. My shins hurt. I'm not a deep sleeper, but I have been the last couple days. Last semester, I got by on 7 hours of sleep + 2 hour naps; this past week, even though I haven't even had all of my classes, I'm sleeping 8-9 hours + 2 hour naps. I can barely open my eyes when my alarm goes off. The best feeling to describe the fatigue is "heavy," like my body is weighed down with fatigue.
 
My UC is under control and my allergies have been doing pretty well, especially considering how much more I'm outside now. My rheumy did hint at fibromyalgia once, but she said my symptoms weren't bad enough to do something about it. My GI doesn't know what the fatigue could be. At this point, I don't know how I'm going to survive this semester, especially since I have grad school apps and whatnot. Heck, I don't know how I'll even survive "real life" (i.e. working 40 hours per week)  shakehead
 
Sorry if this is rambling. I just woke up from a nap and I'm in a bit of a fog.
 
Any thoughts?

Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/4/2009 6:06 AM (GMT -7)   

Hi!  Can you take ibuprofen or Tylenol?  It looks like you aren't taking anything to help with your pain.  For me, the pain wears me down and exhausts me and that causes a lot of my fatigue.  I am currently in a flare...it's gone on for two months so far.  This happens to me every summer because of the heat, humidity, and rain.  We fibromites would make wonderful weathermen!  I walk daily and right now, because of the flare, my shins hurt...almost feels like shin splints.  This goes away as the flare leave in the fall.  Maybe this is happening to you.

I take ibuprofen with food and extra strength Tylenol for my pain.  When in a flare, I take the maximum amount of both of these.  My doctor knows this and is okay with it, since my flares pass.  Most of the time I take less.  I only take what I really need to take the edge off the pain so I can function and live my life.  This has helped me live with fibro for over two decades.  So, ask your doctor and pharmacist about this.  I do have Crohn's disease and have still been able to take this.

Also, I started malic acid/magnesium supplements nearly two years ago and they have help be with the pain and fatigue.  So, this is something else to consider.  There is a link in the Fibro 101 thread about these supplements and how they work in the body.

You have to keep trying things so you can get control of  your pain.  Once you do that, you might find the fatigue getting a little better.  Keep moving, walking, etc.  There are some stretching exercises on Fibro 101 that really do work.  All of this helps with the pain of fibromyalgia.

I sure hope you start feeling better soon.  Let us know how you are doing.  We really do care about you.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/4/2009 7:37 AM (GMT -7)   
Bookworm I'm so sorry things haven't gotten any better for you. I stay on a sleep schedule, to bed at 10:00, asleep by 11:00 and I wake up between 6:00 and 7:00. I don't nap during the day but I will lay on the couch with my eyes closed and rest for about an hour in the late afternoon. Are you on vit D??? I take it as much as my tummy will allow me to cause mine is low.
 
I found out recently I have celiac and have had to change my diet and my digestive system is better than it has been in a long, long time and I'm hoping that as my small intestine heals I will have more energy. I may be grasping at straws here but the fatique is just horrible. For me even on the lowest pain days when I want to do even more the fatigue is still there.
 
Some take provigil or adderal for fatigue but neither agreed with me.
 
I hope you find something that works for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/4/2009 5:17 PM (GMT -7)   
Thanks for the responses.
I haven't taken ibuprofen since my UC diagnosis. Anyway, I only take Tylenol when I'm in unbearable pain (like monthly cramps!). My shins were much better yesterday, but it's hurting again today. I'll look into those magnesium supplements.
I am taking vitamin D--50000 IU 1x/month and 1400 IU daily. It really seemed to help with the fatigue in the beginning, but it has tapered off. I've already been tested for celiac disease.

Sherrine, is your fibro and CD connected, or are they completely independent of each other?
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/4/2009 7:42 PM (GMT -7)   
Bookworm, I can't say enough good things about the malic acid/ magnesium supplements. One of my chief complaints was fatigue and weak muscles. I felt like I had been dipped in cement, it was so hard to move. I tried the malic acid, and within 2 weeks, I felt almost normal. Then I forgot them for a few days, and I couldn't push my dd on the swing for 5 minutes, I thought I would collapse. It can be hard on your stomach, so start off slowly if you decide to go that route. I was taking 4/day, 2 with breakfast, 2 with dinner. This spring I thought I was magically cured, so I stopped all my meds. The pain came back but not the fatigue so much, so I haven't started the malic acid back up yet.

Good luck to you! severe fatigue is so debilitating, I hope you find a remedy, especially with school and work.
possible fibro and trigeminal neuralgia
50 mgs amitriptyline


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/10/2009 8:46 AM (GMT -7)   
Uh oh, malic acid on the stomach? That makes me nervous, especially since my IBS has been acting the past few days.
 
What level/measurement of vit D significantly helps your fatigue? I'm at 30 right now (23 before).
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 9/10/2009 9:03 AM (GMT -7)   
I'm going to suggest something that has really helped my mom, even though she doesn't have fibro. She works a lot, and she has a busy job, so by the time she got home, she ate a bowl of cereal and went to bed. Then she started taking SuperB. You can find it in the vitamin section at Walmart and other such stores. It's got all different kinds of B vitamins. My mom swears by it. She says stick with it for three weeks because it takes that long to notice an improvement, but, after that, you notice it, and she loves it and how much more energy she has to deal with her days.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/10/2009 9:05 AM (GMT -7)   
Bookworm, I started my problems with Crohn's eleven years before the fibromyalgia kicked in so I guess they are independent.  I never thought about that because, what difference would it make?  I would still have both of them.
 
If you take malic acid/magnesium with food, you probably would be fine.  I haven't had problems taking it. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/11/2009 6:26 PM (GMT -7)   
Should I take malic acid and magnesium, or just start with one or do they combine both of them? How many mg should I take? I'm always hesitant to try new meds and supplements, but I'm so desperate.
 
I can't take a super B vitamin b/c my B12 level was extremely high.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin

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